IPCOR 1 Data Dictionary

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Data Dictionary Identification	Form	Variable ID	Column Name	Description/Label	Allowed Values/Value Range	Data Type	Notes/Comments
1001	DEMOGRAPHY	P_ID	Patient ID	Patient ID number which links all their information.		Unique text
1002	DEMOGRAPHY	dob	Date Of Birth	Patient's date of birth	Year - 1901-1985 Blank	Date (Short Date Format)	all dates are in 01/01/YYYY format
1003	DEMOGRAPHY	smoker_status	Smoking Status	Smoking status at diagnosis	Never Ex Current Unknown NA	Short Text
1004	DEMOGRAPHY	occupational_status	Occupational Status	Occupation status of the patient	Retired Unemployed Employed Self-Employed Religious Unknown NA	Short Text
1005	DEMOGRAPHY	marital_stat	Marital Status	Marital status at time of diagnosis	Married Single Divorced Widowed Separated Unknown NA	Short Text
1006	DEMOGRAPHY	vital_status	Vital Status	Vital status	Alive Dead Unknown NA	Short Text
1007	DEMOGRAPHY	DOD_recorded	Date Of Death Recorded	Date of death of Patient recorded	FALSE TRUE	Boolean TRUE / FALSE
1008	DEMOGRAPHY	dod	Date Of Death	Date of death of Patient	Year - 2016-2019 NA	Date (Short Date Format)	all dates are in 01/01/YYYY format
1009	DEMOGRAPHY	age_death	Age of Death	Age of death of Patient	50-97 NA	Long Integer
1010	DEMOGRAPHY	family_member	Family Member	First degree family member diagnosed with prostate cancer	None Brother Father Father & Brother Unknown NA	Short Text
1011	DEMOGRAPHY	age_family_member	Age of Family Member	Age when first degree family member diagnosed with prostate cancer	<65 65+ Unknown NA	Long Integer
1015	DEMOGRAPHY	county	County	County of Residence	CORK LEITRIM CAVAN WATERFORD MEATH DUBLIN KILDARE DONEGAL GALWAY KILKENNY MAYO TIPPERARY SLIGO WESTMEATH KERRY CLARE LOUTH WICKLOW OFFALY MONAGHAN ROSCOMMON WEXFORD CARLOW LIMERICK LONGFORD LAOIS NA	Short Text
1017	CLIN_MGMT	MDTdate	Multidisciplinary Team Meeting Date	Date of first multi-disciplinary team (MDT) meeting post-diagnosis	Yes No Unknown NA	Boolean Yes / No
1018	CLIN_MGMT	discussed_at_MDT	Discussed at Multidisciplinary Team Meeting	Was the patient discussed at a multi-disciplinary team (MDT) meeting post-diagnosis?	Yes No Unknown NA	Boolean Yes / No
1019	CLIN_MGMT	intent	Treatment Intent	What is the treatment intent for the primary management/ treatment received by the patient for their prostate cancer?	Curative Palliative Watchful Waiting Unknown NA	Short Text
1037	CLIN_MGMT	ecog	Eastern Cooperative Oncology Group Performance Status	The Eastern Cooperative Oncology Group (ECOG) Scale of Performance Status describes a patient’s level of functioning in terms of their ability to care for themself, daily activity, and physical ability (walking, working, etc.).	Fully Active Not able to work Restricted Totally Confined to Bed/Chair Unknown NA	Short Text
1043	DIAGNOSIS	date_diag	Date of Diagnosis	The date that the diagnosis of prostate cancer is comfirmed.	2014- 2019 NA	Long Integer
1044	DIAGNOSIS	age_diag	Age at Diagnosis	The age that the diagnosis of prostate cancer is comfirmed.	31 - 94 NA	Long Integer
1045	DIAGNOSIS	symptoms_none	No Symptoms	The symptoms the patient had at their first appointment with the urology team.	Yes No Unknown NA	Boolean Yes / No
1046	DIAGNOSIS	symptoms_urinary	Urinary Symptoms	The urinary symptoms the patient had at their first appointment with the urology team.	Yes No Unknown NA	Boolean Yes / No
1047	DIAGNOSIS	symptoms_bone	Bone Symptoms	The bone symptoms the patient had at their first appointment with the urology team.	Yes No Unknown NA	Boolean Yes / No
1048	DIAGNOSIS	symptoms_other	Other Symptoms	Other symptoms the patient had at their first appointment with the urology team.	Yes No Unknown NA	Boolean Yes / No
1049	DIAGNOSIS	symptoms_wt_loss	Weight Loss Symptoms	The weight loss symptoms the patient had at their first appointment with the urology team.	Yes No Unknown NA	Boolean Yes / No
1050	DIAGNOSIS	psa_date	PSA Test Date	The PSA result that is closest to diagnosis.		Long Integer
1052	DIAGNOSIS	psa_level	PSA Level	Result of PSA blood test.		Long Integer
1053	DIAGNOSIS	psa_double	PSA Doubling Time	Result may be doubled due to medication the patient is taking.	FALSE TRUE NA	Boolean TRUE / FALSE
1054	DIAGNOSIS	image_us	Ultrasound Imaging	Scans carried out to help diagnose and assess the cancer	Yes No Unknown NA	Boolean Yes / No
1055	DIAGNOSIS	image_mri	MRI Imaging	Scans carried out to help diagnose and assess the cancer	Yes No Unknown NA	Boolean Yes / No
1056	DIAGNOSIS	image_pet	PET Imaging	Scans carried out to help diagnose and assess the cancer	Yes No Unknown NA	Boolean Yes / No
1057	DIAGNOSIS	image_bs	Bone Scan Imaging	Scans carried out to help diagnose and assess the cancer	Yes No Unknown NA	Boolean Yes / No
1058	DIAGNOSIS	image_other	Other Imaging	Scans carried out to help diagnose and assess the cancer	Yes No Unknown NA	Boolean Yes / No
1059	DIAGNOSIS	image_ct_tap	CT TAP Imaging	Scans carried out to help diagnose and assess the cancer	Yes No Unknown NA	Boolean Yes / No
1060	DIAGNOSIS	biopsy_type	Type of Biopsy	The name of the biopsy which is done to confirm the cancer type.	TRUS Trans-urethral Tranperineal Other Unknown NA	Short Text
1061	DIAGNOSIS	biopsy_date	Biopsy Date	The date that the biopsy was done.		Long Integer
1063	DIAGNOSIS	histology_type	Histology Type	Describes any abnormal cells found. This is the name of the tumour.	Adenocarcinoma Adenocarcinoma & Other Other Unknown NA	Short Text
1064	DIAGNOSIS	num_cores_exam	Number of Cores Examined	Describes the number of samples taken from the prostate		Long Integer
1065	DIAGNOSIS	num_cores_positive	Number of Cores Positive	The nubmer of core samples that are positive for cancer.		Long Integer
1066	DIAGNOSIS	percent_cores_positive	Percentage of Cores Positive	Derived	2.127659507 - 950 NA	Long Integer
1067	DIAGNOSIS	primary_grade	Primary Grade	First number in Gleason grade.	3, 4, NA, 5, 9, 2	Long Integer
1068	DIAGNOSIS	secondary_grade	Secondary Grade	Second number in Gleason grade.	4, 3, 6, 5, NA, 2, 7	Long Integer
1069	DIAGNOSIS	gleason_score_added	Gleason Score Added	Derived	7, 8, 6, 9, NA, 10, 4	Long Integer
1070	DIAGNOSIS	gleason_grade	Gleason Grade	The sum of the first and second grades listed.	3+3 3+4 3+5 4+3 4+4 4+5 5+3 5+4 5+5 NA	Long Integer
1071	DIAGNOSIS	new_gleason	New Gleason Score	The new number for the Gleason grade	1,2,3,4,5,NA	Long Integer
1072	DIAGNOSIS	grade_unusal_histology	Unusual Histology Grade	The grade given to tumors that are not adenocarcinomas.	1,2,3,4,5,NA	Long Integer
1073	DIAGNOSIS	higher_tertiary	Higher Tertiary Grade	If a small amount of a higher Gleason grade if found.	1,2,3,4,5,NA	Long Integer
1074	DIAGNOSIS	perineural_invasion	Perineural Invasion	Cancer cell invasion of nerves cells.	Yes No Unknown NA	Boolean Yes / No
1075	DIAGNOSIS	lymph_vasc_invasion	Lymphovascular Invasion	Lymphovascular invasion is the spread of a cancer to the blood vessels and/or lymphatics.	Yes No Unknown NA	Boolean Yes / No
1076	DIAGNOSIS	clinical_T	Clinical Tumor Stage (T)	Clinical Tumour grade	T1a, T1b, T1c, T2a, T2b, T2c, T2, T3a, T3b, T3, T4, TX, NA	Short Text
1077	DIAGNOSIS	clinical_N	Clinical Node Stage (N)	Clinical Node grade	N0, N1, NX, NA	Short Text
1078	DIAGNOSIS	clinical_M	Clinical Metastasis Stage (M)	Clinical Metastatic grade	M0, M1, NA	Short Text
1079	DIAGNOSIS	clinical_TNM	Clinical TNM Stage	Derived	NA, T2aN0M0, T2N0M0, T2cN0M0, T3bN0M0, T2bN0M0, T2cN1M0, T3bN1M0, cT2cN0M0, T1cN0M0, T3aN0M0, T3aN1M0, T2NXM0, N0M0, T3aN0, T2cN0, N1M1, T1cNXM0, T3N0M0, T2bN0, T4N0M1, T1CN0M0, T1aNXM0, T3bN1M1, T3bN0M1, T1CNXM0, T1aN0M0, TxN0M0, M1, M0, T2aN0, T2N0M1, T2aNXM0, cT3aN0M0, T1cN0, cT2aN0M0, cT1cN0M0, T1bN0M0, T4N1M0, T2N0, T4N0M0, T4N1M1	Short Text
1080	DIAGNOSIS	Msite_lung	Metastasis Site - Lung	Metastatic sites- sites where the cancer has spread to in the rest of the body.	Yes No Unknown NA Not Present	Short Text
1081	DIAGNOSIS	Msite_liver	Metastasis Site - Liver	Metastatic sites- sites where the cancer has spread to in the rest of the body.	Yes No Unknown NA Not Present	Short Text
1082	DIAGNOSIS	Msite_bone	Metastasis Site - Bone	Metastatic sites- sites where the cancer has spread to in the rest of the body.	Yes No Unknown NA Not Present	Short Text
1083	DIAGNOSIS	Msite_lymph	Metastasis Site - Lymph Nodes	Metastatic sites- sites where the cancer has spread to in the rest of the body.	Yes No Unknown NA Not Present	Short Text
1084	DIAGNOSIS	Msite_other	Metastasis Site - Other	Metastatic sites- sites where the cancer has spread to in the rest of the body.	Yes No Unknown NA Not Present	Short Text
1086	DIAGNOSIS	CAPRA	Cancer of the Prostate Risk Assessment	Auto-generated	NA, 0, 2, 6, 3, 5, 7, 9, 1, 10, 4, 8	Long Integer
1087	DIAGNOSIS	modified_CAPRA	Modified Cancer of the Prostate Risk Assessment	Auto-generated	NA, 2, 8, 5, 4, 1, 6, 3, 9, 7	Long Integer
1088	DIAGNOSIS	any_biop_comp	Any Biopsy Complications	Any side effects that happened to the patient as a result of the biopsy.	FALSE TRUE NA	Boolean TRUE / FALSE
1089	DIAGNOSIS	biop_comp_bleeding	Biopsy Complication - Bleeding	Any side effects that happened to the patient as a result of the biopsy.	Yes No Unknown NA	Boolean Yes / No
1090	DIAGNOSIS	biop_comp_uti_not_admit	Biopsy Complication - UTI Not Admitted	Any side effects that happened to the patient as a result of the biopsy.	Yes No Unknown NA	Boolean Yes / No
1091	DIAGNOSIS	biop_comp_uti_sepsis_admit	Biopsy Complication - UTI with Sepsis Admitted	Any side effects that happened to the patient as a result of the biopsy.	Yes No Unknown NA	Boolean Yes / No
1092	DIAGNOSIS	biop_comp_none	No Biopsy Complications	Any side effects that happened to the patient as a result of the biopsy.	Yes No Unknown NA	Boolean Yes / No
1093	DIAGNOSIS	biop_comp_other	Other Biopsy Complications	Any side effects that happened to the patient as a result of the biopsy.	Yes No Unknown NA	Boolean Yes / No
1094	DIAGNOSIS	biop_comp_urin_retent	Biopsy Complication - Urinary Retention	Any side effects that happened to the patient as a result of the biopsy.	Yes No Unknown NA	Boolean Yes / No
1095	DIAGNOSIS	initial_referal	Initial Referral	The date the patient was referred to the urologist for specialist care.		Long Integer
1097	DIAGNOSIS	first_clinic_visit	First Clinic Visit	The date the patient was first seen by a urologist.		Long Integer
1099	DIAGNOSIS	staging_MRI	Staging MRI	Date of the prostate MRI		Long Integer
1101	DIAGNOSIS	biop_before_staging_MRI	Biopsy Before Staging MRI	Selected if a prostate MRI done before the biopsy.	FALSE TRUE NA	Boolean TRUE / FALSE
1102	DIAGNOSIS	age_diag_5yrs	Age at Diagnosis (5-Year Categories)	Age of the patient at diagnosis grouped into 5-year categories	36-40, 41-45, 46-50, 51-55, 56-60, 61-65, 66-70, 71-75, 81-85, 86-90, 91-95, NA	Long Integer
1104	DIAGNOSIS	reported_date	Reported Date	The date the diagnosis is signed off by the consultant	25/06/2015 - 08/06/2021 01/01/1901 26/10/2107 27/10/2107 18/01/2108 19/09/2001 NA	Date (Short Date Format)
1105	DIAGNOSIS	days_reported	Days Reported	The date the diagnosis is signed off by the consultant		Long Integer
1108	DIAGNOSIS	biopsy_type_2	Biopsy Type 2	The name of the biopsy which is done to confirm the cancer type.	TRUS Trans-urethral Tranperineal Other Unknown NA	Short Text
1109	DIAGNOSIS	biopsy_date_2	Biopsy Date 2	The date that the biopsy was done.		Long Integer
1111	DIAGNOSIS	gleason_2	Gleason Score 2	The sum of the first and second grades listed.	NA, 6, 8, 7, 0, 9	Long Integer
1112	DIAGNOSIS	new_gleason_2	New Gleason Score 2	The new number for the Gleason grade	NA, 1, 4, 3, 0, 2, 5	Long Integer
1113	DIAGNOSIS	dre	Digital Rectal Exam	The examination of the prostate by the doctor or nurse specialist	Suspicious Normal NA	Short Text
1115	DIAGNOSIS	subseq_diag	Subsequent Diagnosis	Indicates if the patient has had a subsequent diagnosis	FALSE TRUE NA	Boolean TRUE / FALSE
1118	SURGERY	date_surg	Date of Surgery	The date the surgery was done.		Long Integer
1120	SURGERY	surg_type	Type of Surgery	Denotes the type of surgery that was done.	Radical Prostatectomy, TURP, Other, NA	Short Text
1121	SURGERY	surg_approach	Surgical Approach	The way the surgeon carried out the operation	Robot, Open, Laproscopic, Unknown, NA	Short Text
1122	SURGERY	nerve_sparing	Nerve-Sparing Surgery	Denotes if the nerves around the prostate were left intact	Yes No Unknown NA	Boolean Yes / No
1123	SURGERY	nerve_sparing_type	Type of Nerve-Sparing Surgery	Records if the nerves on either side or one side were left intact	Unilateral, Bilateral, Unknown, NA	Short Text
1124	SURGERY	pelvic_l_node_dissection	Pelvic Lymph Node Dissection	Records if any lymph nodes were taken from around the prostate	Yes No Unknown NA	Boolean Yes / No
1125	SURGERY	surg_hist_type	Surgical Histology Type	Histology type	Adenocarcinoma, Adenocarcinoma & Other, Unknown, NA	Short Text
1126	SURGERY	primary_surg	Primary Surgery	First number in Gleason grade.	4, NA, 3, 5, 0	Long Integer
1127	SURGERY	secondary_surg	Secondary Surgery	Second number in Gleason grade.	4, NA, 3, 5, 6, 0	Long Integer
1128	SURGERY	gleason_score_added_surg	Gleason Score Added (Surgery)	Derived	6, 7, 8, 9, 10, NA	Long Integer
1129	SURGERY	gleason_grade_surg	Gleason Grade (Surgery)	The sum of the first and second grades listed.	#	Long Integer
1130	SURGERY	new_gleason_surg	New Gleason Score (Surgery)	The new number for the Gleason grade	1, 2, 3, 4, 5, NA	Long Integer
1131	SURGERY	lymph_vasc_invasion_surg	Lymphovascular Invasion (Surgery)	Lymphovascular invasion is the spread of a cancer to the blood vessels and/or lymphatics.	Yes No Unknown NA	Boolean Yes / No
1132	SURGERY	status	Status	Notes if the cancer has spread outside the prostate capsule	Yes No Unknown NA	Boolean Yes / No
1133	SURGERY	occurence	Occurrence	Seminal Vesical Invastion	Yes No Unknown NA	Boolean Yes / No
1134	SURGERY	num_exam_surg	Number Examined (Surgery)	Denotes the number of lymph nodes that were removed.	0 - 61 NA	Long Integer
1135	SURGERY	num_pos_surg	Number Positive (Surgery)	Denotes the number of nodes that were positive for cancer.	1, NA, 0, 2, 13, 43, 3, 4, 5, 6, 9, 11, 8, 26	Long Integer
1136	SURGERY	path_T	Pathological Tumor Stage (T)	Clinical Tumour grade	T1a, T1b, T1c, T2a, T2b, T2c, T2, T3a, T3b, T3, T4, TX, NA	Short Text
1137	SURGERY	path_N	Pathological Node Stage (N)	Clinical Node grade	N0, N1, NX, NA	Short Text
1138	SURGERY	staging_edition_surg	Staging Edition (Surgery)	Auto-generated	7th, 8th, NA	Short Text
1139	SURGERY	margin_type	Margin Type	Records if the surgical margin had tumour in at its edge	Clear, Involved, Equivocal, Unknown, NA	Short Text
1140	SURGERY	involvement	Involvement	Records how much of the margin was involved	<3mm, >=3mm, Unknown, NA	Short Text
1142	RADIATION	RT_type	Radiotherapy Type	Type of radiation	External Beam, Brachytherapy, Ext Beam & Brachy, Unknown, NA	Short Text
1143	RADIATION	site	Site	Body part receiving radiation	Prostate, Prostate and Seminal Vesicles, Prostate and Lymph Nodes, Prostate Bed, Bone, Other, Unknown, NA	Short Text
1144	RADIATION	ex_occurence	External Occurrence	whether or not the patient received this external beam radiation	Yes No Unknown NA	Boolean Yes / No
1145	RADIATION	ex_start	External Start	Start date for external beam		Long Integer
1147	RADIATION	ex_comp	External Complications	End date for external beam		Long Integer
1149	RADIATION	ex_time_taken	External Time Taken	End date for external beam - days from diagnosis		Long Integer
1151	RADIATION	ex_dose_gy	External Dose (Gray Units)	The dose of the EBRT in Grey (Gy)	5 - 176.4 81/54 NA	Long Integer
1152	RADIATION	ex_delivery	External Delivery	Which mode of EBRT was used	Conformal, IMRT, IGRT, Conformal, NA	Short Text
1153	RADIATION	dose_rate	Dose Rate	Indicates the intensity of dosage used in treatments,	HDR, LDR, MDR, Unknown, NA	Short Text
1154	RADIATION	ex_fractions	External Fractions	The number of fractions the EBRT was divided up into	1-98 NA	Long Integer
1156	RADIATION	br_occurence	Brachytherapy Occurrence	Whether the patient received brachytherapy	Yes No Unknown NA	Boolean Yes / No
1157	RADIATION	br_start	Brachytherapy Start	Start date for brachytherapy		Long Integer
1159	RADIATION	br_comp	Brachytherapy Complications	End date for brachytherapy		Long Integer
1161	RADIATION	br_time_taken	Brachytherapy Time Taken	End date for brachytherapy - days from diagnosis		Short Text
1163	RADIATION	br_dose_gy	Brachytherapy Dose (Gray Units)	The dose of the brachytherapy in Grey (Gy)	NA, 45, 106, 160, 15, 100, 0.406mCi, 145, 71 seeds, 73 seeds, 24.375mCi, 0.375, 27.75, 25.1, 70 seeds, 64, 32.805, 1, 26.25 mCi, 67 seeds, 88 seeds, 26.6mCi, 89 seeds, 110, 79, 65 seeds, 22.68, 82 seeds, 81, 27, 167.6	Short Text
1164	RADIATION	br_fractions	Brachytherapy Fractions	The number of fractions the brachytherapy dose was divided up into	NA, 25, 1, 30.45, 77 seeds, 26.6 mCi, 22.99, 65 seeds, 90, 74, 24.2549999999999, 28.4mCi, 0.375mci, 81, 160, 25.13, 35.72mCi, 26.108 mCi, 71 seeds, 36.134, 0.475999999999999, 24.375mCi, 25.88, 0.444mCi, 24.38mCi, 60 seeds, 33.29 mCi, 82 seeds, 2	Short Text
1166	RADIATION	is_occurance	Is Occurrence	Whether the patient received unsealed isotopes	Yes No Unknown NA	Boolean Yes / No
1167	RADIATION	complic_1	Complication 1	Whether there was any complication as a result of any of the radiation treatment 1	NA, 12, 99, 6, 9, 2, 5, 11, 4, 8, 7, 3	Long Integer
1168	RADIATION	complic_grade_1	Complication Grade 1	Grade of complication in terms of severity and intervention needed	1-5, NA	Long Integer
1169	RADIATION	complic_2	Complication 2	Whether there was any complication as a result of any of the radiation treatment	NA, 9, 12, 4, 5, 1, 2	Long Integer
1170	RADIATION	complic_grade_2	Complication Grade 2	Grade of complication in terms of severity and intervention needed	1-5, NA	Long Integer
1171	RADIATION	rt_terminated	Radiotherapy Terminated	Was the radiotherapy stopped prematurely	TURE FALSE NA	Boolean TRUE / FALSE
1176	ADT	adt_agent_1	Androgen Deprivation Therapy Agent 1	Name of first ADT drug administered	NA, Bicalutamide, Triptorelin, Degarelix, Enzalutamide, Unknown, Leuprorelin, Abiraterone, Goserelin	Short Text
1177	ADT	adt_agent_2	Androgen Deprivation Therapy Agent 2	Name of second ADT drug administered	NA, Triptorelin, Bicalutamide, Leuprorelin, Unknown, Degarelix, Abiraterone, Goserelin, Enzalutamide	Short Text
1178	ADT	adt_agent_3	Androgen Deprivation Therapy Agent 3	Name of third ADT drug administered	NA, Leuprorelin, Triptorelin, Enzalutamide, Abiraterone, Bicalutamide, Degarelix	Short Text
1179	ADT	agent1_start	Agent 1 Start	Start date of first drug administered		Long Integer
1180	ADT	agent1_end	Agent 1 End	Stop date of first drug administered		Long Integer
1181	ADT	agent1_months	Agent 1 Duration (Months)	Number of months on first drug		Long Integer
1182	ADT	agent2_start	Agent 2 Start	Start date of second drug administered		Long Integer
1183	ADT	agent2_end	Agent 2 End	Stop date of second drug administered		Long Integer
1184	ADT	agent2_months	Agent 2 Duration (Months)	Number of months on second drug		Long Integer
1185	ADT	agent3_start	Agent 3 Start	Start date of third drug administered		Long Integer
1186	ADT	agent3_end	Agent 3 End	Stop date of third drug administered		Long Integer
1187	ADT	agent3_months	Agent 3 Duration (Months)	Number of months on Drug		Long Integer
1188	ADT	agent1_delivery	Agent 1 Delivery	Method of Delivery of the first ADT Drug	NA, Continuous, Intermittent, Unknown	Short Text
1189	ADT	agent2_delivery	Agent 2 Delivery	Method of Delivery of the second ADT Drug	NA, Continuous, Intermittent, Unknown	Short Text
1190	ADT	agent3_delivery	Agent 3 Delivery	Method of Delivery of the third ADT Drug	NA, Continuous, Intermittent, Unknown	Short Text
1196	CHEMOTHERAPY	chemo_Doacetaxel	Chemotherapy with Docetaxel	Was Doacetaxel used?	NA, Y	Boolean Yes / No
1197	CHEMOTHERAPY	chemo_other_agent	Chemotherapy with Other Agents	Were other agents used?	NA, Y	Boolean Yes / No
1198	CHEMOTHERAPY	other_chemo_trt	Other Chemotherapy Treatments	Name of other agent used	NA, Dexamethasone, Prednisolone	Short Text
1199	CHEMOTHERAPY	chemo_B_Zoledronic_acid	Chemotherapy with Zoledronic Acid (Brand B)	Was Zoledronic_acid used?	NA, Y	Boolean Yes / No
1200	CHEMOTHERAPY	chemo_B_Denosumab	Chemotherapy with Denosumab (Brand B)	Was Denosumab used?	NA, Y	Boolean Yes / No
1201	CHEMOTHERAPY	chemo_B_Calcichew	Chemotherapy with Calcichew (Brand B)	Was Calcichew used?	NA, Y	Boolean Yes / No
1243	PROMS_demography	nationality	Nationality	Numeric code or identifier representing the patient's nationality	NA, 1, 2	Long Integer
1244	PROMS_demography	nationother	Other Nationality	Text entry for specifying nationalities not listed elsewhere	Eurpoean, UK, Other, NA	Short Text
1245	PROMS_demography	currlivingarrange	Current Living Arrangement	Numeric identifier or count of current living arrangements	NA, 2, 1, 3, 0, 6, 4, 5	Long Integer
1246	PROMS_demography	livingother	Other Living Arrangements	Text entry for specifying living arrangements not listed elsewhere		Short Text
1247	PROMS_demography	counton	Count On	Numeric count of people or resources the patient can rely on	1-4, NA	Long Integer
1248	PROMS_demography	friendlyinterest	Friendly Interest	Numeric score or count reflecting friendly interest or social interactions	1-5, NA	Long Integer
1249	PROMS_demography	practicalhelpneigh	Practical Help from Neighbors	Numeric count of instances where practical help was received from neighbors	1-5, NA	Long Integer
1250	PROMS_demography	currlivingplace	Current Living Place	Numeric identifier or count of the patient's current living place	NA, 3, 5, 4, 1, 2	Long Integer
1251	PROMS_demography	educationcomp	Education Completion	Numeric count or identifier for the level of education completed	NA, 4, 3, 2, 1	Long Integer
1252	PROMS_demography	medicalcard	Medical Card	Indicates whether the patient has a medical card	NA, 1, 2	Long Integer
1253	PROMS_demography	privhealthins	Private Health Insurance	Indicates whether the patient has private health insurance	NA, 1, 2	Long Integer
1254	PROMS_comorbidities	heart	Heart Condition	Indicates the presence of a heart condition	NA, 1, 2	Long Integer
1255	PROMS_comorbidities	angina	Angina	Indicates the presence of angina	NA, 1, 2	Long Integer
1256	PROMS_comorbidities	stroke	Stroke	Indicates the presence of stroke	NA, 1, 2	Long Integer
1257	PROMS_comorbidities	lung	Lung Condition	Indicates the presence of a lung condition	NA, 1, 2, 0	Long Integer
1258	PROMS_comorbidities	diabetes	Diabetes	Indicates the presence of diabetes	NA, 1, 2	Long Integer
1259	PROMS_comorbidities	mental	Mental Health Condition	Indicates the presence of a mental health condition	NA, 1, 2	Long Integer
1260	PROMS_comorbidities	cancer	Cancer	Indicates the presence of cancer	NA, 1, 2, 0	Long Integer
1261	PROMS_comorbidities	canceroth	Other Cancer	Specifies the type of cancer if it is not covered by standard categories.		Long Text
1262	PROMS_comorbidities	medcond	Medical Condition	A numeric code identifying a medical condition according to a standard classification.	NA, 1, 2, 0	Long Integer
1263	PROMS_comorbidities	medcondoth1	Other Medical Condition 1	Details any additional medical conditions not listed in primary categories.		Long Text
1264	PROMS_demography	age	Age	The age of the individual at the time of data collection.	40 - 88 NA	Long Integer
1265	PROMS_comorbidities	medcondoth2	Other Medical Condition 2	Details further additional medical conditions not captured in other fields.		Long Text
1266	PROMS_comorbidities	medcondoth3	Other Medical Condition 3	Details further additional medical conditions not captured in other fields.		Long Text
1267	PROMS_comorbidities	medcondoth4	Other Medical Condition 4	Details further additional medical conditions not captured in other fields.		Long Text
1268	PROMS_comorbidities	medcondoth5	Other Medical Condition 5	Details further additional medical conditions not captured in other fields.		Long Text
1269	PROMS_comorbidities	medcondoth6	Other Medical Condition 6	Details further additional medical conditions not captured in other fields.		Long Text
1270	PROMS_EORTC_QLQ_C30	eortc1	EORTC Question 1	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1271	PROMS_EORTC_QLQ_C30	eortc2	EORTC Question 2	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1272	PROMS_EORTC_QLQ_C30	eortc3	EORTC Question 3	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1273	PROMS_EORTC_QLQ_C30	eortc4	EORTC Question 4	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1274	PROMS_EORTC_QLQ_C30	eortc5	EORTC Question 5	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1275	PROMS_EORTC_QLQ_C30	eortc6	EORTC Question 6	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1276	PROMS_EORTC_QLQ_C30	eortc7	EORTC Question 7	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1277	PROMS_EORTC_QLQ_C30	eortc8	EORTC Question 8	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1278	PROMS_EORTC_QLQ_C30	eortc9	EORTC Question 9	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1279	PROMS_EORTC_QLQ_C30	eortc10	EORTC Question 10	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1280	PROMS_EORTC_QLQ_C30	eortc11	EORTC Question 11	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4, 0	Long Integer
1281	PROMS_EORTC_QLQ_C30	eortc12	EORTC Question 12	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1282	PROMS_EORTC_QLQ_C30	eortc13	EORTC Question 13	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1283	PROMS_EORTC_QLQ_C30	eortc14	EORTC Question 14	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1284	PROMS_EORTC_QLQ_C30	eortc15	EORTC Question 15	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1285	PROMS_EORTC_QLQ_C30	eortc16	EORTC Question 16	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1286	PROMS_EORTC_QLQ_C30	eortc17	EORTC Question 17	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1287	PROMS_EORTC_QLQ_C30	eortc18	EORTC Question 18	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1288	PROMS_EORTC_QLQ_C30	eortc19	EORTC Question 19	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1289	PROMS_EORTC_QLQ_C30	eortc20	EORTC Question 20	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1290	PROMS_EORTC_QLQ_C30	eortc21	EORTC Question 21	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1291	PROMS_EORTC_QLQ_C30	eortc22	EORTC Question 22	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1292	PROMS_EORTC_QLQ_C30	eortc23	EORTC Question 23	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1293	PROMS_EORTC_QLQ_C30	eortc24	EORTC Question 24	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1294	PROMS_EORTC_QLQ_C30	eortc25	EORTC Question 25	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1295	PROMS_EORTC_QLQ_C30	eortc26	EORTC Question 26	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1296	PROMS_EORTC_QLQ_C30	eortc27	EORTC Question 27	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1297	PROMS_EORTC_QLQ_C30	eortc28	EORTC Question 28	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 1, 2, 3, 4	Long Integer
1298	PROMS_EORTC_QLQ_C30	eortc29	EORTC Question 29	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 7, 5, 3, 6, 4, 2, 1, 0	Long Integer
1299	PROMS_EORTC_QLQ_C30	eortc30	EORTC Question 30	Assesses specific aspect of patient's quality of life related to cancer treatment.	NA, 7, 5, 6, 3, 4, 2, 1	Long Integer
1300	PROMS_EPIC_26	epic1	EPIC Question 1	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4	Long Integer
1301	PROMS_EPIC_26	epic2	EPIC Question 2	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4	Long Integer
1302	PROMS_EPIC_26	epic3	EPIC Question 3	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4	Long Integer
1303	PROMS_EPIC_26	epic4a	EPIC Question 4a	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1304	PROMS_EPIC_26	epic4b	EPIC Question 4b	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1305	PROMS_EPIC_26	epic4c	EPIC Question 4c	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1306	PROMS_EPIC_26	epic4d	EPIC Question 4d	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1307	PROMS_EPIC_26	epic4e	EPIC Question 4e	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1308	PROMS_EPIC_26	epic5	EPIC Question 5	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1309	PROMS_EPIC_26	epic6a	EPIC Question 6a	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1310	PROMS_EPIC_26	epic6b	EPIC Question 6b	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1311	PROMS_EPIC_26	epic6c	EPIC Question 6c	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1312	PROMS_EPIC_26	epic6d	EPIC Question 6d	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 0, 5, 4	Long Integer
1313	PROMS_EPIC_26	epic6e	EPIC Question 6e	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1314	PROMS_EPIC_26	epic7	EPIC Question 7	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1315	PROMS_EPIC_26	epic8a	EPIC Question 8a	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1316	PROMS_EPIC_26	epic8b	EPIC Question 8b	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1317	PROMS_EPIC_26	epic9	EPIC Question 9	Assesses specific aspect of prostate health and related quality of life.	NA, 4, 1, 2, 3	Long Integer
1318	PROMS_EPIC_26	epic10	EPIC Question 10	Assesses specific aspect of prostate health and related quality of life.	NA, 5, 1, 4, 2, 3	Long Integer
1319	PROMS_EPIC_26	epic11	EPIC Question 11	Assesses specific aspect of prostate health and related quality of life.	NA, 5, 1, 3, 2, 4	Long Integer
1320	PROMS_EPIC_26	epic12	EPIC Question 12	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 5, 4, 2, 3	Long Integer
1321	PROMS_EPIC_26	epic13a	EPIC Question 13a	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1322	PROMS_EPIC_26	epic13b	EPIC Question 13b	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 4, 3, 2, 5	Long Integer
1323	PROMS_EPIC_26	epic13c	EPIC Question 13c	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1324	PROMS_EPIC_26	epic13d	EPIC Question 13d	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1325	PROMS_EPIC_26	epic13e	EPIC Question 13e	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1326	PROMS_EPIC_26	epic14	EPIC Question 14	Assesses specific aspect of prostate health and related quality of life.	NA, 1, 2, 3, 4, 5	Long Integer
1327	PROMS_EPIC_26	epic15	EPIC Question 15	Assesses specific aspect of prostate health and related quality of life.	NA, 2, 1	Long Integer
1328	PROMS_EPIC_26	viagra	Use of Viagra	Tracks usage of Viagra, detailing frequency and context of use.	NA, 1, 2, 3, 4, 5	Long Integer
1329	PROMS_EPIC_26	viagapplic	Application of Viagra	Indicates whether Viagra was applied in a clinical or experimental setting.	NA, 1, 0	Long Integer
1330	PROMS_EPIC_26	pillname	Name of the Pill	Lists the medication names commonly prescribed or used, often in the context of erectile dysfunction.	NA, Cialis (generic), Cialis 5mg, Forgotten, Cialis-Prescribed by cardiologist, Vizarsin, Cialis 5mg and Spedra 100mg, Tadalafil Krka, Tadalafil, Callis, Sildenafil, Vizarsin 100mg, Cialis, Sildenafil Clomel 100mg, Selfill, Tadalafil 20mg, 20mg Cialis, Sildenafil 25mg, Cialis/Tadalafil 20mg, Ciallis, Cialis 20mg, Tadalafil krka, Tadalafil 20 mg, Sildenafil myla, Tadalalfil Krka 20mg, Sildenafil accord 100mg, Sildenafil Clomal 100mg, Cialis Tadalafin, Tadalafil - gave headaches, Tadafil, Celius, Sidena, Cialis (Tadalafil) 20mg, Sidena/sildenafil, Sidena 50mg. Not as good as Viagra., Tadalafil KRKA 10mg x2 per week, Cialis+ Viagra, Sildenafil Citrate 50mg, Sildenafil (Sidena), Cialis and Sildenafil, Tadalfil Clonmel 10mg, Cialis 90mg, Sildenafil accora 100mg, Sildenifil, Sildenafil Accord 100mg, Tadalafil Krka 20MG, Sinfill, Tadalafil KRKA 20mg, Tadalafil KRKA, Taladafil/Cialis	Short Text
1331	PROMS_EPIC_26	muse	Use of Muse	Tracks the usage of Muse, a penile suppository for erectile dysfunction, coded by frequency of use.	NA, 1, 2, 3, 0	Long Integer
1332	PROMS_EPIC_26	penileinjother	Use of Other Penile Injection	Indicates the use of other penile injection therapies not specifically listed, coded by frequency.	NA, 1, 3, 4, 2, 5, 0	Long Integer
1333	PROMS_EPIC_26	vacdevice	Use of Vacuum Device	Records usage of a vacuum erection device to treat erectile dysfunction, coded by frequency.	NA, 1, 2, 3, 4, 5	Long Integer
1334	PROMS_EPIC_26	othermedapplic	Other Medical Application	Identifies usage of other unspecified medical applications, typically coded for presence or frequency.	NA, 1, 0	Long Integer
1335	PROMS_EPIC_26	othermeddev	Other Medical Device	Captures use of other medical devices not specified elsewhere in the survey.	NA, 4, 0, 3, 1, 2	Long Integer
1336	PROMS_EPIC_26	meddeviceoth	Other Medical Device (specified)	Specifies other medical devices used, such as tension rings or Vitaros gel, coded by name.	NA, Viberect, Forgotten, Tension ring, Vitaros, Vitaros Gel, Vituros, Tadadafil, Penile surgery	Short Text
1337	PROMS_EQ5D	eq5d5lmobility	EQ-5D-5L Mobility	Assesses the respondent's mobility level as part of the EQ-5D-5L health questionnaire.	NA, 1, 2, 3, 4, 5	Long Integer
1338	PROMS_EQ5D	eq5d5lselfcare	EQ-5D-5L Self-Care	Assesses the respondent's ability to care for themselves, as part of the EQ-5D-5L questionnaire.	NA, 1, 2, 3, 4, 5	Long Integer
1339	PROMS_EQ5D	eq5d5lusualactivities	EQ-5D-5L Usual Activities	Evaluates the respondent's ability to perform usual activities, from the EQ-5D-5L questionnaire.	NA, 1, 2, 3, 4, 5	Long Integer
1340	PROMS_EQ5D	eq5d5lpaindiscomfort	EQ-5D-5L Pain/Discomfort	Measures levels of pain and discomfort as reported by the respondent in the EQ-5D-5L.	NA, 1, 2, 3, 4, 5	Long Integer
1341	PROMS_EQ5D	eq5d5lanxietydepress	EQ-5D-5L Anxiety/Depression	Assesses the levels of anxiety and depression experienced by the respondent, from the EQ-5D-5L.	NA, 1, 2, 3, 4, 5	Long Integer
1342	PROMS_EQ5D	eq5d5lhealthtoday	EQ-5D-5L Health Today	Provides an overall measure of the respondent's health status on the day of the survey, using EQ-5D-5L.	7 - 100 NA	Long Integer
1344	PROMS_SCN_34SF	supportneeds1	Support Needs 1	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1345	PROMS_SCN_34SF	supportneeds2	Support Needs 2	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1346	PROMS_SCN_34SF	supportneeds3	Support Needs 3	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1347	PROMS_SCN_34SF	supportneeds4	Support Needs 4	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1348	PROMS_SCN_34SF	supportneeds5	Support Needs 5	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1349	PROMS_SCN_34SF	supportneeds6	Support Needs 6	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1350	PROMS_SCN_34SF	supportneeds7	Support Needs 7	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1351	PROMS_SCN_34SF	supportneeds8	Support Needs 8	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1352	PROMS_SCN_34SF	supportneeds9	Support Needs 9	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1353	PROMS_SCN_34SF	supportneeds10	Support Needs 10	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1354	PROMS_SCN_34SF	supportneeds11	Support Needs 11	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1355	PROMS_SCN_34SF	supportneeds12	Support Needs 12	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1356	PROMS_SCN_34SF	supportneeds13	Support Needs 13	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1357	PROMS_SCN_34SF	supportneeds14	Support Needs 14	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2, .M	Long Integer
1358	PROMS_SCN_34SF	supportneeds15	Support Needs 15	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1359	PROMS_SCN_34SF	supportneeds16	Support Needs 16	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1360	PROMS_SCN_34SF	supportneeds17	Support Needs 17	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1361	PROMS_SCN_34SF	supportneeds18	Support Needs 18	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1362	PROMS_SCN_34SF	supportneeds19	Support Needs 19	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 3, 2	Long Integer
1363	PROMS_SCN_34SF	supportneeds20	Support Needs 20	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 0, 2, 3	Long Integer
1364	PROMS_SCN_34SF	supportneeds21	Support Needs 21	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1365	PROMS_SCN_34SF	supportneeds22	Support Needs 22	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1366	PROMS_SCN_34SF	supportneeds23	Support Needs 23	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1367	PROMS_SCN_34SF	supportneeds24	Support Needs 24	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1368	PROMS_SCN_34SF	supportneeds25	Support Needs 25	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1369	PROMS_SCN_34SF	supportneeds26	Support Needs 26	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1370	PROMS_SCN_34SF	supportneeds27	Support Needs 27	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1371	PROMS_SCN_34SF	supportneeds28	Support Needs 28	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1372	PROMS_SCN_34SF	supportneeds29	Support Needs 29	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1373	PROMS_SCN_34SF	supportneeds30	Support Needs 30	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1374	PROMS_SCN_34SF	supportneeds31	Support Needs 31	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1375	PROMS_SCN_34SF	supportneeds32	Support Needs 32	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1376	PROMS_SCN_34SF	supportneeds33	Support Needs 33	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 3, 2, 0	Long Integer
1377	PROMS_SCN_34SF	supportneeds34	Support Needs 34	Categorizes the type of support need number 1, usually part of a larger set of support needs questions.	NA, 1, 2, 3	Long Integer
1382	PROMS_demography	irish	Irish	Indicates if the respondent identifies as Irish.	Yes, No, NA	Boolean Yes / No
1383	PROMS_demography	count_on	Count On	Quantifies how much a person can count on others for support.	None, 1 or 2, 3 to 5, More than 5, NA	Long Integer
1384	PROMS_demography	living_area	Living Area	Describes the respondent's living area or location.	NA, In a town (1,500+ people), In open country, In a village, In Dublin city or county, In a city (other than Dublin)	Short Text
1385	PROMS_demography	edu	Education	Specifies the highest level of education attained by the respondent.	NA, Third level, Secondary school, Primary school, No formal education	Short Text
1386	PROMS_demography	med_card	Medical Card	Indicates whether the respondent has a medical card, providing access to health services.	Yes, No, NA	Boolean Yes / No
1387	PROMS_demography	priv_ins	Private Insurance	Indicates if the respondent is covered by private health insurance.	Yes, No, NA	Boolean Yes / No
1388	PROMS_comorbidities	heart_cond	Heart Condition	Indicates whether the respondent has any heart conditions.	NA, No, Yes	Boolean Yes / No
1389	PROMS_EPIC_26	epic_all_urin	EPIC - All Urinary	Summary measure of urinary functions and issues, as part of the EPIC survey.	NA, No problem, Small problem, Very small problem, Big problem, Moderate problem	Short Text
1390	PROMS_EPIC_26	epic_all_bowel	EPIC - All Bowel	Summary measure of bowel functions and issues, as part of the EPIC survey.	NA, No problem, Very small problem, Small problem, Moderate problem, Big problem	Short Text
1391	PROMS_EPIC_26	epic_sex_func	EPIC - Sexual Function	Evaluates sexual function, as part of the EPIC survey.	NA, Big problem, No problem, Small problem, Very small problem, Moderate problem	Short Text
1392	PROMS_EPIC_26	epic_sex_prob	EPIC - Sexual Problems	Evaluates problems related to sexual function, as part of the EPIC survey.	NA, No problem, Big problem, Moderate problem, Very small problem, Small problem	Short Text
1393	PROMS_EQ5D	eq_Mob	EQ-5D-5L Mobility	Assesses mobility levels from the EQ-5D-5L standard survey for health-related quality of life.	NA, None, Slight, Moderate, Severe/Unable	Short Text
1394	PROMS_EQ5D	eq_self_care	EQ-5D-5L Self-Care	Assesses self-care capabilities from the EQ-5D-5L standard survey.	NA, None, Slight, Moderate	Short Text
1395	PROMS_EQ5D	eq_usual_act	EQ-5D-5L Usual Activities	Evaluates usual activity levels from the EQ-5D-5L survey.	NA, None, Slight, Moderate, Unable, Severe	Short Text
1396	PROMS_EQ5D	eq_pain_discom	EQ-5D-5L Pain/Discomfort	Measures pain and discomfort levels from the EQ-5D-5L survey.	NA, None, Slight, Moderate, Unable/Severe	Short Text
1397	PROMS_EQ5D	eq_anx_depress	EQ-5D-5L Anxiety/Depression	Assesses anxiety and depression levels from the EQ-5D-5L survey.	NA, None, Slight, Unable/Severe, Moderate	Short Text
1398	PROMS_EQ5D	eq_today	EQ-5D-5L Health Today	Provides a snapshot of overall health as reported today, from the EQ-5D-5L survey.	7 - 100 NA	Long Integer
1399	PROMS_administrative	proms_type	PROMs Type	Classifies the type of Patient Reported Outcome Measures (PROMs) being used.	No Valid PROMs, 2019, 2016/7	Short Text
1400	PROMS_SCN_34SF	sn_choice_consult	Support Needs - Choice of Consultant	Indicates the respondent's need for choice in selecting their medical consultant.	NA, I did not need help, I still have this need, I received help and now have no need	Short Text
1401	PROMS_SCN_34SF	sn_reass_med_staff	Support Needs - Reassurance by Medical Staff	Measures the respondent's need for reassurance from medical staff.	NA, I did not need help, I received help and now have no need, I still have this need	Short Text
1402	PROMS_SCN_34SF	sn_canc_inf	Support Needs - Cancer Information	Indicates the respondent's need for cancer-related information.	NA, I did not need help, I still have this need, I received help and now have no need	Short Text
1403	PROMS_SCN_34SF	sn_person	Support Needs - Person	Identifies the need for personal support in dealing with medical conditions.	NA, I did not need help, I received help and now have no need, I still have this need	Short Text
1404	NCRI_reported	ncri_distance	NCRI Distance	Calculated distance from address to hospital (Km)	0.430104127 - 341.1823641	Long Integer
1405	NCRI_reported	ncri_Dep16	NCRI Deprivation 16	Deprivation index SES calculated by address	1 - Least Deprived, 2, 3, 4, Mult_Different, 5 - Most Deprived, Missing	Short Text
1406	NCRI_reported	ncri_UrbanRural	NCRI Urban/Rural	Calculated by address	Rural, Urban, Mult_Different, Missing	Short Text
1407	NCRI_reported	ncri_DOD_month	NCRI Date of Death - Month	Date of death Month	1-12, NA	Long Integer
1408	NCRI_reported	ncri_DOD_year	NCRI Date of Death - Year	Date of death Year	NA, 2020, 2018, 2017, 2019, 2016	Long Integer
1409	NCRI_reported	ncri_CAUSE_DEATH	NCRI Cause of Death	Cause of death	Prostate, COD_Missing, Other, NA	Short Text
1410	NCRI_reported	ncri_vital_status	NCRI Vital Status	Vital status	Alive, Dead	Short Text
1411	NCRI_reported	ncri_DOD	NCRI Date of Death	Date of death	01/05/2016 - 01/04/2020 NA	Date (Short Date Format)
1422	NCRI_reported	ncri_MDTDATE	NCRI Multidisciplinary Team (MDT) Date	Records the date of the meeting of the multidisciplinary team regarding the patient, by NCRI.		Long Integer
1423	NCRI_reported	ncri_ENTRY_DATE	NCRI Entry Date	Indicates the date when the patient's information was entered into the NCRI database.		Long Integer
1424	NCRI_reported	ncri_COMPLETION_DATE	NCRI Completion Date	Indicates the date when the patient's treatment was completed as recorded in the NCRI database.		Long Integer
1427	NCRI_reported	ncri_PSADATE	NCRI PSA Date	Records the date when the PSA test was performed as noted in the NCRI database.		Long Integer
1428	NCRI_reported	ncri_BIOSPYDATE	NCRI Biopsy Date	Records the date of the biopsy as documented in the NCRI database.		Long Integer
1429	NCRI_reported	ncri_INITIALREFERRAL	NCRI Initial Referral	Records the date of the initial referral for the patient as noted in the NCRI database.		Long Integer
1430	NCRI_reported	ncri_FIRSTCLINICVISIT	NCRI First Clinic Visit	Records the date of the patient's first clinic visit as documented in the NCRI database.		Long Integer
1431	NCRI_reported	ncri_STAGINGMRI	NCRI Staging MRI	MRI used for staging the extent of cancer at diagnosis, crucial for treatment planning.		Long Integer
1433	NCRI_reported	ncri_REPORTED_DATE	NCRI Reported Date	Date on which the cancer diagnosis was officially reported to the National Cancer Registry.		Long Integer
1434	NCRI_reported	ncri_BIOSPYDATE2	NCRI Biopsy Date 2	Date on which a secondary biopsy was performed, if applicable, to further analyze the cancer or reassess its stage.		Long Integer
1436	NCRI_reported	ncri_DATE_OF_SURGERY	NCRI Date of Surgery	The date the surgery was done - days from diagnosis		Long Integer
1437	NCRI_reported	ncri_PSA_DATE	NCRI PSA Date	Date the Prostate-Specific Antigen (PSA) test was performed, important for prostate cancer monitoring.		Long Integer
1438	NCRI_reported	ncri_EX_START_DATE.y	NCRI External Beam Radiotherapy Start Date (Repeat)	Start date for external beam - days from diagnosis		Long Integer
1439	NCRI_reported	ncri_EX_COMPLETION_DATE	NCRI External Beam Radiotherapy Completion Date	End date for external beam - days from diagnosis		Long Integer
1440	NCRI_reported	ncri_BR_START_DATE.y	NCRI Brachytherapy Start Date (Repeat)	Start date for brachytherapy - days from diagnosis		Long Integer
1441	NCRI_reported	ncri_BR_COMPLETION_DATE	NCRI Brachytherapy Completion Date	End date for brachytherapy - days from diagnosis		Long Integer
1442	NCRI_reported	ncri_IS_START_DATE.y	NCRI Isotope Therapy Start Date (Repeat)	Start date for a repeated cycle of isotope therapy, a treatment involving radioactive isotopes.	TRUE FALSE NA	Boolean TRUE / FALSE
1443	NCRI_reported	ncri_IS_COMPLETION_DATE	NCRI Isotope Therapy Completion Date	Completion date for isotope therapy, marking the end of this treatment phase.	TRUE FALSE NA	Boolean TRUE / FALSE
1444	NCRI_reported	ncri_AGENT1_START_DATE	NCRI Agent 1 Start Date	Start date of first drug administered - days from diagnosis		Long Integer
1445	NCRI_reported	ncri_AGENT1_STOP_AGENT	NCRI Agent 1 Stop Agent	Stop date of first drug administered - days from diagnosis		Long Integer
1446	NCRI_reported	ncri_AGENT2_START_DATE	NCRI Agent 2 Start Date	Start date of second drug administered - days from diagnosis		Long Integer
1447	NCRI_reported	ncri_AGENT2_STOP_AGENT	NCRI Agent 2 Stop Agent	Stop date of second drug administered - days from diagnosis		Long Integer
1448	NCRI_reported	ncri_AGENT3_START_DATE	NCRI Agent 3 Start Date	Start date of third drug administered - days from diagnosis		Long Integer
1449	NCRI_reported	ncri_AGENT3_STOP_AGENT	NCRI Agent 3 Stop Agent	Stop date of third drug administered - days from diagnosis		Long Integer
1450	NCRI_reported	ncri_SURGICAL_ADT_DATE	NCRI Surgical ADT Date	Castration date		Long Integer
1451	NCRI_reported	ncri_A1_START_DATE	NCRI Agent 1 Start Date (Repeat)	Start date for 1st chemo agents - days from diagnosis		Long Integer
1452	NCRI_reported	ncri_A1_END_DATE	NCRI Agent 1 End Date	End date for 1st chemo agents - days from diagnosis		Long Integer
1453	NCRI_reported	ncri_A2_START_DATE	NCRI Agent 2 Start Date (Repeat)	Start date for 2nd chemo agents - days from diagnosis		Long Integer
1454	NCRI_reported	ncri_A2_END_DATE	NCRI Agent 2 End Date	End date for 2nd chemo agents - days from diagnosis		Long Integer
1455	NCRI_reported	ncri_A3_START_DATE	NCRI Agent 3 Start Date (Repeat)	Start date for 3rd chemo agents - days from diagnosis	TRUE FALSE NA	Boolean TRUE / FALSE
1456	NCRI_reported	ncri_A3_END_DATE	NCRI Agent 3 End Date	End date for 3rd chemo agents - days from diagnosis		Long Integer
1457	NCRI_reported	ncri_A4_START_DATE	NCRI Agent 4 Start Date	Start date for 4th chemo agents - days from diagnosis		Long Integer
1458	NCRI_reported	ncri_A4_END_DATE	NCRI Agent 4 End Date	End date for 4th chemo agents - days from diagnosis		Long Integer
1459	NCRI_reported	ncri_A5_START_DATE	NCRI Agent 5 Start Date	Start date for 5th chemo agents - days from diagnosis		Long Integer
1460	NCRI_reported	ncri_A5_END_DATE	NCRI Agent 5 End Date	End date for 5th chemo agents - days from diagnosis		Long Integer
1461	NCRI_reported	ncri_OTHER_START_DATE	NCRI Other Agent Start Date	Start date for other chemo agents - days from diagnosis		Long Integer
1462	NCRI_reported	ncri_OTHER_END_DATE	NCRI Other Agent End Date	End date for other chemo agents - days from diagnosis		Long Integer
1463	NCRI_reported	ncri_B_AGENT1_START_DATE	NCRI Agent B1 Start Date	Start date for 1st bone agents - days from diagnosis		Long Integer
1464	NCRI_reported	ncri_B_AGENT1_STOP_DATE	NCRI Agent B1 Stop Date	End date for 1st bone agents - days from diagnosis		Long Integer
1465	NCRI_reported	ncri_B_AGENT2_START_DATE	NCRI Agent B2 Start Date	Start date for 2nd bone agents - days from diagnosis		Long Integer
1466	NCRI_reported	ncri_B_AGENT2_STOP_DATE	NCRI Agent B2 Stop Date	End date for 2nd bone agents - days from diagnosis	TRUE FALSE NA	Boolean TRUE / FALSE
1467	NCRI_reported	ncri_B_AGENT3_START_DATE	NCRI Agent B3 Start Date	Start date for 3rd bone agents - days from diagnosis		Long Integer
1468	NCRI_reported	ncri_B_AGENT3_STOP_DATE	NCRI Agent B3 Stop Date	End date for 3rd bone agents - days from diagnosis		Long Integer
1469	NCRI_reported	ncri_B_AGENTOther_START	NCRI Other Agent Start Date	Start date for other bone agents - days from diagnosis		Long Integer
1470	NCRI_reported	ncri_B_AGENTOther_STOP	NCRI Other Agent Stop Date	End date for other bone agents - days from diagnosis		Long Integer
1472	NCRI_reported	ncri_F1_LP_DATEofINITIALEVENT	NCRI First LP Date of Initial Event	Local progression date		Long Integer
1473	NCRI_reported	ncri_LP_BIOPSYDATE	NCRI LP Biopsy Date	Local progression biopsy date		Long Integer
1474	NCRI_reported	ncri_F1_BI_DATEofINITIALEVENT	NCRI First BI Date of Initial Event	Biochemical relapse date		Long Integer
1475	NCRI_reported	ncri_F1_SP_DATEofINITIALEVENT	NCRI First SP Date of Initial Event	Systemic progression date		Long Integer
1476	NCRI_reported	ncri_F1_CA_DATEofINITIALEVENT	NCRI First CA Date of Initial Event	Castration resistance date		Long Integer
1477	NCRI_reported	ncri_F1_LASTCONTACTDATE	NCRI First Last Contact Date	last contact date		Long Integer
1478	NCRI_reported	ncri_F1_EndDate	NCRI First End Date	end of followup date		Long Integer
1479	NCRI_reported	ncri_Age_death	NCRI Age at Death	Records the age of the patient at the time of death, if applicable, as noted in the cancer registry.	46 - 95 NA	Long Integer

About IPCOR

Aims

The IPCOR clinical quality registry project aims to create a novel comprehensive prostate cancer outcomes dataset and biorepository enabling quality improvement at sites along with high-quality clinical and translation research.

Research and Publications

Research

IPCOR has published a number of reports and scientific articles as well as several abstracts, posters and presentations regarding prostate cancer care and outcomes.

Media

Media articles, radio shows and podcasts

IPCOR is featured in a number of media articles, radio shows and podcasts.