PPI

Public and patient involvement is a valuable component of the IPCOR project. Patient views are incorporated through the Lived Experiences Advisory Panel (LEAP). This patient panel has provided valuable insights for improving project processes and understanding what questions are important to affected men.

Patient Engagement

LEAP is a group of about 10 men who have previously been diagnosed with prostate cancer, willing to share their experiences and contribute to the development process. The LEAP group was consulted on the wording of all patient communication used in IPCOR as well as the PROMs tools used to capture the quality of life and treatment experience of the men.

The LEAP group gave many valuable insights on appropriate wording, timing of taking consent and the importance of understanding the socioeconomic impact of prostate cancer.  The IPCOR team will continue to consult with them to better understand the participant perspective while streamlining processes and developing research questions.

Public Engagement

IPCOR also engages with partners and caregivers of men with prostate cancer to understand the effect of this disease on households, in terms of mental and physical wellbeing, financial effects and shared decision making.

If you’d like to be notified of upcoming events you can Contact Us or subscribe to our social media channels.