IPCOR 2 Data Dictionary
| Data Dictionary Identification | Form | Variable ID | Column Name | Description/Label | Allowed Values/Value Range | Data Type | Source | Notes/Comments | |
|---|---|---|---|---|---|---|---|---|---|
| 2001 | ADT | ADTYN | Androgen Deprivation Therapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2002 | ADT | ADTPrimSal | Primary or Salvage | 1 = Primary 2 = Salvage | Drop-down list | ||||
| 2003 | ADT | ADTType | ADT Type | 1 = Chemical 2 = Surgical | Drop-down list | ||||
| 2004 | ADT | ADTCheAgent | ADT Agent | 1 = Abiraterone (Zytiga) 2 = Bicalutamide (Cosudex) 3 = Buserelin Acetate (Superfact) 4 = Cyproterone Acetate (Androcur) 5 = Degarelix (Firmagon) 6 = Enzalutamide (Xtandi) 7 = Estramustine (Emcyt) 8 = Flutamide 9 = Histrelin (Vantas, Supprelin LA) 10 = Goserelin (Zoladex) 11 = Ketoconazole 12 = Leuprolide (Lupron Depot, Lupron Depot-Ped, Viadur, Eligard, Lucrin) 13 = Nilutamide (Nilandron, Anandron) 14 = Triptorelin Embonate (Diphereline) 15 = Triptorelin Pamoate (Trelstar) 16 = Other 17 = Apalutamide (Erleada, ARN-509) 18 = Triptorelin Acetate 19 = Relugolix (RVT-601, Relumina) 20 = Darolutamide (ODM-201, Nubeqa) -1 = Unknown | Drop-down list | ||||
| 2005 | ADT | ADTCheAgentOth | If other, specify | NA | Text | ||||
| 2006 | ADT | ADTStartDT | Start Date of ADT | NA | Date | ||||
| 2007 | ADT | ADTStopDt | Stop Date of ADT | NA | Date | ||||
| 2008 | ADT | ADTStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list | ||||
| 2009 | ADT | ADTStopReasonNotes | Reason for stopping treatment notes | NA | Text | ||||
| 2010 | ADT | ADTPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2011 | ADT | ADTPSA | PSA level | NA | Drop-down list | ||||
| 2012 | ADT | ADTCln | Clinician | NA | Search list | ||||
| 2013 | ADT | ADTInst | Treatment Institute | NA | Drop-down list | ||||
| 2014 | ADT | ADTClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2015 | ADT | ADTTrialNumber | Trial Number | NA | Text | ||||
| 2016 | ADT | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values | ||||
| 2017 | ADT | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2018 | ADT | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2019 | ADT | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2020 | ADT | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2021 | ADT | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2022 | ADT | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2023 | ADT | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2024 | ADT | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2025 | ADT | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2026 | ADT | OtherChk | Other domain, specify | NA | Boolean | ||||
| 2027 | ADT | Other | Other domain, specify (Text) | NA | Text | ||||
| 2028 | ADT | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2029 | ADT | ComplicationsTable | Please specify complications domains and grade | NA | Table of items | ||||
| 2030 | Additional ADT | ADTType | ADT Type | 1 = Chemical 2 = Surgical | Drop-down list | ||||
| 2031 | Additional ADT | ADTCheAgent | ADT Agent | 1 = Abiraterone (Zytiga) 2 = Bicalutamide (Cosudex) 3 = Buserelin Acetate (Superfact) 4 = Cyproterone Acetate (Androcur) 5 = Degarelix (Firmagon) 6 = Enzalutamide (Xtandi) 7 = Estramustine (Emcyt) 8 = Flutamide 9 = Histrelin (Vantas, Supprelin LA) 10 = Goserelin (Zoladex) 11 = Ketoconazole 12 = Leuprolide (Lupron Depot, Lupron Depot-Ped, Viadur, Eligard, Lucrin) 13 = Nilutamide (Nilandron, Anandron) 14 = Triptorelin Embonate (Diphereline) 15 = Triptorelin Pamoate (Trelstar) 16 = Other 17 = Apalutamide (Erleada, ARN-509) 18 = Triptorelin Acetate 19 = Relugolix (RVT-601, Relumina) 20 = Darolutamide (ODM-201, Nubeqa) -1 = Unknown | Drop-down list | ||||
| 2032 | Additional ADT | ADTCheAgentOth | If other, specify | NA | Text | ||||
| 2033 | Additional ADT | ADTStartDT | Start Date of ADT | NA | Date | ||||
| 2034 | Additional ADT | ADTStartDtAcc | Accuracy of start date | 1 = AAA 2 = AAE 3 = AAU 4 = AEE 5 = AEU 6 = AUU 7 = AUA 8 = AUE 9 = AEA 10 = EAA 11 = EAE 12 = EAU 13 = EEA 14 = EEE 15 = EEU 16 = EUA 17 = EUE 18 = EUU 19 = UAA 20 = UAE 21 = UAU 22 = UEA 23 = UEE 24 = UEU 25 = UUA 26 = UUE 27 = UUU | Drop-down list | ||||
| 2035 | Additional ADT | ADTCheOngoing | Treatment ongoing | 0 = Completed 1 = Treatment ongoing 2 = Unknown -2 = Not stated | Drop-down list | ||||
| 2036 | Additional ADT | ADTStopDt | Stop Date of ADT | NA | Date | ||||
| 2037 | Additional ADT | ADTStopAcc | Accuracy of stop date | 1 = AAA 2 = AAE 3 = AAU 4 = AEE 5 = AEU 6 = AUU 7 = AUA 8 = AUE 9 = AEA 10 = EAA 11 = EAE 12 = EAU 13 = EEA 14 = EEE 15 = EEU 16 = EUA 17 = EUE 18 = EUU 19 = UAA 20 = UAE 21 = UAU 22 = UEA 23 = UEE 24 = UEU 25 = UUA 26 = UUE 27 = UUU | Drop-down list | ||||
| 2038 | Additional ADT | ADTPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2039 | Additional ADT | ADTPSA | PSA level | NA | Drop-down list | ||||
| 2040 | Additional ADT | ADTCln | Clinician | NA | Search list | ||||
| 2041 | Additional ADT | ADTInst | Treatment Institute | NA | Drop-down list | ||||
| 2042 | Biopsy | consent_reminder | Reminder for returning urine sample | 1 = Yes 0 = No | List of values | ||||
| 2043 | Biopsy | reminder_date | Date for sending reminder for urine sample | NA | Date | ||||
| 2044 | Biopsy | collected_urine | Urine sample collected | 0 = No consent 2 = Pending 1 = Yes 3 = Destroyed | Drop-down list | ||||
| 2045 | Biopsy | collected_blood | Blood sample collected | 0 = No consent 2 = Pending 1 = Yes 3 = Destroyed | Drop-down list | ||||
| 2046 | Biopsy | sample_id_urine | Urine sample ID | NA | Text | ||||
| 2047 | Biopsy | sample_id_blood | Blood sample ID | NA | Text | ||||
| 2048 | Biopsy | sample_id_tissue | Tissue sample ID | NA | Text | ||||
| 2049 | Biopsy | AsDt | Date of biopsy | NA | Date | ||||
| 2050 | Biopsy | DateOfReferral | Date of Referral | NA | Date | ||||
| 2051 | Biopsy | biopsyInst | Biopsy institute | NA | Drop-down list | ||||
| 2052 | Biopsy | PSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2053 | Biopsy | PSALevel | PSA Level | NA | Drop-down list | ||||
| 2054 | Biopsy | Laterality | Laterality | 1 = Left 2 = Right 3 = Both -1 = Not stated | Drop-down list | ||||
| 2055 | Biopsy | TumourPresYN | Presence of tumour | 0 = No 1 = Yes | Drop-down list | ||||
| 2056 | Biopsy | ClinInType1 | Bone scan | NA | Boolean | ||||
| 2057 | Biopsy | ClinInType2 | MRI | NA | Boolean | ||||
| 2058 | Biopsy | ClinInType3 | CT | NA | Boolean | ||||
| 2059 | Biopsy | ClinInType4 | Other | NA | Boolean | ||||
| 2060 | Biopsy | ClinInOth | If Other, specify | NA | Text | ||||
| 2061 | Biopsy | ClinInType5 | PET | NA | Boolean | ||||
| 2062 | Biopsy | ClinInType6 | US | NA | Boolean | ||||
| 2063 | Biopsy | ClinInType7 | Not Known | NA | Boolean | ||||
| 2064 | Biopsy | MetHisType | Metastatic Histology Procedure | 1 = Lymph node biopsy 2 = Bone Biopsy 3 = Lung Biopsy 4 = Brain biopsy 5 = Liver biopsy 6 = Other | Drop-down list | ||||
| 2065 | Biopsy | MetHisOth | If Other, specify | NA | Text | ||||
| 2066 | Biopsy | DiagScrYN | Initial testing: Screen/Symptomatic | 1 = Asymptomatic (detected through routine screening) 2 = Symptomatic (presented with symptoms) 3 = Unknown 4 = Co-incidental finding | Drop-down list | ||||
| 2067 | Biopsy | DiagMorph1 | Histology Type 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2068 | Biopsy | DiagMorphOther1 | Histology Type 1 (Other) | NA | Text | ||||
| 2069 | Biopsy | DiagMorph2 | Histology Type 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2070 | Biopsy | DiagMorphOther2 | Histology Type 2 (Other) | NA | Text | ||||
| 2071 | Biopsy | DiagMorph3 | Histology Type 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2072 | Biopsy | DiagMorphOther3 | Histology Type 3 (Other) | NA | Text | ||||
| 2073 | Biopsy | DiagGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2074 | Biopsy | DiagGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2075 | Biopsy | DiagGleSum | = | NA | Integer | ||||
| 2076 | Biopsy | MRIStatus | MRI status | 0 = No 1 = Yes 9 = Not known | Drop-down list | ||||
| 2077 | Biopsy | MRIDetails | MRI Details | NA | Drop-down list | ||||
| 2078 | Biopsy | PSAVolume | Prostate volume | NA | Real | ||||
| 2079 | Biopsy | PSADensity | PSA density | NA | Real | ||||
| 2080 | Biopsy | CurCa1 | No current cancer | NA | Boolean | ||||
| 2081 | Biopsy | CurCa2 | Bladder | NA | Boolean | ||||
| 2082 | Biopsy | CurCa3 | Brain | NA | Boolean | ||||
| 2083 | Biopsy | CurCa4 | Bone (sarcoma) | NA | Boolean | ||||
| 2084 | Biopsy | CurCa5 | Bowel (colorectal) | NA | Boolean | ||||
| 2085 | Biopsy | CurCa6 | Endocrine (thyroid) | NA | Boolean | ||||
| 2086 | Biopsy | CurCa7 | Kidney | NA | Boolean | ||||
| 2087 | Biopsy | CurCa8 | Liver | NA | Boolean | ||||
| 2088 | Biopsy | CurCa9 | Lung inc asbestos | NA | Boolean | ||||
| 2089 | Biopsy | CurCa10 | Melanoma (skin) | NA | Boolean | ||||
| 2090 | Biopsy | CurCa11 | Testes | NA | Boolean | ||||
| 2091 | Biopsy | CurCa12 | Current cancer - site not specified | NA | Boolean | ||||
| 2092 | Biopsy | CurCa13 | Other current cancer (describe) | NA | Boolean | ||||
| 2093 | Biopsy | v5 | NA | NA | Group of Booleans | ||||
| 2094 | Biopsy | CurCaOTH | If other, specify | NA | Text | ||||
| 2095 | Brachytherapy | BraYN | Brachytherapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2096 | Brachytherapy | BraPrimSal | Primary or Salvage | 1 = Primary 2 = Salvage | Drop-down list | ||||
| 2097 | Brachytherapy | LdrYN | LDR Brachytherapy | 0 = No 1 = Yes | Drop-down list | ||||
| 2098 | Brachytherapy | HdrYN | HDR Brachytherapy | 0 = No 1 = Yes | Drop-down list | ||||
| 2099 | Brachytherapy | BraUnk | Unknown Type Brachytherapy | 0 = No 1 = Yes | Drop-down list | ||||
| 2100 | Brachytherapy | BraDt | Date of Brachytherapy | NA | Date | ||||
| 2101 | Brachytherapy | BraRtDose | Total dose (Gy) | NA | Real | ||||
| 2102 | Brachytherapy | BraPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2103 | Brachytherapy | BraPSA | PSA level | NA | Drop-down list | ||||
| 2104 | Brachytherapy | BraClin | Radiation Oncologist | NA | Search list | ||||
| 2105 | Brachytherapy | BraInst | Treatment Institute | NA | Drop-down list | ||||
| 2106 | Brachytherapy | BraClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2107 | Brachytherapy | BraTrialNumber | Trial Number | NA | Text | ||||
| 2108 | Brachytherapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | Drop-down list | ||||
| 2109 | Brachytherapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2110 | Brachytherapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2111 | Brachytherapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2112 | Brachytherapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2113 | Brachytherapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2114 | Brachytherapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2115 | Brachytherapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2116 | Brachytherapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2117 | Brachytherapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2118 | Brachytherapy | OtherChk | Other domain, specify | NA | Boolean | ||||
| 2119 | Brachytherapy | Other | Other domain, specify domain | NA | Text | ||||
| 2120 | Brachytherapy | OtherGrade | Other domain, specify grade | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2121 | Brachytherapy | table3 | NA | NA | Table of items | ||||
| 2122 | Chemotherapy | CheYN | Chemotherapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2123 | Chemotherapy | CheDt | Start date of Chemotherapy | NA | Date | ||||
| 2124 | Chemotherapy | CheStopDt | Stop date of Chemotherapy | NA | Date | ||||
| 2125 | Chemotherapy | CheStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list | ||||
| 2126 | Chemotherapy | CheStopReasonNotes | Reason for stopping treatment notes | NA | Text | ||||
| 2127 | Chemotherapy | ChePSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2128 | Chemotherapy | ChePSA | PSA level | NA | Drop-down list | ||||
| 2129 | Chemotherapy | CheClin | Medical Oncologist | NA | Search list | ||||
| 2130 | Chemotherapy | CheInst | Treatment Institute | NA | Drop-down list | ||||
| 2131 | Chemotherapy | CheBoneAgents | Were bone agents used? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2132 | Chemotherapy | CheBoneAgentUsed | Bone agent used | 1 = Zoledronic Acid 2 = Denosumab 3 = Alpharidin 4 = Calcichew 5 = Other | Drop-down list | ||||
| 2133 | Chemotherapy | CheBoneAgentOther | Bone agent used, other | NA | Text | ||||
| 2134 | Chemotherapy | CheAgent | Agent used | 1 = Abiraterone 2 = Enzalutamide 3 = Darolutamide 4 = Other | Drop-down list | ||||
| 2135 | Chemotherapy | CheAgentNotes | Agent notes | NA | Text | ||||
| 2136 | Chemotherapy | CheClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2137 | Chemotherapy | CheTrialNumber | Trial Number | NA | Text | ||||
| 2138 | Chemotherapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values | ||||
| 2139 | Chemotherapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2140 | Chemotherapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2141 | Chemotherapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2142 | Chemotherapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2143 | Chemotherapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2144 | Chemotherapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2145 | Chemotherapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2146 | Chemotherapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2147 | Chemotherapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2148 | Chemotherapy | OtherChk | Other domain, specify | NA | Boolean | ||||
| 2149 | Chemotherapy | Other | Other domain, specify (Text) | NA | Text | ||||
| 2150 | Chemotherapy | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2151 | Chemotherapy | ComplicationsTable | Please specify complications domains and grade | NA | Table of items | ||||
| 2152 | Demographic | consent | Verbal consent | NA | Boolean | ||||
| 2153 | Demographic | doNotContact | Do not contact | NA | Boolean | ||||
| 2154 | Demographic | contactedBy | Contacted by | wasfa = Wasfa Farooq noa = Noa Gordon ray = Ray Tye alan = Alan Kramer julian = Julian Ellis | Drop-down list | ||||
| 2155 | Demographic | contactedAt | Contacted at | NA | Date Time | ||||
| 2156 | Demographic | Nm | Given name | NA | Text | ||||
| 2157 | Demographic | MddleNm | Middle name | NA | Text | ||||
| 2158 | Demographic | LstNm | Family name | NA | Text | ||||
| 2159 | Demographic | DOB | Date of Birth | NA | Date | ||||
| 2160 | Demographic | appointmentDate | Appointment date | NA | Date | ||||
| 2161 | Demographic | appointmentTime | Appointment time | NA | Time | ||||
| 2162 | Demographic | Address1 | Address 1 | NA | Text | ||||
| 2163 | Demographic | Address2 | Address 2 | NA | Text | ||||
| 2164 | Demographic | County | County | 1 = Antrim 2 = Armagh 3 = Carlow 4 = Cavan 5 = Clare 6 = Cork 7 = Derry 8 = Donegal 9 = Down 10 = Dublin 11 = Fermanagh 12 = Galway 13 = Kerry 14 = Kildare 15 = Kilkenny 16 = Laois 17 = Leitrim 18 = Limerick 19 = Longford 20 = Louth 21 = Mayo 22 = Meath 23 = Monaghan 24 = Offaly 25 = Roscommon 26 = Sligo 27 = Tipperary 28 = Tyrone 29 = Waterford 30 = Westmeath 31 = Wexford 32 = Wicklow | Drop-down list | ||||
| 2165 | Demographic | Eircode | Eircode | NA | Text | ||||
| 2166 | Demographic | AddNK | Address not known | NA | Boolean | ||||
| 2167 | Demographic | NOFXAdd | No fixed address | NA | Boolean | ||||
| 2168 | Demographic | PtEmail | Email address | NA | Text | ||||
| 2169 | Demographic | noEmail | No known email address | NA | Boolean | ||||
| 2170 | Demographic | countryCode | Country code | NA | Text | ||||
| 2171 | Demographic | primaryPhone | Primary phone number | NA | Text | ||||
| 2172 | Demographic | secondaryPhone | Secondary phone number | NA | Text | ||||
| 2173 | Demographic | preferredMethodPROMs | Preferred method for receiving PROMs | 1 = Email 2 = Post 3 = N/A | Drop-down list | ||||
| 2174 | Demographic | preferredMethodContact | Preferred method to be contacted | 1 = Email 2 = Post 3 = Phone 4 = SMS 5 = N/A | Drop-down list | ||||
| 2175 | Demographic | GMS | GMS number | NA | Text | ||||
| 2176 | Demographic | primaryConsultant | Primary consultant (urologist) | NA | Search list | ||||
| 2177 | Demographic | RefDate | Referral date | NA | Date | ||||
| 2178 | Demographic | currentGP | Current GP | NA | Text | ||||
| 2179 | Demographic | practiceGP | GP Practice Name | NA | Text | ||||
| 2180 | Demographic | emailGP | GP email address | NA | Text | ||||
| 2181 | Demographic | vitalStatus | Vital status | 0 = Alive 1 = Dead 5 = Dead (not confirmed) 9 = Not known | Drop-down list | ||||
| 2182 | Demographic | dod | Date of death | NA | Date | ||||
| 2183 | Demographic | cod | Cause of death | NA | Text | ||||
| 2184 | Demographic | ptSmoking | Smoking status | C = Current smoker N = Never smoked X = Ex smoker Z = Participant declines to answer | Drop-down list | ||||
| 2185 | Demographic | Ethnicity | Ethnicity | 1 = Irish 2 = Irish Traveller 3 = Roma 4 = Any other White background 5 = African 6 = Any other Black background 7 = Chinese 8 = Indian/Pakistani/Bangladeshi 9 = Any other Asian background 10 = Arabic 11 = Mixed, write in description 12 = Other, write in description | Drop-down list | ||||
| 2186 | Demographic | EthnicityOtherText | Ethnicity, other | NA | Text | ||||
| 2187 | Demographic | PrefLan | Preferred language | NA | Drop-down list | ||||
| 2188 | Demographic | familyDegree | First degree family member diagnosed with cancer | 1 = Parent 2 = Sibling 3 = Child 4 = No 99 = Unknown -1 = Participant declines to answer | Drop-down list | ||||
| 2189 | Demographic | familyAge | Age when first degree family member diagnosed with cancer | 1 = < 65 years 2 = >= 65 years 99 = Unknown -1 = Participant declines to answer | Drop-down list | ||||
| 2190 | Diagnosis | DiagInst | Diagnosing institute | NA | Drop-down list | ||||
| 2191 | Diagnosis | DiagClin | Diagnosing Clinician | NA | Search list | ||||
| 2192 | Diagnosis | DiagPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2193 | Diagnosis | DiagPSALevel | PSA Level | NA | Drop-down list | ||||
| 2194 | Diagnosis | DiagDt | Date of diagnosis | NA | Date | ||||
| 2195 | Diagnosis | AgeDiag | Age at Diagnosis | NA | Real | ||||
| 2196 | Diagnosis | YrsPrCa | Years living with Prostate Cancer | NA | Real | ||||
| 2197 | Diagnosis | YrsPrCaDth | Years living with Prostate Cancer at time of death | NA | Real | ||||
| 2198 | Diagnosis | DiagMeth | Method of diagnosis | 1 = TRUS 2 = TURP 3 = TURBT 4 = Transperineal biopsy 5 = Clinical Investigation (eg Bone scan, CT, MRI) 6 = Histology of metastatic site (bone biopsy Lymph node biopsy) 7 = Prostatectomy (simple,diagnostic) 8 = Other 9 = Unknown 10 = Cystoprostatectomy | Drop-down list | ||||
| 2199 | Diagnosis | DiagMethOth | If Other, Specify | NA | Text | ||||
| 2200 | Diagnosis | ClinInType1 | Bone scan | NA | Boolean | ||||
| 2201 | Diagnosis | ClinInType2 | MRI | NA | Boolean | ||||
| 2202 | Diagnosis | ClinInType3 | CT | NA | Boolean | ||||
| 2203 | Diagnosis | ClinInType4 | Other | NA | Boolean | ||||
| 2204 | Diagnosis | ClinInOth | If Other, specify | NA | Text | ||||
| 2205 | Diagnosis | ClinInType5 | PET | NA | Boolean | ||||
| 2206 | Diagnosis | ClinInType6 | US | NA | Boolean | ||||
| 2207 | Diagnosis | ClinInType7 | Not Known | NA | Boolean | ||||
| 2208 | Diagnosis | MetHisType | Metastatic Histology Procedure | 1 = Lymph node biopsy 2 = Bone Biopsy 3 = Lung Biopsy 4 = Brain biopsy 5 = Liver biopsy 6 = Other | Drop-down list | ||||
| 2209 | Diagnosis | MetHisOth | If Other, specify | NA | Text | ||||
| 2210 | Diagnosis | DiagMorph1 | Histology Type 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2211 | Diagnosis | DiagMorphOther1 | Histology Type 1 (Other) | NA | Text | ||||
| 2212 | Diagnosis | DiagMorph2 | Histology Type 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2213 | Diagnosis | DiagMorphOther2 | Histology Type 2 (Other) | NA | Text | ||||
| 2214 | Diagnosis | DiagMorph3 | Histology Type 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2215 | Diagnosis | DiagMorphOther3 | Histology Type 3 (Other) | NA | Text | ||||
| 2216 | Diagnosis | DiagGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2217 | Diagnosis | DiagGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2218 | Diagnosis | DiagGleSum | = | NA | Integer | ||||
| 2219 | Diagnosis | CribriformPatternPresent | Cribriform Morphology Pattern Present | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2220 | Diagnosis | PatternPercent | Percentage of Pattern 4 | 1 = < 5% 2 = 10% 3 = 20% 4 = 30% 5 = 50% 6 = > 50% 7 = 100% 8 = Other | Drop-down list | ||||
| 2221 | Diagnosis | PatternPercentOther | Percentage of Pattern 4, other | NA | Integer | ||||
| 2222 | Diagnosis | DiagCoresPos | Number of positive cores | NA | Integer | ||||
| 2223 | Diagnosis | DiagCoresTot | Total Number of cores | NA | Integer | ||||
| 2224 | Diagnosis | DiagCoresPerPos | % positive cores | NA | Integer | ||||
| 2225 | Diagnosis | DiagCoresInvol | Greatest % cancer involvement in any one biopsy core at time of diagnosis | NA | Integer | ||||
| 2226 | Diagnosis | PeriNeuYN | Perineural Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list | ||||
| 2227 | Diagnosis | LymvasYN | Lymphovascular Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list | ||||
| 2228 | Diagnosis | ExtProsYN | Extraprostatic Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list | ||||
| 2229 | Diagnosis | SVInvYN | Seminal Vesicle Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list | ||||
| 2230 | Diagnosis | DiagMRIStatus | MRI status | 0 = No 1 = Yes 9 = Not known | Drop-down list | ||||
| 2231 | Diagnosis | DiagMRIDetails | MRI Details | NA | Drop-down list | ||||
| 2232 | Diagnosis | PSAVolume | Prostate volume | NA | Real | ||||
| 2233 | Diagnosis | PSADensity | PSA density | NA | Real | ||||
| 2234 | Diagnosis | ClinTYN | Clinical T stage status | 0 = DRE not taken 1 = DRE taken 2 = DRE refused by patient | Drop-down list | ||||
| 2235 | Diagnosis | ClinTOutcome | Clinical T stage outcome | 1 = Unremarkable 2 = Abnormal findings (enlarged, nodules, hardness etc) 3 = Other | Drop-down list | ||||
| 2236 | Diagnosis | ClinTOutcomeOther | Clinical T stage outcome, other | NA | Text | ||||
| 2237 | Diagnosis | DiagcT | Pathological T stage | 1 = TX (cannot be assessed) 2 = T0 3 = T1 4 = T1a 5 = T1b 6 = T1c 7 = T2 8 = T2a 9 = T2b 10 = T2c 11 = T3 12 = T3a 13 = T3b 14 = T4 15 = T4a 16 = T4b | Drop-down list | ||||
| 2238 | Diagnosis | DiagcN | Pathological N stage | 1 = NX 2 = N0 3 = N1 | Drop-down list | ||||
| 2239 | Diagnosis | DiagcM | Pathological M stage | 1 = MX 2 = M0 3 = M1a 4 = M1b 5 = M1c 7 = M1 | Drop-down list | ||||
| 2240 | Diagnosis | DiagRdBone | Bone scan | NA | Boolean | ||||
| 2241 | Diagnosis | DiagRdBoneScanDt | Date of Bone scan | NA | Date | ||||
| 2242 | Diagnosis | DiagRdBoneScanFindings | Bone scan findings | 1 = Normal 2 = Abnormal | Drop-down list | ||||
| 2243 | Diagnosis | DiagRdBoneScanNotes | Bone scan findings, notes | NA | Text memo | ||||
| 2244 | Diagnosis | DiagRdPet | PET | NA | Boolean | ||||
| 2245 | Diagnosis | DiagRdPetDt | Date of PET scan | NA | Date | ||||
| 2246 | Diagnosis | DiagRdPetFindings | PET scan findings | 1 = Normal 2 = Abnormal | Drop-down list | ||||
| 2247 | Diagnosis | DiagRdPetNotes | PET scan findings, notes | NA | Text memo | ||||
| 2248 | Diagnosis | DiagRdCT | CT | NA | Boolean | ||||
| 2249 | Diagnosis | DiagRdCTDt | Date of CT | NA | Date | ||||
| 2250 | Diagnosis | DiagRdCTFindings | CT findings | 1 = Normal 2 = Abnormal | Drop-down list | ||||
| 2251 | Diagnosis | DiagRdCTNotes | CT findings, notes | NA | Text memo | ||||
| 2252 | Diagnosis | DiagRdPSMA | PSMA PET | NA | Boolean | ||||
| 2253 | Diagnosis | DiagRdPSMADt | Date of PSMA PET | NA | Date | ||||
| 2254 | Diagnosis | DiagRdPSMAFindings | PSMA PET findings | 1 = Normal 2 = Abnormal | Drop-down list | ||||
| 2255 | Diagnosis | DiagRdPSMANotes | PSMA PET findings, notes | NA | Text memo | ||||
| 2256 | Diagnosis | DiagRdNo | No radiology test done. N & M staging were assigned based on clinical assessment | NA | Boolean | ||||
| 2257 | Diagnosis | DiagRdOther | Other, specify | NA | Boolean | ||||
| 2258 | Diagnosis | DiagcMMethOth | If Other, Specify | NA | Text | ||||
| 2259 | Diagnosis | DiagRdOtherDt | Date of other | NA | Date | ||||
| 2260 | Diagnosis | DiagRdOtherFindings | Other findings | 1 = Normal 2 = Abnormal | Drop-down list | ||||
| 2261 | Diagnosis | DiagRdOtherNotes | Other findings, notes | NA | Text memo | ||||
| 2262 | Diagnosis | DiagRdUnknown | Unknown | NA | Boolean | ||||
| 2263 | Diagnosis | TNMoverall | TNM overall grouping | 1 = Stage I 2 = Stage IIA 3 = Stage IIB 4 = Stage III 5 = Stage IV 6 = Not stated | Drop-down list | ||||
| 2264 | Diagnosis | Stagschadd | AJCC Staging Scheme Edition | 1 = 6th edition 2 = 7th edition 3 = 8th edition 9 = Unknown | Drop-down list | ||||
| 2265 | Diagnosis | CAPRA | CAPRA Score | NA | Integer | ||||
| 2266 | Diagnosis | NCCN | NCCN score | NA | Integer | ||||
| 2267 | Diagnosis | NCCN_Latest | NCCN (Latest) | NA | Integer | ||||
| 2268 | Diagnosis | PRIAS | PRIAS | NA | Integer | ||||
| 2269 | Diagnosis | DiagISUP | Diagnosis ISUP grade | NA | Integer | ||||
| 2312 | Focal-gland ablation therapy | FoGlYN | Focal-gland ablation therapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2313 | Focal-gland ablation therapy | FoGlPrimSal | Primary or salvage | 1 = Primary 2 = Salvage | Drop-down list | ||||
| 2314 | Focal-gland ablation therapy | FoGlDt | Date of focal-gland ablation therapy | NA | Date | ||||
| 2315 | Focal-gland ablation therapy | FoGlPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2316 | Focal-gland ablation therapy | FoGlPSA | PSA level | NA | Drop-down list | ||||
| 2317 | Focal-gland ablation therapy | FoGlClin | Clinician | NA | Search list | ||||
| 2318 | Focal-gland ablation therapy | FoGlInst | Treatment Institute | NA | Drop-down list | ||||
| 2319 | Focal-gland ablation therapy | FoGlClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2320 | Focal-gland ablation therapy | FoGlTrialNumber | Trial Number | NA | Text | ||||
| 2321 | Focal-gland ablation therapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values | ||||
| 2322 | Focal-gland ablation therapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2323 | Focal-gland ablation therapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2324 | Focal-gland ablation therapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2325 | Focal-gland ablation therapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2326 | Focal-gland ablation therapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2327 | Focal-gland ablation therapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2328 | Focal-gland ablation therapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2329 | Focal-gland ablation therapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2330 | Focal-gland ablation therapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2331 | Focal-gland ablation therapy | OtherChk | Other domain, specify | NA | Boolean | ||||
| 2332 | Focal-gland ablation therapy | Other | Other domain, specify (Text) | NA | Text | ||||
| 2333 | Focal-gland ablation therapy | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2334 | Focal-gland ablation therapy | ComplicationsTable | Please specify complications domains and grade | NA | Table of items | ||||
| 2335 | Additional focal therapy | FoGlAddStartDt | Date | NA | Date | ||||
| 2336 | Additional focal therapy | FoGlAddStartDtAcc | Date Accuracy | 1 = AAA 2 = AAE 3 = AAU 4 = AEE 5 = AEU 6 = AUU 7 = AUA 8 = AUE 9 = AEA 10 = EAA 11 = EAE 12 = EAU 13 = EEA 14 = EEE 15 = EEU 16 = EUA 17 = EUE 18 = EUU 19 = UAA 20 = UAE 21 = UAU 22 = UEA 23 = UEE 24 = UEU 25 = UUA 26 = UUE 27 = UUU | Drop-down list | ||||
| 2337 | Additional focal therapy | FoGlAddPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2338 | Additional focal therapy | FoGlAddPSA | PSA Level | NA | Drop-down list | ||||
| 2339 | Additional focal therapy | FoGlAddClin | Clinician | NA | Search list | ||||
| 2340 | Additional focal therapy | FoGlAddInst | Treatment Institute | NA | Drop-down list | ||||
| 2341 | Follow-up | LtfuYN | Lost to Follow Up | 0 = No 1 = Yes | Drop-down list | ||||
| 2342 | Follow-up | LtfuReas | Reason for Lost to Follow Up | 1 = Patient deceased 2 = Patient unwell 3 = Non-english speaking 4 = Unable to contact 5 = Patient not interested in participating (remove data completely from the registry) 6 = Patient diagnosed earlier than denoted in this notification 7 = Late notification 8 = Patient diagnosed in another hospital at an earlier time 9 = Waiver for TURP 10 = Waiver for death 11 = Patient not interested in participating (Consent for data collection only) 12 = Dr not recruited at time of follow up 13 = Hearing impairment 14 = Late notification of TURP awareness 15 = Wrong/disconnected number 16 = Other (please state) 17 = Delayed data collection 18 = PROMS not returned 19 = Being followed up by another jurisdiction 20 = Delayed data collection due to covid-19 | Drop-down list | ||||
| 2343 | Follow-up | LtfuOth | Other Reason | NA | Text | ||||
| 2344 | Follow-up | DtFollowupComplete | Date of Follow Up | NA | Date | ||||
| 2410 | MRI Sub-form | MRIDt | MRI Date | NA | Date | ||||
| 2411 | MRI Sub-form | PIRADS | PI-RADS | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not Stated | Drop-down list | ||||
| 2412 | MRI Sub-form | length | Length (cm) | NA | Real | ||||
| 2413 | MRI Sub-form | width | Width (cm) | NA | Real | ||||
| 2414 | MRI Sub-form | height | Height (cm) | NA | Real | ||||
| 2415 | MRI Sub-form | volume | Volume (ml) | NA | Real | ||||
| 2450 | Other Systemic Therapies | OthSyThYN | Other systemic therapies | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2451 | Other Systemic Therapies | OthSyThStartDt | Start date of Other Systemic Therapies | NA | Date | ||||
| 2452 | Other Systemic Therapies | OthSyThEndDt | End date of Other Systemic Therapies | NA | Date | ||||
| 2453 | Other Systemic Therapies | OthSysStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list | ||||
| 2454 | Other Systemic Therapies | OthSysStopNotes | Reason for stopping treatment notes | NA | Text | ||||
| 2455 | Other Systemic Therapies | Notes | Notes | NA | Text memo | ||||
| 2456 | Other Systemic Therapies | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values | ||||
| 2457 | Other Systemic Therapies | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2458 | Other Systemic Therapies | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2459 | Other Systemic Therapies | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2460 | Other Systemic Therapies | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2461 | Other Systemic Therapies | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2462 | Other Systemic Therapies | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2463 | Other Systemic Therapies | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2464 | Other Systemic Therapies | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2465 | Other Systemic Therapies | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2466 | Other Systemic Therapies | OtherChk | Other domain, specify | NA | Boolean | ||||
| 2467 | Other Systemic Therapies | Other | Other domain, specify (Text) | NA | Text | ||||
| 2468 | Other Systemic Therapies | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2469 | Other Systemic Therapies | ComplicationsTable | Please specify complications domains and grade | NA | Table of items | ||||
| 2470 | Other/Unknown/Referred Treatment | OthPrimSal | Type | 1 = Primary 2 = Salvage | Drop-down list | ||||
| 2471 | Other/Unknown/Referred Treatment | OthYN | Other treatment | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2472 | Other/Unknown/Referred Treatment | OthDt | Start Date | NA | Date | ||||
| 2473 | Other/Unknown/Referred Treatment | OthStopDt | Stop Date | NA | Date | ||||
| 2474 | Other/Unknown/Referred Treatment | OthStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list | ||||
| 2475 | Other/Unknown/Referred Treatment | OthStopNotes | Reason for stopping treatment notes | NA | Text | ||||
| 2476 | Other/Unknown/Referred Treatment | OthPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2477 | Other/Unknown/Referred Treatment | OthPsa | NA | NA | Drop-down list | ||||
| 2478 | Other/Unknown/Referred Treatment | OthType | Other treatment type | NA | Text | ||||
| 2479 | Other/Unknown/Referred Treatment | OthClin | Clinician | NA | Search list | ||||
| 2480 | Other/Unknown/Referred Treatment | OthInst | Treatment Institute | NA | Drop-down list | ||||
| 2481 | Other/Unknown/Referred Treatment | UnkYN | Unknown Treatment | 0 = No 1 = Yes | List of values | ||||
| 2482 | Other/Unknown/Referred Treatment | UnkNote | Treatment note | NA | Text memo | ||||
| 2483 | Other/Unknown/Referred Treatment | UnkRefYN | Referred treatment | 0 = No 1 = Yes | List of values | ||||
| 2484 | Other/Unknown/Referred Treatment | UnkRefClin | Referred Clinician | NA | Search list | ||||
| 2485 | Other/Unknown/Referred Treatment | UnkRefInst | Treatment Institute | NA | Drop-down list | ||||
| 2486 | PSA Sub-form | PSAdat | PSA Date | NA | Date | ||||
| 2487 | PSA Sub-form | PSALev | PSA Level | NA | Real | ||||
| 2488 | Radiotherapy | RtYN | Radiotherapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2489 | Radiotherapy | RtPrimSalPal | Treatment intent | 1 = Primary 2 = Salvage 3 = Palliative | Drop-down list | ||||
| 2490 | Radiotherapy | RtType | Type of Radiation | 1 = EBRT 2 = Brachytherapy | Drop-down list | ||||
| 2491 | Radiotherapy | RtNodesTargeted | Were elective nodes targeted in EBRT? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2492 | Radiotherapy | LdrYN | LDR Brachytherapy | 0 = No 1 = Yes | Drop-down list | ||||
| 2493 | Radiotherapy | HdrYN | HDR Brachytherapy | 0 = No 1 = Yes | Drop-down list | ||||
| 2494 | Radiotherapy | RtDt | Start date of Radiotherapy | NA | Date | ||||
| 2495 | Radiotherapy | RtStopDt | Stop date of Radiotherapy | NA | Date | ||||
| 2496 | Radiotherapy | RtStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list | ||||
| 2497 | Radiotherapy | RtStopReasonNotes | Reason for stopping treatment notes | NA | Text | ||||
| 2498 | Radiotherapy | RtDose | Total dose (Gy) | NA | Real | ||||
| 2499 | Radiotherapy | RtDoseKnown | Unknown | NA | Boolean | ||||
| 2500 | Radiotherapy | RtFrac | Number of Fractions | NA | Integer | ||||
| 2501 | Radiotherapy | RtFracKnown | Unknown | NA | Boolean | ||||
| 2502 | Radiotherapy | RtPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2503 | Radiotherapy | RtPSA | PSA level | NA | Drop-down list | ||||
| 2504 | Radiotherapy | RtClin | Radiation Oncologist | NA | Search list | ||||
| 2505 | Radiotherapy | RtInst | Treatment Institute | NA | Drop-down list | ||||
| 2506 | Radiotherapy | RtClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2507 | Radiotherapy | RtTrialNumber | Trial Number | NA | Text | ||||
| 2508 | Radiotherapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values | ||||
| 2509 | Radiotherapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2510 | Radiotherapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2511 | Radiotherapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2512 | Radiotherapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2513 | Radiotherapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2514 | Radiotherapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2515 | Radiotherapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2516 | Radiotherapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2517 | Radiotherapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2518 | Radiotherapy | OtherChk | Other domain, specify | NA | Boolean | ||||
| 2519 | Radiotherapy | Other | Other domain, specify (Text) | NA | Text | ||||
| 2520 | Radiotherapy | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list | ||||
| 2521 | Radiotherapy | ComplicationsTable | Please specify complications domains and grade | NA | Table of items | ||||
| 2522 | Surgery | SurYN | Prostatectomy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list | ||||
| 2523 | Surgery | SurPrimSal | Type | 1 = Primary 2 = Salvage | Drop-down list | ||||
| 2524 | Surgery | SurDt | Date of surgery | NA | Date | ||||
| 2525 | Surgery | SurPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2526 | Surgery | SurPSA | PSA level | NA | Drop-down list | ||||
| 2527 | Surgery | SurType | Surgical Approach | 6065 = Open prostatectomy 6069 = Laproscopic prostatectomy 3 = Robot assisted laparoscopic prostatectomy 4 = Open (converted from laproscopic) 5 = Open (converted from robotic) 7 = Other prostatectomy | Drop-down list | ||||
| 2528 | Surgery | SurOth | Surgery (Other) | NA | Text | ||||
| 2529 | Surgery | SurNerveSpare | Nerve Sparing Status | 1 = Non-nerve-sparing 2 = Nerve-sparing -1 = Unknown | Drop-down list | ||||
| 2530 | Surgery | SurClin | Surgeon | NA | Search list | ||||
| 2531 | Surgery | SurInst | Treatment Institute | NA | Drop-down list | ||||
| 2532 | Surgery | SurHistType | Histology Type 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2533 | Surgery | OtherHistoTypeCode | Histology Type Other | NA | Text | ||||
| 2534 | Surgery | SurHistType2 | Histology Type 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2535 | Surgery | OtherHistoTypeCode2 | Histology Type 2 Other | NA | Text | ||||
| 2536 | Surgery | SurHistType3 | Histology Type 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2537 | Surgery | OtherHistoTypeCode3 | Histology Type 3 Other | NA | Text | ||||
| 2538 | Surgery | SurTumourPresYN | Presence of Tumour? | 0 = No 1 = Yes 9 = Not Known | Drop-down list | ||||
| 2539 | Surgery | SurT | T stage | 1 = TX (not assessed) 2 = T0 7 = T2 8 = T2a 9 = T2b 10 = T2c 11 = T3 12 = T3a 13 = T3b 14 = T4 15 = T4a 16 = T4b | Drop-down list | ||||
| 2540 | Surgery | SurN | N stage | 0 = N0 1 = N1 2 = NX (nodes not biopsied) | Drop-down list | ||||
| 2541 | Surgery | SurGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2542 | Surgery | SurGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2543 | Surgery | SurGleSum | = | NA | Integer | ||||
| 2544 | Surgery | CribriformPatternPresent | Cribriform Morphology Pattern Present | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2545 | Surgery | PatternPercent | Percentage of Pattern 4 | 1 = < 5% 2 = 10% 3 = 20% 4 = 30% 5 = 50% 6 = > 50% 7 = 100% 8 = Other | Drop-down list | ||||
| 2546 | Surgery | PatternPercentOther | Percentage of Pattern 4, other | NA | Integer | ||||
| 2547 | Surgery | SurTer | Tertiary score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2548 | Surgery | SurMar | Pathological Margins | 1 = Present (positive) 2 = Absent (negative) -1 = Not stated | Drop-down list | ||||
| 2549 | Surgery | SurFocal | Margin status focality | 1 = Focal 2 = Multi-focal -1 = Unknown | Drop-down list | ||||
| 2550 | Surgery | SurFocExt | Focal/Extensive Margins | 1 = <= 1mm (focal) 2 = > 1mm (extensive) -1 = Not stated/unknown -2 = No pathology report | Drop-down list | ||||
| 2551 | Surgery | SurPInv | Perineural Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list | ||||
| 2552 | Surgery | SurLInv | Lymphovascular Invasion | 2 = Artery 3 = Vein 4 = Lymph 5 = Multiple vessel types 1 = Vessel not known 0 = No -2 = No pathology report -1 = Not stated | Drop-down list | ||||
| 2553 | Surgery | SurEPInv | Extraprostatic Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list | ||||
| 2554 | Surgery | SurSVInv | Seminal Vesicle Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list | ||||
| 2555 | Surgery | TNMgroup | TNM grouping | 1 = Stage I 2 = Stage IIA 3 = Stage IIB 4 = Stage III 5 = Stage IV 6 = Not stated | Drop-down list | ||||
| 2556 | Surgery | StagschemeEd | AJCC Staging scheme Edition | 1 = 6th edition 2 = 7th edition 3 = 8th edition 9 = Unknown | Drop-down list | ||||
| 2557 | Surgery | PelvicLymphDone | Pelvic lymph node dissection done | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2558 | Surgery | PelvicLymphRem | Number of nodes removed | NA | Integer | ||||
| 2559 | Surgery | PelvicLymphPos | Number of nodes positive for cancer | NA | Integer | ||||
| 2560 | Surgery | SurClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2561 | Surgery | SurTrialNumber | Trial number | NA | Text | ||||
| 2562 | Surgery | Clavien | Patient experienced a Clavien grade III-V complication (maximum grade) | 0 = No 1 = Grade 3 2 = Grade 4 3 = Grade 5 | Drop-down list | ||||
| 2563 | Surgery | table-ectomyYN | NA | NA | Table of items | ||||
| 2564 | Baseline survey | eortc31 | 31. Have you had to urinate frequently during the day? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2565 | Baseline survey | eortc32 | 32. Have you had to urinate frequently at night? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2566 | Baseline survey | eortc33 | 33. When you felt the urge to pass urine, did you have to hurry to get to the toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2567 | Baseline survey | eortc34 | 34. Was it difficult for you to get enough sleep, because you needed to get up frequently at night to urinate? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2568 | Baseline survey | eortc35 | 35. Have you had difficulty going out of the house because you needed to be close to a toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2569 | Baseline survey | eortc_pr25_group1 | During the past week: (Please select one on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2570 | Baseline survey | eortc36 | 36. Have you had any unintentional release (leakage) of urine? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2571 | Baseline survey | eortc37 | 37. Did you have pain when you urinated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2572 | Baseline survey | eortc38 | 38. Answer this question only if you wear an incontinence aid: Has wearing an incontinence aid been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2573 | Baseline survey | eortc39 | 39. Have your daily activities been limited by your urinary problems? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2574 | Baseline survey | eortc40 | 40. Have your daily activities been limited by your bowel problems? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2575 | Baseline survey | eortc41 | 41. Have you had any unintentional release (leakage) of stools? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2576 | Baseline survey | eortc42 | 42. Have you had blood in your stools? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2577 | Baseline survey | eortc43 | 43. Did you have a bloated feeling in your abdomen? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2578 | Baseline survey | eortc44 | 44. Did you have hot flushes? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2579 | Baseline survey | eortc45 | 45. Have you had sore or enlarged nipples or breasts? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2580 | Baseline survey | eortc46 | 46. Have you had swelling in your legs or ankles? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2581 | Baseline survey | eortc1 | 1. Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or suitcase? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2582 | Baseline survey | eortc47 | 47. Has weight loss been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2583 | Baseline survey | eortc48 | 48. Has weight gain been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2584 | Baseline survey | eortc2 | 2. Do you have any trouble taking a long walk? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2585 | Baseline survey | eortc3 | 3. Do you have any trouble taking a short walk outside of the house? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2586 | Baseline survey | eortc49 | 49. Have you felt less masculine as a result of your illness or treatment? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2587 | Baseline survey | eortc50 | 50. To what extent were you interested in sex? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2588 | Baseline survey | eortc4 | 4. Do you need to stay in bed or a chair during the day? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2589 | Baseline survey | eortc5 | 5. Do you need help with eating, dressing, washing yourself or using the toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2590 | Baseline survey | eortc51 | 51. To what extent were you sexually active (with or without intercourse)? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2591 | Baseline survey | eortc_pr25_group2 | During the past 4 weeks: (Please select one on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2592 | Baseline survey | eortc_c30_group1 | Please tell us more about your quality of life in general | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2593 | Baseline survey | eortc52 | 52. To what extent was sex enjoyable for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2594 | Baseline survey | eortc6 | 6. Were you limited in doing either your work or other daily activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2595 | Baseline survey | eortc7 | 7. Were you limited in pursuing your hobbies or other leisure time activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2596 | Baseline survey | eortc53 | 53. Did you have difficulty getting or maintaining an erection? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2597 | Baseline survey | eortc54 | 54. Did you have ejaculation problems (eg dry ejaculation)? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2598 | Baseline survey | eortc8 | 8. Were you short of breath? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2599 | Baseline survey | eortc9 | 9. Have you had pain? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2600 | Baseline survey | eortc55 | 55. Have you felt uncomfortable about being sexually intimate? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2601 | Baseline survey | eortc10 | 10. Did you need to rest? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2602 | Baseline survey | eortc11 | 11. Have you had trouble sleeping? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2603 | Baseline survey | eortc12 | 12. Have you felt weak? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2604 | Baseline survey | eortc_c30_group2 | During the past week: | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2605 | Baseline survey | eortc_pr25_group3 | Please answer the next four questions only if you have been sexually active over the last 4 weeks: (Please tick one box on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2606 | Baseline survey | eortc13 | 13. Have you lacked appetite? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2607 | Baseline survey | eortc14 | 14. Have you felt nauseated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2608 | Baseline survey | eortc15 | 15. Have you vomited? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2609 | Baseline survey | eortc16 | 16. Have you been constipated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2610 | Baseline survey | eortc17 | 17. Have you had diarrhoea? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2611 | Baseline survey | eortc18 | 18. Were you tired? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2612 | Baseline survey | eortc19 | 19. Did pain interfere with your daily activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2613 | Baseline survey | eortc20 | 20. Have you had difficulty in concentrating on things like reading a newspaper or watching television? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2614 | Baseline survey | eortc21 | 21. Did you feel tense? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2615 | Baseline survey | eortc22 | 22. Did you worry? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2616 | Baseline survey | eortc23 | 23. Did you feel irritable? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2617 | Baseline survey | eortc24 | 24. Did you feel depressed? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2618 | Baseline survey | eortc25 | 25. Have you had difficulty remembering things? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2619 | Baseline survey | eortc26 | 26. Has your physical condition or medical treatment interfered with your family life? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2620 | Baseline survey | eortc27 | 27. Has your physical condition or medical treatment interfered with your social activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2621 | Baseline survey | eortc28 | 28. Has your physical condition or medical treatment caused your financial difficulties? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2622 | Baseline survey | eortc29 | 29. How would you rate your overall health during the past week? | 1 = 1 (Very poor) 2 = 2 3 = 3 4 = 4 5 = 5 6 = 6 7 = 7 (Excellent) -1 = Participant declines to answer | List of values | ||||
| 2623 | Baseline survey | eortc30 | 30. How would you rate your overall quality of life during the past week? | 1 = 1 (Very poor) 2 = 2 3 = 3 4 = 4 5 = 5 6 = 6 7 = 7 (Excellent) -1 = Participant declines to answer | List of values | ||||
| 2624 | Baseline survey | EPIC26Qu1 | 1. Over the past 4 weeks, how often have you leaked urine? | 1 = More than once a day 2 = About once a day 3 = More than once a week 4 = About once a week 5 = Rarely or never -1 = Participant declines to answer | List of values | ||||
| 2625 | Baseline survey | EPIC26Qu2 | 2. Which of the following best describes your urinary control during the last 4 weeks? | 1 = No urinary control whatsoever 2 = Frequent dribbling 3 = Occasional dribbling 4 = Total control -1 = Participant declines to answer | List of values | ||||
| 2626 | Baseline survey | EPIC26Qu3 | 3. How many pads or adult diapers per day did you usually use to control leakage during the last 4 weeks? | 1 = None 2 = 1 pad per day 3 = 2 pads per day 4 = 3 or more pads per day -1 = Participant declines to answer | List of values | ||||
| 2627 | Baseline survey | EPIC26Qu4A | A. Dripping or leaking urine | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2628 | Baseline survey | EPIC26Qu4B | B. Pain or burning on urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2629 | Baseline survey | EPIC26Qu4C | C. Bleeding with urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2630 | Baseline survey | EPIC26Qu4D | D. Weak urine stream or incomplete emptying | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2631 | Baseline survey | EPIC26Qu4E | E. Need to urinate frequently during the day | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2632 | Baseline survey | EPIC26Qu4 | 4. How big a problem, if any, has each of the following been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2633 | Baseline survey | EPIC26Qu5 | 5. Overall, how big a problem has your urinary function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2634 | Baseline survey | EPIC26Qu6A | A. Urgency to have a bowel movement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2635 | Baseline survey | EPIC26Qu6B | B. Increased frequency of bowel movements | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2636 | Baseline survey | EPIC26Qu6C | C. Losing control of your stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2637 | Baseline survey | EPIC26Qu6D | D. Bloody stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2638 | Baseline survey | EPIC26Qu6E | E. Abdominal/ Pelvic/Rectal pain | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2639 | Baseline survey | v9EPIC26Qu6 | 6. How big a problem, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2640 | Baseline survey | EPIC26Qu7 | 7. Overall, how big a problem have your bowel habits been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2641 | Baseline survey | EPIC26Qu8A | A. Your ability to have an erection? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2642 | Baseline survey | EPIC26Qu8B | B. Your ability to reach orgasm (climax)? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2643 | Baseline survey | EPIC26Qu8 | 8. How would you rate each of the following during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | Group of Lists | ||||
| 2644 | Baseline survey | EPIC26Qu9 | 9. How would you describe the usual QUALITY of your erections during the last 4 weeks? | 1 = None at all 2 = Not firm enough for any sexual activity 3 = Firm enough for masturbation and foreplay only 4 = Firm enough for intercourse -1 = Participant declines to answer | List of values | ||||
| 2645 | Baseline survey | EPIC26Qu10 | 10. How would you describe the FREQUENCY of your erections during the last 4 weeks? | 1 = I NEVER had an erection when I wanted one 2 = I had an erection LESS THAN HALF the time I wanted one 3 = I had an erection ABOUT HALF the time I wanted one 4 = I had an erection MORE THAN HALF the time I wanted one 5 = I had an erection WHENEVER I wanted one -1 = Participant declines to answer | List of values | ||||
| 2646 | Baseline survey | EPIC26Qu11 | 11. Overall, how would you rate your ability to function sexually during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2647 | Baseline survey | EPIC26Qu12 | 12. Overall, how big a problem has your sexual function or lack of sexual function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2648 | Baseline survey | EPIC26Qu13A | A. Hot flashes | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2649 | Baseline survey | EPIC26Qu13B | B. Breast tenderness/enlargement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2650 | Baseline survey | EPIC26Qu13C | C. Feeling depressed | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2651 | Baseline survey | EPIC26Qu13D | D. Lack of energy | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2652 | Baseline survey | EPIC26Qu13E | E. Change in body weight | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2653 | Baseline survey | EPIC26Qu13 | 13. How big a problem during the last 4 weeks, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2654 | Baseline survey | LIBIDOQu1 | 1. During the last 4 weeks, to what extent were you interested in sex? | 0 = Not at all 1 = A little 2 = Quite a bit 3 = Very much -1 = Participant declines to answer | List of values | ||||
| 2655 | Baseline survey | LIBIDOQu2 | 2. Have you used any medications or devices to aid or improve erections? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2656 | Baseline survey | LIBIDOQu3A | A. Viagra or another pill to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2657 | Baseline survey | LIBIDOQu3B | B. Muse (intraâ€Âurethral alprostadil suppository) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2658 | Baseline survey | LIBIDOQu3C | C. Penile injection therapy (such as caverject) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2659 | Baseline survey | LIBIDOQu3D | D. Vacuum erection device (such as erect-aid) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2660 | Baseline survey | LIBIDOQu3E | E. Medication/device other than those explicitly listed to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2661 | Baseline survey | LIBIDOQu3 | 3. Please indicate whether or not you have tried or currently use: | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | Group of Lists | ||||
| 2662 | Baseline survey | ComorbQu1 | A. Heart disease (for example angina, heart attack, or heart failure) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2663 | Baseline survey | ComorbQu2 | B. High blood pressure | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2664 | Baseline survey | ComorbQu3 | C. Leg pain when walking due to poor circulation | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2665 | Baseline survey | ComorbQu4 | D. Lung disease (for example asthma, chronic bronchitis, or emphysema) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2666 | Baseline survey | ComorbQu5 | E. Diabetes | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2667 | Baseline survey | ComorbQu6 | F. Kidney disease | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2668 | Baseline survey | ComorbQu7 | G. Liver disease | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2669 | Baseline survey | ComorbQu8 | H. Problems caused by stroke | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2670 | Baseline survey | ComorbQu9 | I. Disease of the nervous system (for example Parkinson’s disease or multiple sclerosis) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2671 | Baseline survey | ComorbQu10 | J. Malignant primary cancer other than prostate cancer within the last five years | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2672 | Baseline survey | ComorbQu11 | K. Depression | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2673 | Baseline survey | ComorbQu12 | L. Arthritis | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2674 | Baseline survey | ComorbQu0 | M. Do you have any diseases other than those listed above? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2675 | Baseline survey | ComorbQu | 1. Have you been told by a doctor that you have any of the following? | 0 = No 1 = Yes -1 = Participant declines to answer | Group of Lists | ||||
| 2676 | Baseline survey | EPICSurveyMode | Survey Mode | 1 = Phone 2 = Email 3 = Mail 4 = Site | List of values | ||||
| 2677 | Baseline survey | DtBaselineComplete | Date Completed | NA | Date | ||||
| 2678 | Baseline survey | nationality | 1. What is your country of birth? | 1 = Ireland 2 = Other -1 = Participant declines to answer | List of values | ||||
| 2679 | Baseline survey | nationother | Other nationality: | NA | Text | ||||
| 2680 | Baseline survey | ethnicity | 2. What is your ethnicity? | 1 = Irish 2 = Irish Traveller 3 = Roma 4 = Any other White background 5 = African 6 = Any other Black background 7 = Chinese 8 = Indian/Pakistani/Bangladeshi 9 = Any other Asian background 10 = Arabic 11 = Mixed, write in description 12 = Other, write in description | Drop-down list | ||||
| 2681 | Baseline survey | maritalstatus | ​3. What is your marital status? | 1 = Single 2 = Married (including cohabiting, civil partnership) 3 = Separated 4 = Divorced 5 = Widowed -1 = Participant declines to answer | List of values | ||||
| 2682 | Baseline survey | children | 4. Do you have children? | 1 = Yes 0 = No | List of values | ||||
| 2683 | Baseline survey | nchildren | 5. Number of children | NA | Integer | ||||
| 2684 | Baseline survey | nchildren18 | ​6. Number of children under 18 | NA | Integer | ||||
| 2685 | Baseline survey | currlivingarrange | 7. What is your current living arrangement? | 1 = Alone 2 = With spouse or partner (with/without children) 3 = With other family 4 = Assisted living 5 = Nursing home 6 = Other -1 = Participant declines to answer | List of values | ||||
| 2686 | Baseline survey | livingother | Other living arrangement: | NA | Text | ||||
| 2687 | Baseline survey | counton | 8. How many people are so close to you that you can count on them if you have serious personal problems? | 1 = None 2 = 1 or 2 3 = 3 to 5 4 = More than 5 -1 = Participant declines to answer | List of values | ||||
| 2688 | Baseline survey | friendlyinterest | 9. How much friendly interest do people take in what you are doing? | 1 = None 2 = Little 3 = Some 4 = A lot 5 = Uncertain -1 = Participant declines to answer | List of values | ||||
| 2689 | Baseline survey | currlivingplace | 10. Would you describe the place where you currently live as being? | 1 = In Dublin city or county 2 = In a city (other than Dublin) 3 = In a town (1500+ people) 4 = In a village 5 = In open country -1 = Participant declines to answer | List of values | ||||
| 2690 | Baseline survey | educationcomp | 11. What is the highest level of education you have completed? | 1 = No formal education 2 = Primary school 3 = Secondary school 4 = Third level -1 = Participant declines to answer | List of values | ||||
| 2691 | Baseline survey | occupation | 12. What is your occupational status? | 1 = Employed, full-time 2 = Employed, part-time 3 = Self-employed 4 = Unemployed 5 = Retired 6 = Other -1 = Participant declines to answer | List of values | ||||
| 2692 | Baseline survey | income | 13. What is your annual household income range? | 1 = <15,000 euro 2 = 15,000-35,000 euro 3 = 35,000-55,000 euro 4 = >55,000 euro -1 = Participant declines to answer | List of values | ||||
| 2693 | Baseline survey | medicalcard | 14. At the time of your diagnosis, did you have a medical card? | 1 = Yes 0 = No | List of values | ||||
| 2694 | Baseline survey | privhealthins | 15. At the time of your diagnosis, did you have private health insurance? | 1 = Yes 0 = No | List of values | ||||
| 2714 | TURP | TurpYN | TURP | 0 = No 1 = Yes | Drop-down list | ||||
| 2715 | TURP | TurpDt | Date of TURP | NA | Date | ||||
| 2716 | TURP | TurpPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list | ||||
| 2717 | TURP | TurpPSA | PSA level | NA | Drop-down list | ||||
| 2718 | TURP | TurpClin | Surgeon | NA | Search list | ||||
| 2719 | TURP | TurpInst | Treatment Institute | NA | Drop-down list | ||||
| 2720 | TURP | TurpClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2721 | TURP | TurpTrialNumber | Trial Number | NA | Text | ||||
| 2722 | TURP | TurpTumourPresYN | Presence of Tumour | 0 = No 1 = Yes 9 = Not Known | Drop-down list | ||||
| 2723 | TURP | TurpHistType | Histology 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2724 | TURP | OtherHistoTypeCode | Histology Type Other | NA | Text | ||||
| 2725 | TURP | TurpHistType2 | Histology 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2726 | TURP | OtherHistoTypeCode2 | Histology 2 Type Other | NA | Text | ||||
| 2727 | TURP | TurpHistType3 | Histology 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list | ||||
| 2728 | TURP | OtherHistoTypeCode3 | Histology 3 Type Other | NA | Text | ||||
| 2729 | TURP | TurpGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2730 | TURP | TurpGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list | ||||
| 2731 | TURP | TurpGleSum | = | NA | Integer | ||||
| 2739 | WWAS | WwAsYN | Watchful waiting/active surveillance | 0 = No 1 = Yes 9 = Not known | Drop-down list | ||||
| 2740 | WWAS | WwAsDt | Date of Watchful waiting/active surveillance | NA | Date | ||||
| 2741 | WWAS | WWASType | Surveillance type | 1 = Active surveillance 2 = Watchful waiting | Drop-down list | ||||
| 2742 | WWAS | AsClinType | Clinician Monitoring Patient | 1 = Specialist 2 = GP 3 = Both (Specialist + GP) | Drop-down list | ||||
| 2743 | WWAS | AsClin | Clinician | NA | Search list | ||||
| 2744 | WWAS | AsInst | Treatment Institute | NA | Drop-down list | ||||
| 2745 | WWAS | AsClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list | ||||
| 2746 | WWAS | AsTrialNumber | Trial Number | NA | Text | ||||
| 2747 | WWAS | TransWW | Transitioned to Watchful Waiting? | NA | Boolean | ||||
| 2748 | Follow-up 6 months survey | EPICSurveyMode | Survey Mode | 1 = Phone 2 = Email 3 = Mail 4 = Site | List of values | ||||
| 2749 | Follow-up 6 months survey | DtBaselineComplete | Date Completed | NA | Date | ||||
| 2750 | Follow-up 6 months survey | nationality | 1. What is your country of birth? | 1 = Ireland 2 = Other -1 = Participant declines to answer | List of values | ||||
| 2751 | Follow-up 6 months survey | nationother | Other nationality: | NA | Text | ||||
| 2752 | Follow-up 6 months survey | ethnicity | 2. What is your ethnicity? | 1 = Irish 2 = Irish Traveller 3 = Roma 4 = Any other White background 5 = African 6 = Any other Black background 7 = Chinese 8 = Indian/Pakistani/Bangladeshi 9 = Any other Asian background 10 = Arabic 11 = Mixed, write in description 12 = Other, write in description | Drop-down list | ||||
| 2753 | Follow-up 6 months survey | maritalstatus | ​3. What is your marital status? | 1 = Single 2 = Married (including cohabiting, civil partnership) 3 = Separated 4 = Divorced 5 = Widowed -1 = Participant declines to answer | List of values | ||||
| 2754 | Follow-up 6 months survey | children | 4. Do you have children? | 1 = Yes 0 = No | List of values | ||||
| 2755 | Follow-up 6 months survey | nchildren | 5. Number of children | NA | Integer | ||||
| 2756 | Follow-up 6 months survey | nchildren18 | ​6. Number of children under 18 | NA | Integer | ||||
| 2757 | Follow-up 6 months survey | currlivingarrange | 7. What is your current living arrangement? | 1 = Alone 2 = With spouse or partner (with/without children) 3 = With other family 4 = Assisted living 5 = Nursing home 6 = Other -1 = Participant declines to answer | List of values | ||||
| 2758 | Follow-up 6 months survey | livingother | Other living arrangement: | NA | Text | ||||
| 2759 | Follow-up 6 months survey | counton | 8. How many people are so close to you that you can count on them if you have serious personal problems? | 1 = None 2 = 1 or 2 3 = 3 to 5 4 = More than 5 -1 = Participant declines to answer | List of values | ||||
| 2760 | Follow-up 6 months survey | friendlyinterest | 9. How much friendly interest do people take in what you are doing? | 1 = None 2 = Little 3 = Some 4 = A lot 5 = Uncertain -1 = Participant declines to answer | List of values | ||||
| 2761 | Follow-up 6 months survey | currlivingplace | 10. Would you describe the place where you currently live as being? | 1 = In Dublin city or county 2 = In a city (other than Dublin) 3 = In a town (1500+ people) 4 = In a village 5 = In open country -1 = Participant declines to answer | List of values | ||||
| 2762 | Follow-up 6 months survey | educationcomp | 11. What is the highest level of education you have completed? | 1 = No formal education 2 = Primary school 3 = Secondary school 4 = Third level -1 = Participant declines to answer | List of values | ||||
| 2763 | Follow-up 6 months survey | occupation | 12. What is your occupational status? | 1 = Employed, full-time 2 = Employed, part-time 3 = Self-employed 4 = Unemployed 5 = Retired 6 = Other -1 = Participant declines to answer | List of values | ||||
| 2764 | Follow-up 6 months survey | income | 13. What is your annual household income range? | 1 = <15,000 euro 2 = 15,000-35,000 euro 3 = 35,000-55,000 euro 4 = >55,000 euro -1 = Participant declines to answer | List of values | ||||
| 2765 | Follow-up 6 months survey | medicalcard | 14. At the time of your diagnosis, did you have a medical card? | 1 = Yes 0 = No | List of values | ||||
| 2766 | Follow-up 6 months survey | privhealthins | 15. At the time of your diagnosis, did you have private health insurance? | 1 = Yes 0 = No | List of values | ||||
| 2767 | Follow-up 6 months survey | cost1 | I know that I have enough money in savings, retirement, or assets to cover the costs of my treatment. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2768 | Follow-up 6 months survey | cost2 | My out-of-pocket medical expenses are more than I thought they would be. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2769 | Follow-up 6 months survey | cost3 | I worry about the financial problems I will have in the future as a result of my illness or treatment. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2770 | Follow-up 6 months survey | cost4 | I feel I have no choice about the amount of money I spend on care. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2771 | Follow-up 6 months survey | cost5 | I am frustrated that I cannot work or contribute as much as I usually do. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2772 | Follow-up 6 months survey | cost6 | I am satisfied with my current financial situation. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2773 | Follow-up 6 months survey | cost7 | I am able to meet my monthly expenses. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2774 | Follow-up 6 months survey | cost8 | I feel financially stressed. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2775 | Follow-up 6 months survey | cost9 | I am concerned about keeping my job and income, including work at home. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2776 | Follow-up 6 months survey | cost10 | My cancer or treatment has reduced my satisfaction with my present financial situation. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2777 | Follow-up 6 months survey | cost11 | I feel in control of my financial situation. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2778 | Follow-up 6 months survey | cost12 | My illness has been a financial hardship to my family and me. | 1 = Not at all 2 = A little bit 3 = Somewhat 4 = Quite a bit 5 = Very much -1 = Participant declines to answer | List of values | ||||
| 2779 | Follow-up 6 months survey | SDMCondition | Please indicate which medical decision regarding prostate cancer treatment was made. | NA | Text | ||||
| 2780 | Follow-up 6 months survey | SDM1 | My physician made clear that a decision needed to be made. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2781 | Follow-up 6 months survey | SDM2 | My physician wanted to know exactly how I wanted to be involved in making the decision. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2782 | Follow-up 6 months survey | SDM3 | My physician told me that there are different options for treating my medical condition. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2783 | Follow-up 6 months survey | SDM4 | My physician referred me to other physicians from other disciplines. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2784 | Follow-up 6 months survey | SDM5 | My physician precisely explained the advantages and disadvantages of the treatment options. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2785 | Follow-up 6 months survey | SDM6 | My physician helped me understand all the information. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2786 | Follow-up 6 months survey | SDM7 | My physician asked me which treatment option I prefer. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2787 | Follow-up 6 months survey | SDM8 | My physician and I thoroughly weighed the different treatment options. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2788 | Follow-up 6 months survey | SDM9 | My physician and I selected a treatment option together. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2789 | Follow-up 6 months survey | SDM10 | My physician and I reached an agreement on how to proceed. | 1 = Completely disagree 2 = Strongly disagree 3 = Somewhat disagree 4 = Somewhat agree 5 = Strongly agree 6 = Completely agree -1 = Participant declines to answer | List of values | ||||
| 2790 | Follow-up 6 months survey | supportneeds1 | Pain. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2791 | Follow-up 6 months survey | supportneeds2 | Lack of energy/tiredness. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2792 | Follow-up 6 months survey | supportneeds3 | Feeling unwell a lot of the time. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2793 | Follow-up 6 months survey | supportneeds4 | Work around the home. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2794 | Follow-up 6 months survey | supportneeds5 | Not being able to do the things you used to do. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2795 | Follow-up 6 months survey | supportneeds6 | Anxiety. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2796 | Follow-up 6 months survey | supportneeds7 | Feeling down or depressed. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2797 | Follow-up 6 months survey | supportneeds8 | Feelings of sadness. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2798 | Follow-up 6 months survey | supportneeds9 | Fears about the cancer spreading. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2799 | Follow-up 6 months survey | supportneeds10 | Worry that the results of treatment are beyond your control. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2800 | Follow-up 6 months survey | supportneeds11 | Uncertainty about the future. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2801 | Follow-up 6 months survey | supportneeds12 | Learning to feel in control of your situation. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2802 | Follow-up 6 months survey | supportneeds13 | Keeping a positive outlook. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2803 | Follow-up 6 months survey | supportneeds14 | Feelings about death and dying. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2804 | Follow-up 6 months survey | supportneeds15 | Changes in sexual feelings. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2805 | Follow-up 6 months survey | supportneeds16 | Changes in your sexual relationships. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2806 | Follow-up 6 months survey | supportneeds17 | Concerns about the worries of those close to you. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2807 | Follow-up 6 months survey | supportneeds18 | More choice about which cancer specialists to see. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2808 | Follow-up 6 months survey | supportneeds19 | More choice about which hospital you attend. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2809 | Follow-up 6 months survey | supportneeds20 | Reassurance by medical staff that the way you feel is normal. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2810 | Follow-up 6 months survey | supportneeds21 | Hospital staff attending promptly to your physical needs. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2811 | Follow-up 6 months survey | supportneeds22 | Hospital staff acknowledging and showing sensitivity to your feelings and emotional needs. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2812 | Follow-up 6 months survey | supportneeds23 | Being given written information about the important aspects of your care. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2813 | Follow-up 6 months survey | supportneeds24 | Being given information (written, diagrams, drawings) about aspects of managing your illness and side-effects at home. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2814 | Follow-up 6 months survey | supportneeds25 | Being given explanations of those tests for which you would like explanations. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2815 | Follow-up 6 months survey | supportneeds26 | Being adequately informed about the benefits and side-effects of treatments before you choose to have them. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2816 | Follow-up 6 months survey | supportneeds27 | Being informed about your test results as soon as feasible. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2817 | Follow-up 6 months survey | supportneeds28 | Being informed about cancer which is under control or diminishing (that is remission). | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2818 | Follow-up 6 months survey | supportneeds29 | Being informed about things you can do to help yourself to get well. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2819 | Follow-up 6 months survey | supportneeds30 | Having access to professional counselling (e.g | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2820 | Follow-up 6 months survey | supportneeds31 | Being given information about sexual relationships. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2821 | Follow-up 6 months survey | supportneeds32 | Being treated like a person, not just another case. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2822 | Follow-up 6 months survey | supportneeds33 | Being treated in a hospital or clinic that is as physically pleasant as possible. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2823 | Follow-up 6 months survey | supportneeds34 | Having one member of hospital staff with whom you can talk to about all aspects of your condition, treatment and follow-up. | 1 = I did not need help 2 = I received help and now have no need 3 = I still have this need -1 = Participant declines to answer | List of values | ||||
| 2824 | Follow-up 6 months survey | EPIC26Qu1 | 1. Over the past 4 weeks, how often have you leaked urine? | 1 = More than once a day 2 = About once a day 3 = More than once a week 4 = About once a week 5 = Rarely or never -1 = Participant declines to answer | List of values | ||||
| 2825 | Follow-up 6 months survey | EPIC26Qu2 | 2. Which of the following best describes your urinary control during the last 4 weeks? | 1 = No urinary control whatsoever 2 = Frequent dribbling 3 = Occasional dribbling 4 = Total control -1 = Participant declines to answer | List of values | ||||
| 2826 | Follow-up 6 months survey | EPIC26Qu3 | 3. How many pads or adult diapers per day did you usually use to control leakage during the last 4 weeks? | 1 = None 2 = 1 pad per day 3 = 2 pads per day 4 = 3 or more pads per day -1 = Participant declines to answer | List of values | ||||
| 2827 | Follow-up 6 months survey | EPIC26Qu4A | A. Dripping or leaking urine | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2828 | Follow-up 6 months survey | EPIC26Qu4B | B. Pain or burning on urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2829 | Follow-up 6 months survey | EPIC26Qu4C | C. Bleeding with urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2830 | Follow-up 6 months survey | EPIC26Qu4D | D. Weak urine stream or incomplete emptying | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2831 | Follow-up 6 months survey | EPIC26Qu4E | E. Need to urinate frequently during the day | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2832 | Follow-up 6 months survey | EPIC26Qu4 | 4. How big a problem, if any, has each of the following been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2833 | Follow-up 6 months survey | EPIC26Qu5 | 5. Overall, how big a problem has your urinary function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2834 | Follow-up 6 months survey | EPIC26Qu6A | A. Urgency to have a bowel movement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2835 | Follow-up 6 months survey | EPIC26Qu6B | B. Increased frequency of bowel movements | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2836 | Follow-up 6 months survey | EPIC26Qu6C | C. Losing control of your stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2837 | Follow-up 6 months survey | EPIC26Qu6D | D. Bloody stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2838 | Follow-up 6 months survey | EPIC26Qu6E | E. Abdominal/ Pelvic/Rectal pain | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2839 | Follow-up 6 months survey | v9EPIC26Qu6 | 6. How big a problem, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2840 | Follow-up 6 months survey | EPIC26Qu7 | 7. Overall, how big a problem have your bowel habits been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2841 | Follow-up 6 months survey | EPIC26Qu8A | A. Your ability to have an erection? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2842 | Follow-up 6 months survey | EPIC26Qu8B | B. Your ability to reach orgasm (climax)? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2843 | Follow-up 6 months survey | EPIC26Qu8 | 8. How would you rate each of the following during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | Group of Lists | ||||
| 2844 | Follow-up 6 months survey | EPIC26Qu9 | 9. How would you describe the usual QUALITY of your erections during the last 4 weeks? | 1 = None at all 2 = Not firm enough for any sexual activity 3 = Firm enough for masturbation and foreplay only 4 = Firm enough for intercourse -1 = Participant declines to answer | List of values | ||||
| 2845 | Follow-up 6 months survey | EPIC26Qu10 | 10. How would you describe the FREQUENCY of your erections during the last 4 weeks? | 1 = I NEVER had an erection when I wanted one 2 = I had an erection LESS THAN HALF the time I wanted one 3 = I had an erection ABOUT HALF the time I wanted one 4 = I had an erection MORE THAN HALF the time I wanted one 5 = I had an erection WHENEVER I wanted one -1 = Participant declines to answer | List of values | ||||
| 2846 | Follow-up 6 months survey | EPIC26Qu11 | 11. Overall, how would you rate your ability to function sexually during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2847 | Follow-up 6 months survey | EPIC26Qu12 | 12. Overall, how big a problem has your sexual function or lack of sexual function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2848 | Follow-up 6 months survey | EPIC26Qu13A | A. Hot flashes | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2849 | Follow-up 6 months survey | EPIC26Qu13B | B. Breast tenderness/enlargement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2850 | Follow-up 6 months survey | EPIC26Qu13C | C. Feeling depressed | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2851 | Follow-up 6 months survey | EPIC26Qu13D | D. Lack of energy | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2852 | Follow-up 6 months survey | EPIC26Qu13E | E. Change in body weight | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2853 | Follow-up 6 months survey | EPIC26Qu13 | 13. How big a problem during the last 4 weeks, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2854 | Follow-up 6 months survey | LIBIDOQu1 | 1. During the last 4 weeks, to what extent were you interested in sex? | 0 = Not at all 1 = A little 2 = Quite a bit 3 = Very much -1 = Participant declines to answer | List of values | ||||
| 2855 | Follow-up 6 months survey | LIBIDOQu2 | 2. Have you used any medications or devices to aid or improve erections? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2856 | Follow-up 6 months survey | LIBIDOQu3A | A. Viagra or another pill to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2857 | Follow-up 6 months survey | LIBIDOQu3B | B. Muse (intraâ€Âurethral alprostadil suppository) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2858 | Follow-up 6 months survey | LIBIDOQu3C | C. Penile injection therapy (such as caverject) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2859 | Follow-up 6 months survey | LIBIDOQu3D | D. Vacuum erection device (such as erect-aid) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2860 | Follow-up 6 months survey | LIBIDOQu3E | E. Medication/device other than those explicitly listed to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2861 | Follow-up 6 months survey | LIBIDOQu3 | 3. Please indicate whether or not you have tried or currently use: | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | Group of Lists | ||||
| 2862 | Follow-up 12 months survey | eortc31 | 31. Have you had to urinate frequently during the day? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2863 | Follow-up 12 months survey | eortc32 | 32. Have you had to urinate frequently at night? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2864 | Follow-up 12 months survey | eortc33 | 33. When you felt the urge to pass urine, did you have to hurry to get to the toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2865 | Follow-up 12 months survey | eortc34 | 34. Was it difficult for you to get enough sleep, because you needed to get up frequently at night to urinate? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2866 | Follow-up 12 months survey | eortc35 | 35. Have you had difficulty going out of the house because you needed to be close to a toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2867 | Follow-up 12 months survey | eortc_pr25_group1 | During the past week: (Please select one on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2868 | Follow-up 12 months survey | eortc36 | 36. Have you had any unintentional release (leakage) of urine? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2869 | Follow-up 12 months survey | eortc37 | 37. Did you have pain when you urinated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2870 | Follow-up 12 months survey | eortc38 | 38. Answer this question only if you wear an incontinence aid: Has wearing an incontinence aid been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2871 | Follow-up 12 months survey | eortc39 | 39. Have your daily activities been limited by your urinary problems? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2872 | Follow-up 12 months survey | eortc40 | 40. Have your daily activities been limited by your bowel problems? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2873 | Follow-up 12 months survey | eortc41 | 41. Have you had any unintentional release (leakage) of stools? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2874 | Follow-up 12 months survey | eortc42 | 42. Have you had blood in your stools? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2875 | Follow-up 12 months survey | eortc43 | 43. Did you have a bloated feeling in your abdomen? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2876 | Follow-up 12 months survey | eortc44 | 44. Did you have hot flushes? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2877 | Follow-up 12 months survey | eortc45 | 45. Have you had sore or enlarged nipples or breasts? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2878 | Follow-up 12 months survey | eortc46 | 46. Have you had swelling in your legs or ankles? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2879 | Follow-up 12 months survey | eortc1 | 1. Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or suitcase? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2880 | Follow-up 12 months survey | eortc47 | 47. Has weight loss been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2881 | Follow-up 12 months survey | eortc48 | 48. Has weight gain been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2882 | Follow-up 12 months survey | eortc2 | 2. Do you have any trouble taking a long walk? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2883 | Follow-up 12 months survey | eortc3 | 3. Do you have any trouble taking a short walk outside of the house? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2884 | Follow-up 12 months survey | eortc49 | 49. Have you felt less masculine as a result of your illness or treatment? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2885 | Follow-up 12 months survey | eortc50 | 50. To what extent were you interested in sex? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2886 | Follow-up 12 months survey | eortc4 | 4. Do you need to stay in bed or a chair during the day? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2887 | Follow-up 12 months survey | eortc5 | 5. Do you need help with eating, dressing, washing yourself or using the toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2888 | Follow-up 12 months survey | eortc51 | 51. To what extent were you sexually active (with or without intercourse)? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2889 | Follow-up 12 months survey | eortc_pr25_group2 | During the past 4 weeks: (Please select one on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2890 | Follow-up 12 months survey | eortc_c30_group1 | Please tell us more about your quality of life in general | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2891 | Follow-up 12 months survey | eortc52 | 52. To what extent was sex enjoyable for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2892 | Follow-up 12 months survey | eortc6 | 6. Were you limited in doing either your work or other daily activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2893 | Follow-up 12 months survey | eortc7 | 7. Were you limited in pursuing your hobbies or other leisure time activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2894 | Follow-up 12 months survey | eortc53 | 53. Did you have difficulty getting or maintaining an erection? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2895 | Follow-up 12 months survey | eortc54 | 54. Did you have ejaculation problems (eg dry ejaculation)? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2896 | Follow-up 12 months survey | eortc8 | 8. Were you short of breath? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2897 | Follow-up 12 months survey | eortc9 | 9. Have you had pain? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2898 | Follow-up 12 months survey | eortc55 | 55. Have you felt uncomfortable about being sexually intimate? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2899 | Follow-up 12 months survey | eortc10 | 10. Did you need to rest? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2900 | Follow-up 12 months survey | eortc11 | 11. Have you had trouble sleeping? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2901 | Follow-up 12 months survey | eortc12 | 12. Have you felt weak? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2902 | Follow-up 12 months survey | eortc_c30_group2 | During the past week: | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2903 | Follow-up 12 months survey | eortc_pr25_group3 | Please answer the next four questions only if you have been sexually active over the last 4 weeks: (Please tick one box on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists | ||||
| 2904 | Follow-up 12 months survey | eortc13 | 13. Have you lacked appetite? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2905 | Follow-up 12 months survey | eortc14 | 14. Have you felt nauseated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2906 | Follow-up 12 months survey | eortc15 | 15. Have you vomited? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2907 | Follow-up 12 months survey | eortc16 | 16. Have you been constipated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2908 | Follow-up 12 months survey | eortc17 | 17. Have you had diarrhoea? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2909 | Follow-up 12 months survey | eortc18 | 18. Were you tired? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2910 | Follow-up 12 months survey | eortc19 | 19. Did pain interfere with your daily activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2911 | Follow-up 12 months survey | eortc20 | 20. Have you had difficulty in concentrating on things like reading a newspaper or watching television? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2912 | Follow-up 12 months survey | eortc21 | 21. Did you feel tense? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2913 | Follow-up 12 months survey | eortc22 | 22. Did you worry? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2914 | Follow-up 12 months survey | eortc23 | 23. Did you feel irritable? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2915 | Follow-up 12 months survey | eortc24 | 24. Did you feel depressed? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2916 | Follow-up 12 months survey | eortc25 | 25. Have you had difficulty remembering things? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2917 | Follow-up 12 months survey | eortc26 | 26. Has your physical condition or medical treatment interfered with your family life? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2918 | Follow-up 12 months survey | eortc27 | 27. Has your physical condition or medical treatment interfered with your social activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2919 | Follow-up 12 months survey | eortc28 | 28. Has your physical condition or medical treatment caused your financial difficulties? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values | ||||
| 2920 | Follow-up 12 months survey | eortc29 | 29. How would you rate your overall health during the past week? | 1 = 1 (Very poor) 2 = 2 3 = 3 4 = 4 5 = 5 6 = 6 7 = 7 (Excellent) -1 = Participant declines to answer | List of values | ||||
| 2921 | Follow-up 12 months survey | eortc30 | 30. How would you rate your overall quality of life during the past week? | 1 = 1 (Very poor) 2 = 2 3 = 3 4 = 4 5 = 5 6 = 6 7 = 7 (Excellent) -1 = Participant declines to answer | List of values | ||||
| 2922 | Follow-up 12 months survey | EPIC26Qu1 | 1. Over the past 4 weeks, how often have you leaked urine? | 1 = More than once a day 2 = About once a day 3 = More than once a week 4 = About once a week 5 = Rarely or never -1 = Participant declines to answer | List of values | ||||
| 2923 | Follow-up 12 months survey | EPIC26Qu2 | 2. Which of the following best describes your urinary control during the last 4 weeks? | 1 = No urinary control whatsoever 2 = Frequent dribbling 3 = Occasional dribbling 4 = Total control -1 = Participant declines to answer | List of values | ||||
| 2924 | Follow-up 12 months survey | EPIC26Qu3 | 3. How many pads or adult diapers per day did you usually use to control leakage during the last 4 weeks? | 1 = None 2 = 1 pad per day 3 = 2 pads per day 4 = 3 or more pads per day -1 = Participant declines to answer | List of values | ||||
| 2925 | Follow-up 12 months survey | EPIC26Qu4A | A. Dripping or leaking urine | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2926 | Follow-up 12 months survey | EPIC26Qu4B | B. Pain or burning on urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2927 | Follow-up 12 months survey | EPIC26Qu4C | C. Bleeding with urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2928 | Follow-up 12 months survey | EPIC26Qu4D | D. Weak urine stream or incomplete emptying | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2929 | Follow-up 12 months survey | EPIC26Qu4E | E. Need to urinate frequently during the day | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2930 | Follow-up 12 months survey | EPIC26Qu4 | 4. How big a problem, if any, has each of the following been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2931 | Follow-up 12 months survey | EPIC26Qu5 | 5. Overall, how big a problem has your urinary function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2932 | Follow-up 12 months survey | EPIC26Qu6A | A. Urgency to have a bowel movement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2933 | Follow-up 12 months survey | EPIC26Qu6B | B. Increased frequency of bowel movements | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2934 | Follow-up 12 months survey | EPIC26Qu6C | C. Losing control of your stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2935 | Follow-up 12 months survey | EPIC26Qu6D | D. Bloody stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2936 | Follow-up 12 months survey | EPIC26Qu6E | E. Abdominal/ Pelvic/Rectal pain | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2937 | Follow-up 12 months survey | v9EPIC26Qu6 | 6. How big a problem, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2938 | Follow-up 12 months survey | EPIC26Qu7 | 7. Overall, how big a problem have your bowel habits been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2939 | Follow-up 12 months survey | EPIC26Qu8A | A. Your ability to have an erection? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2940 | Follow-up 12 months survey | EPIC26Qu8B | B. Your ability to reach orgasm (climax)? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2941 | Follow-up 12 months survey | EPIC26Qu8 | 8. How would you rate each of the following during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | Group of Lists | ||||
| 2942 | Follow-up 12 months survey | EPIC26Qu9 | 9. How would you describe the usual QUALITY of your erections during the last 4 weeks? | 1 = None at all 2 = Not firm enough for any sexual activity 3 = Firm enough for masturbation and foreplay only 4 = Firm enough for intercourse -1 = Participant declines to answer | List of values | ||||
| 2943 | Follow-up 12 months survey | EPIC26Qu10 | 10. How would you describe the FREQUENCY of your erections during the last 4 weeks? | 1 = I NEVER had an erection when I wanted one 2 = I had an erection LESS THAN HALF the time I wanted one 3 = I had an erection ABOUT HALF the time I wanted one 4 = I had an erection MORE THAN HALF the time I wanted one 5 = I had an erection WHENEVER I wanted one -1 = Participant declines to answer | List of values | ||||
| 2944 | Follow-up 12 months survey | EPIC26Qu11 | 11. Overall, how would you rate your ability to function sexually during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values | ||||
| 2945 | Follow-up 12 months survey | EPIC26Qu12 | 12. Overall, how big a problem has your sexual function or lack of sexual function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2946 | Follow-up 12 months survey | EPIC26Qu13A | A. Hot flashes | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2947 | Follow-up 12 months survey | EPIC26Qu13B | B. Breast tenderness/enlargement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2948 | Follow-up 12 months survey | EPIC26Qu13C | C. Feeling depressed | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2949 | Follow-up 12 months survey | EPIC26Qu13D | D. Lack of energy | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2950 | Follow-up 12 months survey | EPIC26Qu13E | E. Change in body weight | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values | ||||
| 2951 | Follow-up 12 months survey | EPIC26Qu13 | 13. How big a problem during the last 4 weeks, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists | ||||
| 2952 | Follow-up 12 months survey | LIBIDOQu1 | 1. During the last 4 weeks, to what extent were you interested in sex? | 0 = Not at all 1 = A little 2 = Quite a bit 3 = Very much -1 = Participant declines to answer | List of values | ||||
| 2953 | Follow-up 12 months survey | LIBIDOQu2 | 2. Have you used any medications or devices to aid or improve erections? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2954 | Follow-up 12 months survey | LIBIDOQu3A | A. Viagra or another pill to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2955 | Follow-up 12 months survey | LIBIDOQu3B | B. Muse (intraâ€Âurethral alprostadil suppository) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2956 | Follow-up 12 months survey | LIBIDOQu3C | C. Penile injection therapy (such as caverject) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2957 | Follow-up 12 months survey | LIBIDOQu3D | D. Vacuum erection device (such as erect-aid) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2958 | Follow-up 12 months survey | LIBIDOQu3E | E. Medication/device other than those explicitly listed to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values | ||||
| 2959 | Follow-up 12 months survey | LIBIDOQu3 | 3. Please indicate whether or not you have tried or currently use: | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | Group of Lists | ||||
| 2960 | Follow-up 12 months survey | ComorbQu1 | A. Heart disease (for example angina, heart attack, or heart failure) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2961 | Follow-up 12 months survey | ComorbQu2 | B. High blood pressure | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2962 | Follow-up 12 months survey | ComorbQu3 | C. Leg pain when walking due to poor circulation | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2963 | Follow-up 12 months survey | ComorbQu4 | D. Lung disease (for example asthma, chronic bronchitis, or emphysema) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2964 | Follow-up 12 months survey | ComorbQu5 | E. Diabetes | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2965 | Follow-up 12 months survey | ComorbQu6 | F. Kidney disease | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2966 | Follow-up 12 months survey | ComorbQu7 | G. Liver disease | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2967 | Follow-up 12 months survey | ComorbQu8 | H. Problems caused by stroke | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2968 | Follow-up 12 months survey | ComorbQu9 | I. Disease of the nervous system (for example Parkinson’s disease or multiple sclerosis) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2969 | Follow-up 12 months survey | ComorbQu10 | J. Malignant primary cancer other than prostate cancer within the last five years | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2970 | Follow-up 12 months survey | ComorbQu11 | K. Depression | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2971 | Follow-up 12 months survey | ComorbQu12 | L. Arthritis | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2972 | Follow-up 12 months survey | ComorbQu0 | M. Do you have any diseases other than those listed above? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values | ||||
| 2973 | Follow-up 12 months survey | ComorbQu | 1. Have you been told by a doctor that you have any of the following? | 0 = No 1 = Yes -1 = Participant declines to answer | Group of Lists | ||||
| 2974 | Follow-up 12 months survey | EPICSurveyMode | Survey Mode | 1 = Phone 2 = Email 3 = Mail 4 = Site | List of values | ||||
| 2975 | Follow-up 12 months survey | DtBaselineComplete | Date Completed | NA | Date | ||||
| 2976 | Follow-up 12 months survey | nationality | 1. What is your country of birth? | 1 = Ireland 2 = Other -1 = Participant declines to answer | List of values | ||||
| 2977 | Follow-up 12 months survey | nationother | Other nationality: | NA | Text | ||||
| 2978 | Follow-up 12 months survey | ethnicity | 2. What is your ethnicity? | 1 = Irish 2 = Irish Traveller 3 = Roma 4 = Any other White background 5 = African 6 = Any other Black background 7 = Chinese 8 = Indian/Pakistani/Bangladeshi 9 = Any other Asian background 10 = Arabic 11 = Mixed, write in description 12 = Other, write in description | Drop-down list | ||||
| 2979 | Follow-up 12 months survey | maritalstatus | ​3. What is your marital status? | 1 = Single 2 = Married (including cohabiting, civil partnership) 3 = Separated 4 = Divorced 5 = Widowed -1 = Participant declines to answer | List of values | ||||
| 2980 | Follow-up 12 months survey | children | 4. Do you have children? | 1 = Yes 0 = No | List of values | ||||
| 2981 | Follow-up 12 months survey | nchildren | 5. Number of children | NA | Integer | ||||
| 2982 | Follow-up 12 months survey | nchildren18 | ​6. Number of children under 18 | NA | Integer | ||||
| 2983 | Follow-up 12 months survey | currlivingarrange | 7. What is your current living arrangement? | 1 = Alone 2 = With spouse or partner (with/without children) 3 = With other family 4 = Assisted living 5 = Nursing home 6 = Other -1 = Participant declines to answer | List of values | ||||
| 2984 | Follow-up 12 months survey | livingother | Other living arrangement: | NA | Text | ||||
| 2985 | Follow-up 12 months survey | counton | 8. How many people are so close to you that you can count on them if you have serious personal problems? | 1 = None 2 = 1 or 2 3 = 3 to 5 4 = More than 5 -1 = Participant declines to answer | List of values | ||||
| 2986 | Follow-up 12 months survey | friendlyinterest | 9. How much friendly interest do people take in what you are doing? | 1 = None 2 = Little 3 = Some 4 = A lot 5 = Uncertain -1 = Participant declines to answer | List of values | ||||
| 2987 | Follow-up 12 months survey | currlivingplace | 10. Would you describe the place where you currently live as being? | 1 = In Dublin city or county 2 = In a city (other than Dublin) 3 = In a town (1500+ people) 4 = In a village 5 = In open country -1 = Participant declines to answer | List of values | ||||
| 2988 | Follow-up 12 months survey | educationcomp | 11. What is the highest level of education you have completed? | 1 = No formal education 2 = Primary school 3 = Secondary school 4 = Third level -1 = Participant declines to answer | List of values | ||||
| 2989 | Follow-up 12 months survey | occupation | 12. What is your occupational status? | 1 = Employed, full-time 2 = Employed, part-time 3 = Self-employed 4 = Unemployed 5 = Retired 6 = Other -1 = Participant declines to answer | List of values | ||||
| 2990 | Follow-up 12 months survey | income | 13. What is your annual household income range? | 1 = <15,000 euro 2 = 15,000-35,000 euro 3 = 35,000-55,000 euro 4 = >55,000 euro -1 = Participant declines to answer | List of values | ||||
| 2991 | Follow-up 12 months survey | medicalcard | 14. At the time of your diagnosis, did you have a medical card? | 1 = Yes 0 = No | List of values | ||||
| 2992 | Follow-up 12 months survey | privhealthins | 15. At the time of your diagnosis, did you have private health insurance? | 1 = Yes 0 = No | List of values |