IPCOR 1 Data Dictionary
Data Dictionary Identification | Form | Variable ID | Column Name | Description/Label | Allowed Values/Value Range | Data Type | Source | Notes/Comments |
---|---|---|---|---|---|---|---|---|
1001 | DEMOGRAPHY | P_ID | Patient ID | Patient ID number which links all their information. | Unique text | |||
1002 | DEMOGRAPHY | dob | Date Of Birth | Patient's date of birth | Year - 1901-1985 Blank | Date (Short Date Format) | all dates are in 01/01/YYYY format | |
1003 | DEMOGRAPHY | smoker_status | Smoking Status | Smoking status at diagnosis | Never Ex Current Unknown NA | Short Text | ||
1004 | DEMOGRAPHY | occupational_status | Occupational Status | Occupation status of the patient | Retired Unemployed Employed Self-Employed Religious Unknown NA | Short Text | ||
1005 | DEMOGRAPHY | marital_stat | Marital Status | Marital status at time of diagnosis | Married Single Divorced Widowed Separated Unknown NA | Short Text | ||
1006 | DEMOGRAPHY | vital_status | Vital Status | Vital status | Alive Dead Unknown NA | Short Text | ||
1007 | DEMOGRAPHY | DOD_recorded | Date Of Death Recorded | Date of death of Patient recorded | FALSE TRUE | Boolean TRUE / FALSE | ||
1008 | DEMOGRAPHY | dod | Date Of Death | Date of death of Patient | Year - 2016-2019 NA | Date (Short Date Format) | all dates are in 01/01/YYYY format | |
1009 | DEMOGRAPHY | age_death | Age of Death | Age of death of Patient | 50-97 NA | Long Integer | ||
1010 | DEMOGRAPHY | family_member | Family Member | First degree family member diagnosed with prostate cancer | None Brother Father Father & Brother Unknown NA | Short Text | ||
1011 | DEMOGRAPHY | age_family_member | Age of Family Member | Age when first degree family member diagnosed with prostate cancer | <65 65+ Unknown NA | Long Integer | ||
1015 | DEMOGRAPHY | county | County | County of Residence | CORK LEITRIM CAVAN WATERFORD MEATH DUBLIN KILDARE DONEGAL GALWAY KILKENNY MAYO TIPPERARY SLIGO WESTMEATH KERRY CLARE LOUTH WICKLOW OFFALY MONAGHAN ROSCOMMON WEXFORD CARLOW LIMERICK LONGFORD LAOIS NA | Short Text | ||
1017 | CLIN_MGMT | MDTdate | Multidisciplinary Team Meeting Date | Date of first multi-disciplinary team (MDT) meeting post-diagnosis | Yes No Unknown NA | Boolean Yes / No | ||
1018 | CLIN_MGMT | discussed_at_MDT | Discussed at Multidisciplinary Team Meeting | Was the patient discussed at a multi-disciplinary team (MDT) meeting post-diagnosis? | Yes No Unknown NA | Boolean Yes / No | ||
1019 | CLIN_MGMT | intent | Treatment Intent | What is the treatment intent for the primary management/ treatment received by the patient for their prostate cancer? | Curative Palliative Watchful Waiting Unknown NA | Short Text | ||
1037 | CLIN_MGMT | ecog | Eastern Cooperative Oncology Group Performance Status | The Eastern Cooperative Oncology Group (ECOG) Scale of Performance Status describes a patient’s level of functioning in terms of their ability to care for themself, daily activity, and physical ability (walking, working, etc.). | Fully Active Not able to work Restricted Totally Confined to Bed/Chair Unknown NA | Short Text | ||
1043 | DIAGNOSIS | date_diag | Date of Diagnosis | The date that the diagnosis of prostate cancer is comfirmed. | 2014- 2019 NA | Long Integer | ||
1044 | DIAGNOSIS | age_diag | Age at Diagnosis | The age that the diagnosis of prostate cancer is comfirmed. | 31 - 94 NA | Long Integer | ||
1045 | DIAGNOSIS | symptoms_none | No Symptoms | The symptoms the patient had at their first appointment with the urology team. | Yes No Unknown NA | Boolean Yes / No | ||
1046 | DIAGNOSIS | symptoms_urinary | Urinary Symptoms | The urinary symptoms the patient had at their first appointment with the urology team. | Yes No Unknown NA | Boolean Yes / No | ||
1047 | DIAGNOSIS | symptoms_bone | Bone Symptoms | The bone symptoms the patient had at their first appointment with the urology team. | Yes No Unknown NA | Boolean Yes / No | ||
1048 | DIAGNOSIS | symptoms_other | Other Symptoms | Other symptoms the patient had at their first appointment with the urology team. | Yes No Unknown NA | Boolean Yes / No | ||
1049 | DIAGNOSIS | symptoms_wt_loss | Weight Loss Symptoms | The weight loss symptoms the patient had at their first appointment with the urology team. | Yes No Unknown NA | Boolean Yes / No | ||
1050 | DIAGNOSIS | psa_date | PSA Test Date | The PSA result that is closest to diagnosis. | Long Integer | |||
1052 | DIAGNOSIS | psa_level | PSA Level | Result of PSA blood test. | Long Integer | |||
1053 | DIAGNOSIS | psa_double | PSA Doubling Time | Result may be doubled due to medication the patient is taking. | FALSE TRUE NA | Boolean TRUE / FALSE | ||
1054 | DIAGNOSIS | image_us | Ultrasound Imaging | Scans carried out to help diagnose and assess the cancer | Yes No Unknown NA | Boolean Yes / No | ||
1055 | DIAGNOSIS | image_mri | MRI Imaging | Scans carried out to help diagnose and assess the cancer | Yes No Unknown NA | Boolean Yes / No | ||
1056 | DIAGNOSIS | image_pet | PET Imaging | Scans carried out to help diagnose and assess the cancer | Yes No Unknown NA | Boolean Yes / No | ||
1057 | DIAGNOSIS | image_bs | Bone Scan Imaging | Scans carried out to help diagnose and assess the cancer | Yes No Unknown NA | Boolean Yes / No | ||
1058 | DIAGNOSIS | image_other | Other Imaging | Scans carried out to help diagnose and assess the cancer | Yes No Unknown NA | Boolean Yes / No | ||
1059 | DIAGNOSIS | image_ct_tap | CT TAP Imaging | Scans carried out to help diagnose and assess the cancer | Yes No Unknown NA | Boolean Yes / No | ||
1060 | DIAGNOSIS | biopsy_type | Type of Biopsy | The name of the biopsy which is done to confirm the cancer type. | TRUS Trans-urethral Tranperineal Other Unknown NA | Short Text | ||
1061 | DIAGNOSIS | biopsy_date | Biopsy Date | The date that the biopsy was done. | Long Integer | |||
1063 | DIAGNOSIS | histology_type | Histology Type | Describes any abnormal cells found. This is the name of the tumour. | Adenocarcinoma Adenocarcinoma & Other Other Unknown NA | Short Text | ||
1064 | DIAGNOSIS | num_cores_exam | Number of Cores Examined | Describes the number of samples taken from the prostate | Long Integer | |||
1065 | DIAGNOSIS | num_cores_positive | Number of Cores Positive | The nubmer of core samples that are positive for cancer. | Long Integer | |||
1066 | DIAGNOSIS | percent_cores_positive | Percentage of Cores Positive | Derived | 2.127659507 - 950 NA | Long Integer | ||
1067 | DIAGNOSIS | primary_grade | Primary Grade | First number in Gleason grade. | 3, 4, NA, 5, 9, 2 | Long Integer | ||
1068 | DIAGNOSIS | secondary_grade | Secondary Grade | Second number in Gleason grade. | 4, 3, 6, 5, NA, 2, 7 | Long Integer | ||
1069 | DIAGNOSIS | gleason_score_added | Gleason Score Added | Derived | 7, 8, 6, 9, NA, 10, 4 | Long Integer | ||
1070 | DIAGNOSIS | gleason_grade | Gleason Grade | The sum of the first and second grades listed. | 3+3 3+4 3+5 4+3 4+4 4+5 5+3 5+4 5+5 NA | Long Integer | ||
1071 | DIAGNOSIS | new_gleason | New Gleason Score | The new number for the Gleason grade | 1,2,3,4,5,NA | Long Integer | ||
1072 | DIAGNOSIS | grade_unusal_histology | Unusual Histology Grade | The grade given to tumors that are not adenocarcinomas. | 1,2,3,4,5,NA | Long Integer | ||
1073 | DIAGNOSIS | higher_tertiary | Higher Tertiary Grade | If a small amount of a higher Gleason grade if found. | 1,2,3,4,5,NA | Long Integer | ||
1074 | DIAGNOSIS | perineural_invasion | Perineural Invasion | Cancer cell invasion of nerves cells. | Yes No Unknown NA | Boolean Yes / No | ||
1075 | DIAGNOSIS | lymph_vasc_invasion | Lymphovascular Invasion | Lymphovascular invasion is the spread of a cancer to the blood vessels and/or lymphatics. | Yes No Unknown NA | Boolean Yes / No | ||
1076 | DIAGNOSIS | clinical_T | Clinical Tumor Stage (T) | Clinical Tumour grade | T1a, T1b, T1c, T2a, T2b, T2c, T2, T3a, T3b, T3, T4, TX, NA | Short Text | ||
1077 | DIAGNOSIS | clinical_N | Clinical Node Stage (N) | Clinical Node grade | N0, N1, NX, NA | Short Text | ||
1078 | DIAGNOSIS | clinical_M | Clinical Metastasis Stage (M) | Clinical Metastatic grade | M0, M1, NA | Short Text | ||
1079 | DIAGNOSIS | clinical_TNM | Clinical TNM Stage | Derived | NA, T2aN0M0, T2N0M0, T2cN0M0, T3bN0M0, T2bN0M0, T2cN1M0, T3bN1M0, cT2cN0M0, T1cN0M0, T3aN0M0, T3aN1M0, T2NXM0, N0M0, T3aN0, T2cN0, N1M1, T1cNXM0, T3N0M0, T2bN0, T4N0M1, T1CN0M0, T1aNXM0, T3bN1M1, T3bN0M1, T1CNXM0, T1aN0M0, TxN0M0, M1, M0, T2aN0, T2N0M1, T2aNXM0, cT3aN0M0, T1cN0, cT2aN0M0, cT1cN0M0, T1bN0M0, T4N1M0, T2N0, T4N0M0, T4N1M1 | Short Text | ||
1080 | DIAGNOSIS | Msite_lung | Metastasis Site - Lung | Metastatic sites- sites where the cancer has spread to in the rest of the body. | Yes No Unknown NA Not Present | Short Text | ||
1081 | DIAGNOSIS | Msite_liver | Metastasis Site - Liver | Metastatic sites- sites where the cancer has spread to in the rest of the body. | Yes No Unknown NA Not Present | Short Text | ||
1082 | DIAGNOSIS | Msite_bone | Metastasis Site - Bone | Metastatic sites- sites where the cancer has spread to in the rest of the body. | Yes No Unknown NA Not Present | Short Text | ||
1083 | DIAGNOSIS | Msite_lymph | Metastasis Site - Lymph Nodes | Metastatic sites- sites where the cancer has spread to in the rest of the body. | Yes No Unknown NA Not Present | Short Text | ||
1084 | DIAGNOSIS | Msite_other | Metastasis Site - Other | Metastatic sites- sites where the cancer has spread to in the rest of the body. | Yes No Unknown NA Not Present | Short Text | ||
1086 | DIAGNOSIS | CAPRA | Cancer of the Prostate Risk Assessment | Auto-generated | NA, 0, 2, 6, 3, 5, 7, 9, 1, 10, 4, 8 | Long Integer | ||
1087 | DIAGNOSIS | modified_CAPRA | Modified Cancer of the Prostate Risk Assessment | Auto-generated | NA, 2, 8, 5, 4, 1, 6, 3, 9, 7 | Long Integer | ||
1088 | DIAGNOSIS | any_biop_comp | Any Biopsy Complications | Any side effects that happened to the patient as a result of the biopsy. | FALSE TRUE NA | Boolean TRUE / FALSE | ||
1089 | DIAGNOSIS | biop_comp_bleeding | Biopsy Complication - Bleeding | Any side effects that happened to the patient as a result of the biopsy. | Yes No Unknown NA | Boolean Yes / No | ||
1090 | DIAGNOSIS | biop_comp_uti_not_admit | Biopsy Complication - UTI Not Admitted | Any side effects that happened to the patient as a result of the biopsy. | Yes No Unknown NA | Boolean Yes / No | ||
1091 | DIAGNOSIS | biop_comp_uti_sepsis_admit | Biopsy Complication - UTI with Sepsis Admitted | Any side effects that happened to the patient as a result of the biopsy. | Yes No Unknown NA | Boolean Yes / No | ||
1092 | DIAGNOSIS | biop_comp_none | No Biopsy Complications | Any side effects that happened to the patient as a result of the biopsy. | Yes No Unknown NA | Boolean Yes / No | ||
1093 | DIAGNOSIS | biop_comp_other | Other Biopsy Complications | Any side effects that happened to the patient as a result of the biopsy. | Yes No Unknown NA | Boolean Yes / No | ||
1094 | DIAGNOSIS | biop_comp_urin_retent | Biopsy Complication - Urinary Retention | Any side effects that happened to the patient as a result of the biopsy. | Yes No Unknown NA | Boolean Yes / No | ||
1095 | DIAGNOSIS | initial_referal | Initial Referral | The date the patient was referred to the urologist for specialist care. | Long Integer | |||
1097 | DIAGNOSIS | first_clinic_visit | First Clinic Visit | The date the patient was first seen by a urologist. | Long Integer | |||
1099 | DIAGNOSIS | staging_MRI | Staging MRI | Date of the prostate MRI | Long Integer | |||
1101 | DIAGNOSIS | biop_before_staging_MRI | Biopsy Before Staging MRI | Selected if a prostate MRI done before the biopsy. | FALSE TRUE NA | Boolean TRUE / FALSE | ||
1102 | DIAGNOSIS | age_diag_5yrs | Age at Diagnosis (5-Year Categories) | Age of the patient at diagnosis grouped into 5-year categories | 36-40, 41-45, 46-50, 51-55, 56-60, 61-65, 66-70, 71-75, 81-85, 86-90, 91-95, NA | Long Integer | ||
1104 | DIAGNOSIS | reported_date | Reported Date | The date the diagnosis is signed off by the consultant | 25/06/2015 - 08/06/2021 01/01/1901 26/10/2107 27/10/2107 18/01/2108 19/09/2001 NA | Date (Short Date Format) | ||
1105 | DIAGNOSIS | days_reported | Days Reported | The date the diagnosis is signed off by the consultant | Long Integer | |||
1108 | DIAGNOSIS | biopsy_type_2 | Biopsy Type 2 | The name of the biopsy which is done to confirm the cancer type. | TRUS Trans-urethral Tranperineal Other Unknown NA | Short Text | ||
1109 | DIAGNOSIS | biopsy_date_2 | Biopsy Date 2 | The date that the biopsy was done. | Long Integer | |||
1111 | DIAGNOSIS | gleason_2 | Gleason Score 2 | The sum of the first and second grades listed. | NA, 6, 8, 7, 0, 9 | Long Integer | ||
1112 | DIAGNOSIS | new_gleason_2 | New Gleason Score 2 | The new number for the Gleason grade | NA, 1, 4, 3, 0, 2, 5 | Long Integer | ||
1113 | DIAGNOSIS | dre | Digital Rectal Exam | The examination of the prostate by the doctor or nurse specialist | Suspicious Normal NA | Short Text | ||
1115 | DIAGNOSIS | subseq_diag | Subsequent Diagnosis | Indicates if the patient has had a subsequent diagnosis | FALSE TRUE NA | Boolean TRUE / FALSE | ||
1118 | SURGERY | date_surg | Date of Surgery | The date the surgery was done. | Long Integer | |||
1120 | SURGERY | surg_type | Type of Surgery | Denotes the type of surgery that was done. | Radical Prostatectomy, TURP, Other, NA | Short Text | ||
1121 | SURGERY | surg_approach | Surgical Approach | The way the surgeon carried out the operation | Robot, Open, Laproscopic, Unknown, NA | Short Text | ||
1122 | SURGERY | nerve_sparing | Nerve-Sparing Surgery | Denotes if the nerves around the prostate were left intact | Yes No Unknown NA | Boolean Yes / No | ||
1123 | SURGERY | nerve_sparing_type | Type of Nerve-Sparing Surgery | Records if the nerves on either side or one side were left intact | Unilateral, Bilateral, Unknown, NA | Short Text | ||
1124 | SURGERY | pelvic_l_node_dissection | Pelvic Lymph Node Dissection | Records if any lymph nodes were taken from around the prostate | Yes No Unknown NA | Boolean Yes / No | ||
1125 | SURGERY | surg_hist_type | Surgical Histology Type | Histology type | Adenocarcinoma, Adenocarcinoma & Other, Unknown, NA | Short Text | ||
1126 | SURGERY | primary_surg | Primary Surgery | First number in Gleason grade. | 4, NA, 3, 5, 0 | Long Integer | ||
1127 | SURGERY | secondary_surg | Secondary Surgery | Second number in Gleason grade. | 4, NA, 3, 5, 6, 0 | Long Integer | ||
1128 | SURGERY | gleason_score_added_surg | Gleason Score Added (Surgery) | Derived | 6, 7, 8, 9, 10, NA | Long Integer | ||
1129 | SURGERY | gleason_grade_surg | Gleason Grade (Surgery) | The sum of the first and second grades listed. | # | Long Integer | ||
1130 | SURGERY | new_gleason_surg | New Gleason Score (Surgery) | The new number for the Gleason grade | 1, 2, 3, 4, 5, NA | Long Integer | ||
1131 | SURGERY | lymph_vasc_invasion_surg | Lymphovascular Invasion (Surgery) | Lymphovascular invasion is the spread of a cancer to the blood vessels and/or lymphatics. | Yes No Unknown NA | Boolean Yes / No | ||
1132 | SURGERY | status | Status | Notes if the cancer has spread outside the prostate capsule | Yes No Unknown NA | Boolean Yes / No | ||
1133 | SURGERY | occurence | Occurrence | Seminal Vesical Invastion | Yes No Unknown NA | Boolean Yes / No | ||
1134 | SURGERY | num_exam_surg | Number Examined (Surgery) | Denotes the number of lymph nodes that were removed. | 0 - 61 NA | Long Integer | ||
1135 | SURGERY | num_pos_surg | Number Positive (Surgery) | Denotes the number of nodes that were positive for cancer. | 1, NA, 0, 2, 13, 43, 3, 4, 5, 6, 9, 11, 8, 26 | Long Integer | ||
1136 | SURGERY | path_T | Pathological Tumor Stage (T) | Clinical Tumour grade | T1a, T1b, T1c, T2a, T2b, T2c, T2, T3a, T3b, T3, T4, TX, NA | Short Text | ||
1137 | SURGERY | path_N | Pathological Node Stage (N) | Clinical Node grade | N0, N1, NX, NA | Short Text | ||
1138 | SURGERY | staging_edition_surg | Staging Edition (Surgery) | Auto-generated | 7th, 8th, NA | Short Text | ||
1139 | SURGERY | margin_type | Margin Type | Records if the surgical margin had tumour in at its edge | Clear, Involved, Equivocal, Unknown, NA | Short Text | ||
1140 | SURGERY | involvement | Involvement | Records how much of the margin was involved | =3mm, Unknown, NA | Short Text | ||
1142 | RADIATION | RT_type | Radiotherapy Type | Type of radiation | External Beam, Brachytherapy, Ext Beam & Brachy, Unknown, NA | Short Text | ||
1143 | RADIATION | site | Site | Body part receiving radiation | Prostate, Prostate and Seminal Vesicles, Prostate and Lymph Nodes, Prostate Bed, Bone, Other, Unknown, NA | Short Text | ||
1144 | RADIATION | ex_occurence | External Occurrence | whether or not the patient received this external beam radiation | Yes No Unknown NA | Boolean Yes / No | ||
1145 | RADIATION | ex_start | External Start | Start date for external beam | Long Integer | |||
1147 | RADIATION | ex_comp | External Complications | End date for external beam | Long Integer | |||
1149 | RADIATION | ex_time_taken | External Time Taken | End date for external beam - days from diagnosis | Long Integer | |||
1151 | RADIATION | ex_dose_gy | External Dose (Gray Units) | The dose of the EBRT in Grey (Gy) | 5 - 176.4 81/54 NA | Long Integer | ||
1152 | RADIATION | ex_delivery | External Delivery | Which mode of EBRT was used | Conformal, IMRT, IGRT, Conformal, NA | Short Text | ||
1153 | RADIATION | dose_rate | Dose Rate | Indicates the intensity of dosage used in treatments, | HDR, LDR, MDR, Unknown, NA | Short Text | ||
1154 | RADIATION | ex_fractions | External Fractions | The number of fractions the EBRT was divided up into | 1-98 NA | Long Integer | ||
1156 | RADIATION | br_occurence | Brachytherapy Occurrence | Whether the patient received brachytherapy | Yes No Unknown NA | Boolean Yes / No | ||
1157 | RADIATION | br_start | Brachytherapy Start | Start date for brachytherapy | Long Integer | |||
1159 | RADIATION | br_comp | Brachytherapy Complications | End date for brachytherapy | Long Integer | |||
1161 | RADIATION | br_time_taken | Brachytherapy Time Taken | End date for brachytherapy - days from diagnosis | Short Text | |||
1163 | RADIATION | br_dose_gy | Brachytherapy Dose (Gray Units) | The dose of the brachytherapy in Grey (Gy) | NA, 45, 106, 160, 15, 100, 0.406mCi, 145, 71 seeds, 73 seeds, 24.375mCi, 0.375, 27.75, 25.1, 70 seeds, 64, 32.805, 1, 26.25 mCi, 67 seeds, 88 seeds, 26.6mCi, 89 seeds, 110, 79, 65 seeds, 22.68, 82 seeds, 81, 27, 167.6 | Short Text | ||
1164 | RADIATION | br_fractions | Brachytherapy Fractions | The number of fractions the brachytherapy dose was divided up into | NA, 25, 1, 30.45, 77 seeds, 26.6 mCi, 22.99, 65 seeds, 90, 74, 24.2549999999999, 28.4mCi, 0.375mci, 81, 160, 25.13, 35.72mCi, 26.108 mCi, 71 seeds, 36.134, 0.475999999999999, 24.375mCi, 25.88, 0.444mCi, 24.38mCi, 60 seeds, 33.29 mCi, 82 seeds, 2 | Short Text | ||
1166 | RADIATION | is_occurance | Is Occurrence | Whether the patient received unsealed isotopes | Yes No Unknown NA | Boolean Yes / No | ||
1167 | RADIATION | complic_1 | Complication 1 | Whether there was any complication as a result of any of the radiation treatment 1 | NA, 12, 99, 6, 9, 2, 5, 11, 4, 8, 7, 3 | Long Integer | ||
1168 | RADIATION | complic_grade_1 | Complication Grade 1 | Grade of complication in terms of severity and intervention needed | 1-5, NA | Long Integer | ||
1169 | RADIATION | complic_2 | Complication 2 | Whether there was any complication as a result of any of the radiation treatment | NA, 9, 12, 4, 5, 1, 2 | Long Integer | ||
1170 | RADIATION | complic_grade_2 | Complication Grade 2 | Grade of complication in terms of severity and intervention needed | 1-5, NA | Long Integer | ||
1171 | RADIATION | rt_terminated | Radiotherapy Terminated | Was the radiotherapy stopped prematurely | TURE FALSE NA | Boolean TRUE / FALSE | ||
1176 | ADT | adt_agent_1 | Androgen Deprivation Therapy Agent 1 | Name of first ADT drug administered | NA, Bicalutamide, Triptorelin, Degarelix, Enzalutamide, Unknown, Leuprorelin, Abiraterone, Goserelin | Short Text | ||
1177 | ADT | adt_agent_2 | Androgen Deprivation Therapy Agent 2 | Name of second ADT drug administered | NA, Triptorelin, Bicalutamide, Leuprorelin, Unknown, Degarelix, Abiraterone, Goserelin, Enzalutamide | Short Text | ||
1178 | ADT | adt_agent_3 | Androgen Deprivation Therapy Agent 3 | Name of third ADT drug administered | NA, Leuprorelin, Triptorelin, Enzalutamide, Abiraterone, Bicalutamide, Degarelix | Short Text | ||
1179 | ADT | agent1_start | Agent 1 Start | Start date of first drug administered | Long Integer | |||
1180 | ADT | agent1_end | Agent 1 End | Stop date of first drug administered | Long Integer | |||
1181 | ADT | agent1_months | Agent 1 Duration (Months) | Number of months on first drug | Long Integer | |||
1182 | ADT | agent2_start | Agent 2 Start | Start date of second drug administered | Long Integer | |||
1183 | ADT | agent2_end | Agent 2 End | Stop date of second drug administered | Long Integer | |||
1184 | ADT | agent2_months | Agent 2 Duration (Months) | Number of months on second drug | Long Integer | |||
1185 | ADT | agent3_start | Agent 3 Start | Start date of third drug administered | Long Integer | |||
1186 | ADT | agent3_end | Agent 3 End | Stop date of third drug administered | Long Integer | |||
1187 | ADT | agent3_months | Agent 3 Duration (Months) | Number of months on Drug | Long Integer | |||
1188 | ADT | agent1_delivery | Agent 1 Delivery | Method of Delivery of the first ADT Drug | NA, Continuous, Intermittent, Unknown | Short Text | ||
1189 | ADT | agent2_delivery | Agent 2 Delivery | Method of Delivery of the second ADT Drug | NA, Continuous, Intermittent, Unknown | Short Text | ||
1190 | ADT | agent3_delivery | Agent 3 Delivery | Method of Delivery of the third ADT Drug | NA, Continuous, Intermittent, Unknown | Short Text | ||
1196 | CHEMOTHERAPY | chemo_Doacetaxel | Chemotherapy with Docetaxel | Was Doacetaxel used? | NA, Y | Boolean Yes / No | ||
1197 | CHEMOTHERAPY | chemo_other_agent | Chemotherapy with Other Agents | Were other agents used? | NA, Y | Boolean Yes / No | ||
1198 | CHEMOTHERAPY | other_chemo_trt | Other Chemotherapy Treatments | Name of other agent used | NA, Dexamethasone, Prednisolone | Short Text | ||
1199 | CHEMOTHERAPY | chemo_B_Zoledronic_acid | Chemotherapy with Zoledronic Acid (Brand B) | Was Zoledronic_acid used? | NA, Y | Boolean Yes / No | ||
1200 | CHEMOTHERAPY | chemo_B_Denosumab | Chemotherapy with Denosumab (Brand B) | Was Denosumab used? | NA, Y | Boolean Yes / No | ||
1201 | CHEMOTHERAPY | chemo_B_Calcichew | Chemotherapy with Calcichew (Brand B) | Was Calcichew used? | NA, Y | Boolean Yes / No | ||
1243 | PROMS_demography | nationality | Nationality | Numeric code or identifier representing the patient's nationality | NA, 1, 2 | Long Integer | ||
1244 | PROMS_demography | nationother | Other Nationality | Text entry for specifying nationalities not listed elsewhere | Eurpoean, UK, Other, NA | Short Text | ||
1245 | PROMS_demography | currlivingarrange | Current Living Arrangement | Numeric identifier or count of current living arrangements | NA, 2, 1, 3, 0, 6, 4, 5 | Long Integer | ||
1246 | PROMS_demography | livingother | Other Living Arrangements | Text entry for specifying living arrangements not listed elsewhere | Short Text | |||
1247 | PROMS_demography | counton | Count On | Numeric count of people or resources the patient can rely on | 1-4, NA | Long Integer | ||
1248 | PROMS_demography | friendlyinterest | Friendly Interest | Numeric score or count reflecting friendly interest or social interactions | 1-5, NA | Long Integer | ||
1249 | PROMS_demography | practicalhelpneigh | Practical Help from Neighbors | Numeric count of instances where practical help was received from neighbors | 1-5, NA | Long Integer | ||
1250 | PROMS_demography | currlivingplace | Current Living Place | Numeric identifier or count of the patient's current living place | NA, 3, 5, 4, 1, 2 | Long Integer | ||
1251 | PROMS_demography | educationcomp | Education Completion | Numeric count or identifier for the level of education completed | NA, 4, 3, 2, 1 | Long Integer | ||
1252 | PROMS_demography | medicalcard | Medical Card | Indicates whether the patient has a medical card | NA, 1, 2 | Long Integer | ||
1253 | PROMS_demography | privhealthins | Private Health Insurance | Indicates whether the patient has private health insurance | NA, 1, 2 | Long Integer | ||
1254 | PROMS_comorbidities | heart | Heart Condition | Indicates the presence of a heart condition | NA, 1, 2 | Long Integer | ||
1255 | PROMS_comorbidities | angina | Angina | Indicates the presence of angina | NA, 1, 2 | Long Integer | ||
1256 | PROMS_comorbidities | stroke | Stroke | Indicates the presence of stroke | NA, 1, 2 | Long Integer | ||
1257 | PROMS_comorbidities | lung | Lung Condition | Indicates the presence of a lung condition | NA, 1, 2, 0 | Long Integer | ||
1258 | PROMS_comorbidities | diabetes | Diabetes | Indicates the presence of diabetes | NA, 1, 2 | Long Integer | ||
1259 | PROMS_comorbidities | mental | Mental Health Condition | Indicates the presence of a mental health condition | NA, 1, 2 | Long Integer | ||
1260 | PROMS_comorbidities | cancer | Cancer | Indicates the presence of cancer | NA, 1, 2, 0 | Long Integer | ||
1261 | PROMS_comorbidities | canceroth | Other Cancer | Specifies the type of cancer if it is not covered by standard categories. | Long Text | |||
1262 | PROMS_comorbidities | medcond | Medical Condition | A numeric code identifying a medical condition according to a standard classification. | NA, 1, 2, 0 | Long Integer | ||
1263 | PROMS_comorbidities | medcondoth1 | Other Medical Condition 1 | Details any additional medical conditions not listed in primary categories. | Long Text | |||
1264 | PROMS_demography | age | Age | The age of the individual at the time of data collection. | 40 - 88 NA | Long Integer | ||
1265 | PROMS_comorbidities | medcondoth2 | Other Medical Condition 2 | Details further additional medical conditions not captured in other fields. | Long Text | |||
1266 | PROMS_comorbidities | medcondoth3 | Other Medical Condition 3 | Details further additional medical conditions not captured in other fields. | Long Text | |||
1267 | PROMS_comorbidities | medcondoth4 | Other Medical Condition 4 | Details further additional medical conditions not captured in other fields. | Long Text | |||
1268 | PROMS_comorbidities | medcondoth5 | Other Medical Condition 5 | Details further additional medical conditions not captured in other fields. | Long Text | |||
1269 | PROMS_comorbidities | medcondoth6 | Other Medical Condition 6 | Details further additional medical conditions not captured in other fields. | Long Text | |||
1270 | PROMS_EORTC_QLQ_C30 | eortc1 | EORTC Question 1 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1271 | PROMS_EORTC_QLQ_C30 | eortc2 | EORTC Question 2 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1272 | PROMS_EORTC_QLQ_C30 | eortc3 | EORTC Question 3 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1273 | PROMS_EORTC_QLQ_C30 | eortc4 | EORTC Question 4 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1274 | PROMS_EORTC_QLQ_C30 | eortc5 | EORTC Question 5 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1275 | PROMS_EORTC_QLQ_C30 | eortc6 | EORTC Question 6 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1276 | PROMS_EORTC_QLQ_C30 | eortc7 | EORTC Question 7 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1277 | PROMS_EORTC_QLQ_C30 | eortc8 | EORTC Question 8 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1278 | PROMS_EORTC_QLQ_C30 | eortc9 | EORTC Question 9 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1279 | PROMS_EORTC_QLQ_C30 | eortc10 | EORTC Question 10 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1280 | PROMS_EORTC_QLQ_C30 | eortc11 | EORTC Question 11 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4, 0 | Long Integer | ||
1281 | PROMS_EORTC_QLQ_C30 | eortc12 | EORTC Question 12 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1282 | PROMS_EORTC_QLQ_C30 | eortc13 | EORTC Question 13 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1283 | PROMS_EORTC_QLQ_C30 | eortc14 | EORTC Question 14 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1284 | PROMS_EORTC_QLQ_C30 | eortc15 | EORTC Question 15 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1285 | PROMS_EORTC_QLQ_C30 | eortc16 | EORTC Question 16 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1286 | PROMS_EORTC_QLQ_C30 | eortc17 | EORTC Question 17 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1287 | PROMS_EORTC_QLQ_C30 | eortc18 | EORTC Question 18 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1288 | PROMS_EORTC_QLQ_C30 | eortc19 | EORTC Question 19 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1289 | PROMS_EORTC_QLQ_C30 | eortc20 | EORTC Question 20 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1290 | PROMS_EORTC_QLQ_C30 | eortc21 | EORTC Question 21 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1291 | PROMS_EORTC_QLQ_C30 | eortc22 | EORTC Question 22 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1292 | PROMS_EORTC_QLQ_C30 | eortc23 | EORTC Question 23 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1293 | PROMS_EORTC_QLQ_C30 | eortc24 | EORTC Question 24 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1294 | PROMS_EORTC_QLQ_C30 | eortc25 | EORTC Question 25 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1295 | PROMS_EORTC_QLQ_C30 | eortc26 | EORTC Question 26 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1296 | PROMS_EORTC_QLQ_C30 | eortc27 | EORTC Question 27 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1297 | PROMS_EORTC_QLQ_C30 | eortc28 | EORTC Question 28 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 1, 2, 3, 4 | Long Integer | ||
1298 | PROMS_EORTC_QLQ_C30 | eortc29 | EORTC Question 29 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 7, 5, 3, 6, 4, 2, 1, 0 | Long Integer | ||
1299 | PROMS_EORTC_QLQ_C30 | eortc30 | EORTC Question 30 | Assesses specific aspect of patient's quality of life related to cancer treatment. | NA, 7, 5, 6, 3, 4, 2, 1 | Long Integer | ||
1300 | PROMS_EPIC_26 | epic1 | EPIC Question 1 | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4 | Long Integer | ||
1301 | PROMS_EPIC_26 | epic2 | EPIC Question 2 | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4 | Long Integer | ||
1302 | PROMS_EPIC_26 | epic3 | EPIC Question 3 | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4 | Long Integer | ||
1303 | PROMS_EPIC_26 | epic4a | EPIC Question 4a | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1304 | PROMS_EPIC_26 | epic4b | EPIC Question 4b | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1305 | PROMS_EPIC_26 | epic4c | EPIC Question 4c | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1306 | PROMS_EPIC_26 | epic4d | EPIC Question 4d | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1307 | PROMS_EPIC_26 | epic4e | EPIC Question 4e | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1308 | PROMS_EPIC_26 | epic5 | EPIC Question 5 | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1309 | PROMS_EPIC_26 | epic6a | EPIC Question 6a | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1310 | PROMS_EPIC_26 | epic6b | EPIC Question 6b | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1311 | PROMS_EPIC_26 | epic6c | EPIC Question 6c | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1312 | PROMS_EPIC_26 | epic6d | EPIC Question 6d | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 0, 5, 4 | Long Integer | ||
1313 | PROMS_EPIC_26 | epic6e | EPIC Question 6e | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1314 | PROMS_EPIC_26 | epic7 | EPIC Question 7 | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1315 | PROMS_EPIC_26 | epic8a | EPIC Question 8a | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1316 | PROMS_EPIC_26 | epic8b | EPIC Question 8b | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1317 | PROMS_EPIC_26 | epic9 | EPIC Question 9 | Assesses specific aspect of prostate health and related quality of life. | NA, 4, 1, 2, 3 | Long Integer | ||
1318 | PROMS_EPIC_26 | epic10 | EPIC Question 10 | Assesses specific aspect of prostate health and related quality of life. | NA, 5, 1, 4, 2, 3 | Long Integer | ||
1319 | PROMS_EPIC_26 | epic11 | EPIC Question 11 | Assesses specific aspect of prostate health and related quality of life. | NA, 5, 1, 3, 2, 4 | Long Integer | ||
1320 | PROMS_EPIC_26 | epic12 | EPIC Question 12 | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 5, 4, 2, 3 | Long Integer | ||
1321 | PROMS_EPIC_26 | epic13a | EPIC Question 13a | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1322 | PROMS_EPIC_26 | epic13b | EPIC Question 13b | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 4, 3, 2, 5 | Long Integer | ||
1323 | PROMS_EPIC_26 | epic13c | EPIC Question 13c | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1324 | PROMS_EPIC_26 | epic13d | EPIC Question 13d | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1325 | PROMS_EPIC_26 | epic13e | EPIC Question 13e | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1326 | PROMS_EPIC_26 | epic14 | EPIC Question 14 | Assesses specific aspect of prostate health and related quality of life. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1327 | PROMS_EPIC_26 | epic15 | EPIC Question 15 | Assesses specific aspect of prostate health and related quality of life. | NA, 2, 1 | Long Integer | ||
1328 | PROMS_EPIC_26 | viagra | Use of Viagra | Tracks usage of Viagra, detailing frequency and context of use. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1329 | PROMS_EPIC_26 | viagapplic | Application of Viagra | Indicates whether Viagra was applied in a clinical or experimental setting. | NA, 1, 0 | Long Integer | ||
1330 | PROMS_EPIC_26 | pillname | Name of the Pill | Lists the medication names commonly prescribed or used, often in the context of erectile dysfunction. | NA, Cialis (generic), Cialis 5mg, Forgotten, Cialis-Prescribed by cardiologist, Vizarsin, Cialis 5mg and Spedra 100mg, Tadalafil Krka, Tadalafil, Callis, Sildenafil, Vizarsin 100mg, Cialis, Sildenafil Clomel 100mg, Selfill, Tadalafil 20mg, 20mg Cialis, Sildenafil 25mg, Cialis/Tadalafil 20mg, Ciallis, Cialis 20mg, Tadalafil krka, Tadalafil 20 mg, Sildenafil myla, Tadalalfil Krka 20mg, Sildenafil accord 100mg, Sildenafil Clomal 100mg, Cialis Tadalafin, Tadalafil - gave headaches, Tadafil, Celius, Sidena, Cialis (Tadalafil) 20mg, Sidena/sildenafil, Sidena 50mg. Not as good as Viagra., Tadalafil KRKA 10mg x2 per week, Cialis+ Viagra, Sildenafil Citrate 50mg, Sildenafil (Sidena), Cialis and Sildenafil, Tadalfil Clonmel 10mg, Cialis 90mg, Sildenafil accora 100mg, Sildenifil, Sildenafil Accord 100mg, Tadalafil Krka 20MG, Sinfill, Tadalafil KRKA 20mg, Tadalafil KRKA, Taladafil/Cialis | Short Text | ||
1331 | PROMS_EPIC_26 | muse | Use of Muse | Tracks the usage of Muse, a penile suppository for erectile dysfunction, coded by frequency of use. | NA, 1, 2, 3, 0 | Long Integer | ||
1332 | PROMS_EPIC_26 | penileinjother | Use of Other Penile Injection | Indicates the use of other penile injection therapies not specifically listed, coded by frequency. | NA, 1, 3, 4, 2, 5, 0 | Long Integer | ||
1333 | PROMS_EPIC_26 | vacdevice | Use of Vacuum Device | Records usage of a vacuum erection device to treat erectile dysfunction, coded by frequency. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1334 | PROMS_EPIC_26 | othermedapplic | Other Medical Application | Identifies usage of other unspecified medical applications, typically coded for presence or frequency. | NA, 1, 0 | Long Integer | ||
1335 | PROMS_EPIC_26 | othermeddev | Other Medical Device | Captures use of other medical devices not specified elsewhere in the survey. | NA, 4, 0, 3, 1, 2 | Long Integer | ||
1336 | PROMS_EPIC_26 | meddeviceoth | Other Medical Device (specified) | Specifies other medical devices used, such as tension rings or Vitaros gel, coded by name. | NA, Viberect, Forgotten, Tension ring, Vitaros, Vitaros Gel, Vituros, Tadadafil, Penile surgery | Short Text | ||
1337 | PROMS_EQ5D | eq5d5lmobility | EQ-5D-5L Mobility | Assesses the respondent's mobility level as part of the EQ-5D-5L health questionnaire. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1338 | PROMS_EQ5D | eq5d5lselfcare | EQ-5D-5L Self-Care | Assesses the respondent's ability to care for themselves, as part of the EQ-5D-5L questionnaire. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1339 | PROMS_EQ5D | eq5d5lusualactivities | EQ-5D-5L Usual Activities | Evaluates the respondent's ability to perform usual activities, from the EQ-5D-5L questionnaire. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1340 | PROMS_EQ5D | eq5d5lpaindiscomfort | EQ-5D-5L Pain/Discomfort | Measures levels of pain and discomfort as reported by the respondent in the EQ-5D-5L. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1341 | PROMS_EQ5D | eq5d5lanxietydepress | EQ-5D-5L Anxiety/Depression | Assesses the levels of anxiety and depression experienced by the respondent, from the EQ-5D-5L. | NA, 1, 2, 3, 4, 5 | Long Integer | ||
1342 | PROMS_EQ5D | eq5d5lhealthtoday | EQ-5D-5L Health Today | Provides an overall measure of the respondent's health status on the day of the survey, using EQ-5D-5L. | 7 - 100 NA | Long Integer | ||
1344 | PROMS_SCN_34SF | supportneeds1 | Support Needs 1 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1345 | PROMS_SCN_34SF | supportneeds2 | Support Needs 2 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1346 | PROMS_SCN_34SF | supportneeds3 | Support Needs 3 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1347 | PROMS_SCN_34SF | supportneeds4 | Support Needs 4 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1348 | PROMS_SCN_34SF | supportneeds5 | Support Needs 5 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1349 | PROMS_SCN_34SF | supportneeds6 | Support Needs 6 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1350 | PROMS_SCN_34SF | supportneeds7 | Support Needs 7 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1351 | PROMS_SCN_34SF | supportneeds8 | Support Needs 8 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1352 | PROMS_SCN_34SF | supportneeds9 | Support Needs 9 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1353 | PROMS_SCN_34SF | supportneeds10 | Support Needs 10 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1354 | PROMS_SCN_34SF | supportneeds11 | Support Needs 11 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1355 | PROMS_SCN_34SF | supportneeds12 | Support Needs 12 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1356 | PROMS_SCN_34SF | supportneeds13 | Support Needs 13 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1357 | PROMS_SCN_34SF | supportneeds14 | Support Needs 14 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2, .M | Long Integer | ||
1358 | PROMS_SCN_34SF | supportneeds15 | Support Needs 15 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1359 | PROMS_SCN_34SF | supportneeds16 | Support Needs 16 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1360 | PROMS_SCN_34SF | supportneeds17 | Support Needs 17 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1361 | PROMS_SCN_34SF | supportneeds18 | Support Needs 18 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1362 | PROMS_SCN_34SF | supportneeds19 | Support Needs 19 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 3, 2 | Long Integer | ||
1363 | PROMS_SCN_34SF | supportneeds20 | Support Needs 20 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 0, 2, 3 | Long Integer | ||
1364 | PROMS_SCN_34SF | supportneeds21 | Support Needs 21 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1365 | PROMS_SCN_34SF | supportneeds22 | Support Needs 22 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1366 | PROMS_SCN_34SF | supportneeds23 | Support Needs 23 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1367 | PROMS_SCN_34SF | supportneeds24 | Support Needs 24 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1368 | PROMS_SCN_34SF | supportneeds25 | Support Needs 25 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1369 | PROMS_SCN_34SF | supportneeds26 | Support Needs 26 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1370 | PROMS_SCN_34SF | supportneeds27 | Support Needs 27 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1371 | PROMS_SCN_34SF | supportneeds28 | Support Needs 28 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1372 | PROMS_SCN_34SF | supportneeds29 | Support Needs 29 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1373 | PROMS_SCN_34SF | supportneeds30 | Support Needs 30 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1374 | PROMS_SCN_34SF | supportneeds31 | Support Needs 31 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1375 | PROMS_SCN_34SF | supportneeds32 | Support Needs 32 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1376 | PROMS_SCN_34SF | supportneeds33 | Support Needs 33 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 3, 2, 0 | Long Integer | ||
1377 | PROMS_SCN_34SF | supportneeds34 | Support Needs 34 | Categorizes the type of support need number 1, usually part of a larger set of support needs questions. | NA, 1, 2, 3 | Long Integer | ||
1382 | PROMS_demography | irish | Irish | Indicates if the respondent identifies as Irish. | Yes, No, NA | Boolean Yes / No | ||
1383 | PROMS_demography | count_on | Count On | Quantifies how much a person can count on others for support. | None, 1 or 2, 3 to 5, More than 5, NA | Long Integer | ||
1384 | PROMS_demography | living_area | Living Area | Describes the respondent's living area or location. | NA, In a town (1,500+ people), In open country, In a village, In Dublin city or county, In a city (other than Dublin) | Short Text | ||
1385 | PROMS_demography | edu | Education | Specifies the highest level of education attained by the respondent. | NA, Third level, Secondary school, Primary school, No formal education | Short Text | ||
1386 | PROMS_demography | med_card | Medical Card | Indicates whether the respondent has a medical card, providing access to health services. | Yes, No, NA | Boolean Yes / No | ||
1387 | PROMS_demography | priv_ins | Private Insurance | Indicates if the respondent is covered by private health insurance. | Yes, No, NA | Boolean Yes / No | ||
1388 | PROMS_comorbidities | heart_cond | Heart Condition | Indicates whether the respondent has any heart conditions. | NA, No, Yes | Boolean Yes / No | ||
1389 | PROMS_EPIC_26 | epic_all_urin | EPIC - All Urinary | Summary measure of urinary functions and issues, as part of the EPIC survey. | NA, No problem, Small problem, Very small problem, Big problem, Moderate problem | Short Text | ||
1390 | PROMS_EPIC_26 | epic_all_bowel | EPIC - All Bowel | Summary measure of bowel functions and issues, as part of the EPIC survey. | NA, No problem, Very small problem, Small problem, Moderate problem, Big problem | Short Text | ||
1391 | PROMS_EPIC_26 | epic_sex_func | EPIC - Sexual Function | Evaluates sexual function, as part of the EPIC survey. | NA, Big problem, No problem, Small problem, Very small problem, Moderate problem | Short Text | ||
1392 | PROMS_EPIC_26 | epic_sex_prob | EPIC - Sexual Problems | Evaluates problems related to sexual function, as part of the EPIC survey. | NA, No problem, Big problem, Moderate problem, Very small problem, Small problem | Short Text | ||
1393 | PROMS_EQ5D | eq_Mob | EQ-5D-5L Mobility | Assesses mobility levels from the EQ-5D-5L standard survey for health-related quality of life. | NA, None, Slight, Moderate, Severe/Unable | Short Text | ||
1394 | PROMS_EQ5D | eq_self_care | EQ-5D-5L Self-Care | Assesses self-care capabilities from the EQ-5D-5L standard survey. | NA, None, Slight, Moderate | Short Text | ||
1395 | PROMS_EQ5D | eq_usual_act | EQ-5D-5L Usual Activities | Evaluates usual activity levels from the EQ-5D-5L survey. | NA, None, Slight, Moderate, Unable, Severe | Short Text | ||
1396 | PROMS_EQ5D | eq_pain_discom | EQ-5D-5L Pain/Discomfort | Measures pain and discomfort levels from the EQ-5D-5L survey. | NA, None, Slight, Moderate, Unable/Severe | Short Text | ||
1397 | PROMS_EQ5D | eq_anx_depress | EQ-5D-5L Anxiety/Depression | Assesses anxiety and depression levels from the EQ-5D-5L survey. | NA, None, Slight, Unable/Severe, Moderate | Short Text | ||
1398 | PROMS_EQ5D | eq_today | EQ-5D-5L Health Today | Provides a snapshot of overall health as reported today, from the EQ-5D-5L survey. | 7 - 100 NA | Long Integer | ||
1399 | PROMS_administrative | proms_type | PROMs Type | Classifies the type of Patient Reported Outcome Measures (PROMs) being used. | No Valid PROMs, 2019, 2016/7 | Short Text | ||
1400 | PROMS_SCN_34SF | sn_choice_consult | Support Needs - Choice of Consultant | Indicates the respondent's need for choice in selecting their medical consultant. | NA, I did not need help, I still have this need, I received help and now have no need | Short Text | ||
1401 | PROMS_SCN_34SF | sn_reass_med_staff | Support Needs - Reassurance by Medical Staff | Measures the respondent's need for reassurance from medical staff. | NA, I did not need help, I received help and now have no need, I still have this need | Short Text | ||
1402 | PROMS_SCN_34SF | sn_canc_inf | Support Needs - Cancer Information | Indicates the respondent's need for cancer-related information. | NA, I did not need help, I still have this need, I received help and now have no need | Short Text | ||
1403 | PROMS_SCN_34SF | sn_person | Support Needs - Person | Identifies the need for personal support in dealing with medical conditions. | NA, I did not need help, I received help and now have no need, I still have this need | Short Text | ||
1404 | NCRI_reported | ncri_distance | NCRI Distance | Calculated distance from address to hospital (Km) | 0.430104127 - 341.1823641 | Long Integer | ||
1405 | NCRI_reported | ncri_Dep16 | NCRI Deprivation 16 | Deprivation index SES calculated by address | 1 - Least Deprived, 2, 3, 4, Mult_Different, 5 - Most Deprived, Missing | Short Text | ||
1406 | NCRI_reported | ncri_UrbanRural | NCRI Urban/Rural | Calculated by address | Rural, Urban, Mult_Different, Missing | Short Text | ||
1407 | NCRI_reported | ncri_DOD_month | NCRI Date of Death - Month | Date of death Month | 1-12, NA | Long Integer | ||
1408 | NCRI_reported | ncri_DOD_year | NCRI Date of Death - Year | Date of death Year | NA, 2020, 2018, 2017, 2019, 2016 | Long Integer | ||
1409 | NCRI_reported | ncri_CAUSE_DEATH | NCRI Cause of Death | Cause of death | Prostate, COD_Missing, Other, NA | Short Text | ||
1410 | NCRI_reported | ncri_vital_status | NCRI Vital Status | Vital status | Alive, Dead | Short Text | ||
1411 | NCRI_reported | ncri_DOD | NCRI Date of Death | Date of death | 01/05/2016 - 01/04/2020 NA | Date (Short Date Format) | ||
1422 | NCRI_reported | ncri_MDTDATE | NCRI Multidisciplinary Team (MDT) Date | Records the date of the meeting of the multidisciplinary team regarding the patient, by NCRI. | Long Integer | |||
1423 | NCRI_reported | ncri_ENTRY_DATE | NCRI Entry Date | Indicates the date when the patient's information was entered into the NCRI database. | Long Integer | |||
1424 | NCRI_reported | ncri_COMPLETION_DATE | NCRI Completion Date | Indicates the date when the patient's treatment was completed as recorded in the NCRI database. | Long Integer | |||
1427 | NCRI_reported | ncri_PSADATE | NCRI PSA Date | Records the date when the PSA test was performed as noted in the NCRI database. | Long Integer | |||
1428 | NCRI_reported | ncri_BIOSPYDATE | NCRI Biopsy Date | Records the date of the biopsy as documented in the NCRI database. | Long Integer | |||
1429 | NCRI_reported | ncri_INITIALREFERRAL | NCRI Initial Referral | Records the date of the initial referral for the patient as noted in the NCRI database. | Long Integer | |||
1430 | NCRI_reported | ncri_FIRSTCLINICVISIT | NCRI First Clinic Visit | Records the date of the patient's first clinic visit as documented in the NCRI database. | Long Integer | |||
1431 | NCRI_reported | ncri_STAGINGMRI | NCRI Staging MRI | MRI used for staging the extent of cancer at diagnosis, crucial for treatment planning. | Long Integer | |||
1433 | NCRI_reported | ncri_REPORTED_DATE | NCRI Reported Date | Date on which the cancer diagnosis was officially reported to the National Cancer Registry. | Long Integer | |||
1434 | NCRI_reported | ncri_BIOSPYDATE2 | NCRI Biopsy Date 2 | Date on which a secondary biopsy was performed, if applicable, to further analyze the cancer or reassess its stage. | Long Integer | |||
1436 | NCRI_reported | ncri_DATE_OF_SURGERY | NCRI Date of Surgery | The date the surgery was done - days from diagnosis | Long Integer | |||
1437 | NCRI_reported | ncri_PSA_DATE | NCRI PSA Date | Date the Prostate-Specific Antigen (PSA) test was performed, important for prostate cancer monitoring. | Long Integer | |||
1438 | NCRI_reported | ncri_EX_START_DATE.y | NCRI External Beam Radiotherapy Start Date (Repeat) | Start date for external beam - days from diagnosis | Long Integer | |||
1439 | NCRI_reported | ncri_EX_COMPLETION_DATE | NCRI External Beam Radiotherapy Completion Date | End date for external beam - days from diagnosis | Long Integer | |||
1440 | NCRI_reported | ncri_BR_START_DATE.y | NCRI Brachytherapy Start Date (Repeat) | Start date for brachytherapy - days from diagnosis | Long Integer | |||
1441 | NCRI_reported | ncri_BR_COMPLETION_DATE | NCRI Brachytherapy Completion Date | End date for brachytherapy - days from diagnosis | Long Integer | |||
1442 | NCRI_reported | ncri_IS_START_DATE.y | NCRI Isotope Therapy Start Date (Repeat) | Start date for a repeated cycle of isotope therapy, a treatment involving radioactive isotopes. | TRUE FALSE NA | Boolean TRUE / FALSE | ||
1443 | NCRI_reported | ncri_IS_COMPLETION_DATE | NCRI Isotope Therapy Completion Date | Completion date for isotope therapy, marking the end of this treatment phase. | TRUE FALSE NA | Boolean TRUE / FALSE | ||
1444 | NCRI_reported | ncri_AGENT1_START_DATE | NCRI Agent 1 Start Date | Start date of first drug administered - days from diagnosis | Long Integer | |||
1445 | NCRI_reported | ncri_AGENT1_STOP_AGENT | NCRI Agent 1 Stop Agent | Stop date of first drug administered - days from diagnosis | Long Integer | |||
1446 | NCRI_reported | ncri_AGENT2_START_DATE | NCRI Agent 2 Start Date | Start date of second drug administered - days from diagnosis | Long Integer | |||
1447 | NCRI_reported | ncri_AGENT2_STOP_AGENT | NCRI Agent 2 Stop Agent | Stop date of second drug administered - days from diagnosis | Long Integer | |||
1448 | NCRI_reported | ncri_AGENT3_START_DATE | NCRI Agent 3 Start Date | Start date of third drug administered - days from diagnosis | Long Integer | |||
1449 | NCRI_reported | ncri_AGENT3_STOP_AGENT | NCRI Agent 3 Stop Agent | Stop date of third drug administered - days from diagnosis | Long Integer | |||
1450 | NCRI_reported | ncri_SURGICAL_ADT_DATE | NCRI Surgical ADT Date | Castration date | Long Integer | |||
1451 | NCRI_reported | ncri_A1_START_DATE | NCRI Agent 1 Start Date (Repeat) | Start date for 1st chemo agents - days from diagnosis | Long Integer | |||
1452 | NCRI_reported | ncri_A1_END_DATE | NCRI Agent 1 End Date | End date for 1st chemo agents - days from diagnosis | Long Integer | |||
1453 | NCRI_reported | ncri_A2_START_DATE | NCRI Agent 2 Start Date (Repeat) | Start date for 2nd chemo agents - days from diagnosis | Long Integer | |||
1454 | NCRI_reported | ncri_A2_END_DATE | NCRI Agent 2 End Date | End date for 2nd chemo agents - days from diagnosis | Long Integer | |||
1455 | NCRI_reported | ncri_A3_START_DATE | NCRI Agent 3 Start Date (Repeat) | Start date for 3rd chemo agents - days from diagnosis | TRUE FALSE NA | Boolean TRUE / FALSE | ||
1456 | NCRI_reported | ncri_A3_END_DATE | NCRI Agent 3 End Date | End date for 3rd chemo agents - days from diagnosis | Long Integer | |||
1457 | NCRI_reported | ncri_A4_START_DATE | NCRI Agent 4 Start Date | Start date for 4th chemo agents - days from diagnosis | Long Integer | |||
1458 | NCRI_reported | ncri_A4_END_DATE | NCRI Agent 4 End Date | End date for 4th chemo agents - days from diagnosis | Long Integer | |||
1459 | NCRI_reported | ncri_A5_START_DATE | NCRI Agent 5 Start Date | Start date for 5th chemo agents - days from diagnosis | Long Integer | |||
1460 | NCRI_reported | ncri_A5_END_DATE | NCRI Agent 5 End Date | End date for 5th chemo agents - days from diagnosis | Long Integer | |||
1461 | NCRI_reported | ncri_OTHER_START_DATE | NCRI Other Agent Start Date | Start date for other chemo agents - days from diagnosis | Long Integer | |||
1462 | NCRI_reported | ncri_OTHER_END_DATE | NCRI Other Agent End Date | End date for other chemo agents - days from diagnosis | Long Integer | |||
1463 | NCRI_reported | ncri_B_AGENT1_START_DATE | NCRI Agent B1 Start Date | Start date for 1st bone agents - days from diagnosis | Long Integer | |||
1464 | NCRI_reported | ncri_B_AGENT1_STOP_DATE | NCRI Agent B1 Stop Date | End date for 1st bone agents - days from diagnosis | Long Integer | |||
1465 | NCRI_reported | ncri_B_AGENT2_START_DATE | NCRI Agent B2 Start Date | Start date for 2nd bone agents - days from diagnosis | Long Integer | |||
1466 | NCRI_reported | ncri_B_AGENT2_STOP_DATE | NCRI Agent B2 Stop Date | End date for 2nd bone agents - days from diagnosis | TRUE FALSE NA | Boolean TRUE / FALSE | ||
1467 | NCRI_reported | ncri_B_AGENT3_START_DATE | NCRI Agent B3 Start Date | Start date for 3rd bone agents - days from diagnosis | Long Integer | |||
1468 | NCRI_reported | ncri_B_AGENT3_STOP_DATE | NCRI Agent B3 Stop Date | End date for 3rd bone agents - days from diagnosis | Long Integer | |||
1469 | NCRI_reported | ncri_B_AGENTOther_START | NCRI Other Agent Start Date | Start date for other bone agents - days from diagnosis | Long Integer | |||
1470 | NCRI_reported | ncri_B_AGENTOther_STOP | NCRI Other Agent Stop Date | End date for other bone agents - days from diagnosis | Long Integer | |||
1472 | NCRI_reported | ncri_F1_LP_DATEofINITIALEVENT | NCRI First LP Date of Initial Event | Local progression date | Long Integer | |||
1473 | NCRI_reported | ncri_LP_BIOPSYDATE | NCRI LP Biopsy Date | Local progression biopsy date | Long Integer | |||
1474 | NCRI_reported | ncri_F1_BI_DATEofINITIALEVENT | NCRI First BI Date of Initial Event | Biochemical relapse date | Long Integer | |||
1475 | NCRI_reported | ncri_F1_SP_DATEofINITIALEVENT | NCRI First SP Date of Initial Event | Systemic progression date | Long Integer | |||
1476 | NCRI_reported | ncri_F1_CA_DATEofINITIALEVENT | NCRI First CA Date of Initial Event | Castration resistance date | Long Integer | |||
1477 | NCRI_reported | ncri_F1_LASTCONTACTDATE | NCRI First Last Contact Date | last contact date | Long Integer | |||
1478 | NCRI_reported | ncri_F1_EndDate | NCRI First End Date | end of followup date | Long Integer | |||
1479 | NCRI_reported | ncri_Age_death | NCRI Age at Death | Records the age of the patient at the time of death, if applicable, as noted in the cancer registry. | 46 - 95 NA | Long Integer |