Welcome to IPCOR
What is the Irish Prostate Cancer Outcomes Research programme?
IPCOR created a national prostate cancer registry in Ireland. The registry contains data on 6816 men who were diagnosed with prostate cancer and treated in 16 hospitals around Ireland. The registry collected data from February 2016 to January 2020.
The registry collected men’s clinical data such as information about their diagnosis, their biopsy, treatments they had and followed the men for up to 3 years to record how they were doing. Some of the men were asked to complete patient reported outcomes measurements (PROMs), these are questionnaires which aimed to find out about men’s quality of life and if they experienced any side effects from their prostate cancer treatments.
Once the project had collected all the data, the complete de-identified dataset was transferred to University College Dublin. The dataset is being used by the IPCOR team to answer many different questions and will tell us about men who are diagnosed with prostate cancer, how they are treated, how those treatments affect them and how they do in the longer term. LEAP, a “Lived Experience Advisory Panel” of men who had and were treated for prostate cancer, work as part of the IPCOR team to advise the researchers on the issues that are most important to men. We aim to use this information and the data to work with doctors, hospitals and policy makers to improve prostate cancer care for men in Ireland.
Who carried out the IPCOR programme?
A research partnership of Clinical Research Development Ireland, the National Cancer Registry Ireland and Health Research Board Clinical Research Facility Galway worked together to set up the registry with funding of €1.75 million from Movember, in partnership with the Irish Cancer Society. When the registry stopped collecting data, the de-identified data was transferred from Clinical Research Development Ireland to University College Dublin where it is currently being analysed by the IPCOR team.
If you were diagnosed with prostate cancer between 2016 and 2019, your de-identified information may be included in the IPCOR dataset. If you would like to request removal from the dataset, please click here.
Find out more about IPCOR