Data Access Policy
This policy applies to all external researchers who apply to use the data from the IPCOR 1 project in UCD. This policy refers to the IPCOR 1 dataset which is held on the IPCOR 1 area on the Novell server in UCD.
The IPCOR 1 dataset is a pseudonymised dataset, and is subject to a conditional consent declaration from the Health Research Consent Declaration Committee (HRCDC). The HRCDC consent declaration only applies to IPCOR team members and does not apply to external researchers. This data access policy negates the need for external researchers to apply for their own HRCDC consent declaration to access IPCOR 1 data. The policy also ensures that proposed analyses are pre-registered which mitigates the chance of “p-value hacking or fishing”, making the research process transparent and reproducible. It also increases data security as the data never leaves UCD. IPCOR 1 – External data access policy.V1.0.23.5.24
About IPCOR
Aims
The Irish Prostate Cancer Outcomes Research programme set up a prostate cancer registry which captured high-quality information about newly diagnosed prostate cancer patients in 16 hospitals in Ireland.