IPCOR 2 Data Dictionary
Data Dictionary Identification | Form | Variable ID | Column Name | Allowed Values/Value Range | Data Input Type |
---|---|---|---|---|---|
2001 | ADT | ADTYN | Androgen Deprivation Therapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2002 | ADT | ADTPrimSal | Primary or Salvage | 1 = Primary 2 = Salvage | Drop-down list |
2003 | ADT | ADTType | ADT Type | 1 = Chemical 2 = Surgical | Drop-down list |
2004 | ADT | ADTCheAgent | ADT Agent | 1 = Abiraterone (Zytiga) 2 = Bicalutamide (Cosudex) 3 = Buserelin Acetate (Superfact) 4 = Cyproterone Acetate (Androcur) 5 = Degarelix (Firmagon) 6 = Enzalutamide (Xtandi) 7 = Estramustine (Emcyt) 8 = Flutamide 9 = Histrelin (Vantas, Supprelin LA) 10 = Goserelin (Zoladex) 11 = Ketoconazole 12 = Leuprolide (Lupron Depot, Lupron Depot-Ped, Viadur, Eligard, Lucrin) 13 = Nilutamide (Nilandron, Anandron) 14 = Triptorelin Embonate (Diphereline) 15 = Triptorelin Pamoate (Trelstar) 16 = Other 17 = Apalutamide (Erleada, ARN-509) 18 = Triptorelin Acetate 19 = Relugolix (RVT-601, Relumina) 20 = Darolutamide (ODM-201, Nubeqa) -1 = Unknown | Drop-down list |
2005 | ADT | ADTCheAgentOth | If other, specify | NA | Text |
2006 | ADT | ADTStartDT | Start Date of ADT | NA | Date |
2007 | ADT | ADTStopDt | Stop Date of ADT | NA | Date |
2008 | ADT | ADTStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list |
2009 | ADT | ADTStopReasonNotes | Reason for stopping treatment notes | NA | Text |
2010 | ADT | ADTPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2011 | ADT | ADTPSA | PSA level | NA | Drop-down list |
2012 | ADT | ADTCln | Clinician | NA | Search list |
2013 | ADT | ADTInst | Treatment Institute | NA | Drop-down list |
2014 | ADT | ADTClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2015 | ADT | ADTTrialNumber | Trial Number | NA | Text |
2016 | ADT | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values |
2017 | ADT | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2018 | ADT | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2019 | ADT | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2020 | ADT | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2021 | ADT | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2022 | ADT | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2023 | ADT | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2024 | ADT | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2025 | ADT | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2026 | ADT | OtherChk | Other domain, specify | NA | Boolean |
2027 | ADT | Other | Other domain, specify (Text) | NA | Text |
2028 | ADT | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2029 | ADT | ComplicationsTable | Please specify complications domains and grade | NA | Table of items |
2030 | Additional ADT | ADTType | ADT Type | 1 = Chemical 2 = Surgical | Drop-down list |
2031 | Additional ADT | ADTCheAgent | ADT Agent | 1 = Abiraterone (Zytiga) 2 = Bicalutamide (Cosudex) 3 = Buserelin Acetate (Superfact) 4 = Cyproterone Acetate (Androcur) 5 = Degarelix (Firmagon) 6 = Enzalutamide (Xtandi) 7 = Estramustine (Emcyt) 8 = Flutamide 9 = Histrelin (Vantas, Supprelin LA) 10 = Goserelin (Zoladex) 11 = Ketoconazole 12 = Leuprolide (Lupron Depot, Lupron Depot-Ped, Viadur, Eligard, Lucrin) 13 = Nilutamide (Nilandron, Anandron) 14 = Triptorelin Embonate (Diphereline) 15 = Triptorelin Pamoate (Trelstar) 16 = Other 17 = Apalutamide (Erleada, ARN-509) 18 = Triptorelin Acetate 19 = Relugolix (RVT-601, Relumina) 20 = Darolutamide (ODM-201, Nubeqa) -1 = Unknown | Drop-down list |
2032 | Additional ADT | ADTCheAgentOth | If other, specify | NA | Text |
2033 | Additional ADT | ADTStartDT | Start Date of ADT | NA | Date |
2034 | Additional ADT | ADTStartDtAcc | Accuracy of start date | 1 = AAA 2 = AAE 3 = AAU 4 = AEE 5 = AEU 6 = AUU 7 = AUA 8 = AUE 9 = AEA 10 = EAA 11 = EAE 12 = EAU 13 = EEA 14 = EEE 15 = EEU 16 = EUA 17 = EUE 18 = EUU 19 = UAA 20 = UAE 21 = UAU 22 = UEA 23 = UEE 24 = UEU 25 = UUA 26 = UUE 27 = UUU | Drop-down list |
2035 | Additional ADT | ADTCheOngoing | Treatment ongoing | 0 = Completed 1 = Treatment ongoing 2 = Unknown -2 = Not stated | Drop-down list |
2036 | Additional ADT | ADTStopDt | Stop Date of ADT | NA | Date |
2037 | Additional ADT | ADTStopAcc | Accuracy of stop date | 1 = AAA 2 = AAE 3 = AAU 4 = AEE 5 = AEU 6 = AUU 7 = AUA 8 = AUE 9 = AEA 10 = EAA 11 = EAE 12 = EAU 13 = EEA 14 = EEE 15 = EEU 16 = EUA 17 = EUE 18 = EUU 19 = UAA 20 = UAE 21 = UAU 22 = UEA 23 = UEE 24 = UEU 25 = UUA 26 = UUE 27 = UUU | Drop-down list |
2038 | Additional ADT | ADTPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2039 | Additional ADT | ADTPSA | PSA level | NA | Drop-down list |
2040 | Additional ADT | ADTCln | Clinician | NA | Search list |
2041 | Additional ADT | ADTInst | Treatment Institute | NA | Drop-down list |
2042 | Biopsy | consent_reminder | Reminder for returning urine sample | 1 = Yes 0 = No | List of values |
2043 | Biopsy | reminder_date | Date for sending reminder for urine sample | NA | Date |
2044 | Biopsy | collected_urine | Urine sample collected | 0 = No consent 2 = Pending 1 = Yes 3 = Destroyed | Drop-down list |
2045 | Biopsy | collected_blood | Blood sample collected | 0 = No consent 2 = Pending 1 = Yes 3 = Destroyed | Drop-down list |
2046 | Biopsy | sample_id_urine | Urine sample ID | NA | Text |
2047 | Biopsy | sample_id_blood | Blood sample ID | NA | Text |
2048 | Biopsy | sample_id_tissue | Tissue sample ID | NA | Text |
2049 | Biopsy | AsDt | Date of biopsy | NA | Date |
2050 | Biopsy | DateOfReferral | Date of Referral | NA | Date |
2051 | Biopsy | biopsyInst | Biopsy institute | NA | Drop-down list |
2052 | Biopsy | PSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2053 | Biopsy | PSALevel | PSA Level | NA | Drop-down list |
2054 | Biopsy | Laterality | Laterality | 1 = Left 2 = Right 3 = Both -1 = Not stated | Drop-down list |
2055 | Biopsy | TumourPresYN | Presence of tumour | 0 = No 1 = Yes | Drop-down list |
2056 | Biopsy | ClinInType1 | Bone scan | NA | Boolean |
2057 | Biopsy | ClinInType2 | MRI | NA | Boolean |
2058 | Biopsy | ClinInType3 | CT | NA | Boolean |
2059 | Biopsy | ClinInType4 | Other | NA | Boolean |
2060 | Biopsy | ClinInOth | If Other, specify | NA | Text |
2061 | Biopsy | ClinInType5 | PET | NA | Boolean |
2062 | Biopsy | ClinInType6 | US | NA | Boolean |
2063 | Biopsy | ClinInType7 | Not Known | NA | Boolean |
2064 | Biopsy | MetHisType | Metastatic Histology Procedure | 1 = Lymph node biopsy 2 = Bone Biopsy 3 = Lung Biopsy 4 = Brain biopsy 5 = Liver biopsy 6 = Other | Drop-down list |
2065 | Biopsy | MetHisOth | If Other, specify | NA | Text |
2066 | Biopsy | DiagScrYN | Initial testing: Screen/Symptomatic | 1 = Asymptomatic (detected through routine screening) 2 = Symptomatic (presented with symptoms) 3 = Unknown 4 = Co-incidental finding | Drop-down list |
2067 | Biopsy | DiagMorph1 | Histology Type 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2068 | Biopsy | DiagMorphOther1 | Histology Type 1 (Other) | NA | Text |
2069 | Biopsy | DiagMorph2 | Histology Type 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2070 | Biopsy | DiagMorphOther2 | Histology Type 2 (Other) | NA | Text |
2071 | Biopsy | DiagMorph3 | Histology Type 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2072 | Biopsy | DiagMorphOther3 | Histology Type 3 (Other) | NA | Text |
2073 | Biopsy | DiagGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2074 | Biopsy | DiagGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2075 | Biopsy | DiagGleSum | = | NA | Integer |
2076 | Biopsy | MRIStatus | MRI status | 0 = No 1 = Yes 9 = Not known | Drop-down list |
2077 | Biopsy | MRIDetails | MRI Details | NA | Drop-down list |
2078 | Biopsy | PSAVolume | Prostate volume | NA | Real |
2079 | Biopsy | PSADensity | PSA density | NA | Real |
2080 | Biopsy | CurCa1 | No current cancer | NA | Boolean |
2081 | Biopsy | CurCa2 | Bladder | NA | Boolean |
2082 | Biopsy | CurCa3 | Brain | NA | Boolean |
2083 | Biopsy | CurCa4 | Bone (sarcoma) | NA | Boolean |
2084 | Biopsy | CurCa5 | Bowel (colorectal) | NA | Boolean |
2085 | Biopsy | CurCa6 | Endocrine (thyroid) | NA | Boolean |
2086 | Biopsy | CurCa7 | Kidney | NA | Boolean |
2087 | Biopsy | CurCa8 | Liver | NA | Boolean |
2088 | Biopsy | CurCa9 | Lung inc asbestos | NA | Boolean |
2089 | Biopsy | CurCa10 | Melanoma (skin) | NA | Boolean |
2090 | Biopsy | CurCa11 | Testes | NA | Boolean |
2091 | Biopsy | CurCa12 | Current cancer - site not specified | NA | Boolean |
2092 | Biopsy | CurCa13 | Other current cancer (describe) | NA | Boolean |
2093 | Biopsy | v5 | NA | NA | Group of Booleans |
2094 | Biopsy | CurCaOTH | If other, specify | NA | Text |
2095 | Brachytherapy | BraYN | Brachytherapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2096 | Brachytherapy | BraPrimSal | Primary or Salvage | 1 = Primary 2 = Salvage | Drop-down list |
2097 | Brachytherapy | LdrYN | LDR Brachytherapy | 0 = No 1 = Yes | Drop-down list |
2098 | Brachytherapy | HdrYN | HDR Brachytherapy | 0 = No 1 = Yes | Drop-down list |
2099 | Brachytherapy | BraUnk | Unknown Type Brachytherapy | 0 = No 1 = Yes | Drop-down list |
2100 | Brachytherapy | BraDt | Date of Brachytherapy | NA | Date |
2101 | Brachytherapy | BraRtDose | Total dose (Gy) | NA | Real |
2102 | Brachytherapy | BraPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2103 | Brachytherapy | BraPSA | PSA level | NA | Drop-down list |
2104 | Brachytherapy | BraClin | Radiation Oncologist | NA | Search list |
2105 | Brachytherapy | BraInst | Treatment Institute | NA | Drop-down list |
2106 | Brachytherapy | BraClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2107 | Brachytherapy | BraTrialNumber | Trial Number | NA | Text |
2108 | Brachytherapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | Drop-down list |
2109 | Brachytherapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2110 | Brachytherapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2111 | Brachytherapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2112 | Brachytherapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2113 | Brachytherapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2114 | Brachytherapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2115 | Brachytherapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2116 | Brachytherapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2117 | Brachytherapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2118 | Brachytherapy | OtherChk | Other domain, specify | NA | Boolean |
2119 | Brachytherapy | Other | Other domain, specify domain | NA | Text |
2120 | Brachytherapy | OtherGrade | Other domain, specify grade | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2121 | Brachytherapy | table3 | NA | NA | Table of items |
2122 | Chemotherapy | CheYN | Chemotherapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2123 | Chemotherapy | CheDt | Start date of Chemotherapy | NA | Date |
2124 | Chemotherapy | CheStopDt | Stop date of Chemotherapy | NA | Date |
2125 | Chemotherapy | CheStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list |
2126 | Chemotherapy | CheStopReasonNotes | Reason for stopping treatment notes | NA | Text |
2127 | Chemotherapy | ChePSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2128 | Chemotherapy | ChePSA | PSA level | NA | Drop-down list |
2129 | Chemotherapy | CheClin | Medical Oncologist | NA | Search list |
2130 | Chemotherapy | CheInst | Treatment Institute | NA | Drop-down list |
2131 | Chemotherapy | CheBoneAgents | Were bone agents used? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2132 | Chemotherapy | CheBoneAgentUsed | Bone agent used | 1 = Zoledronic Acid 2 = Denosumab 3 = Alpharidin 4 = Calcichew 5 = Other | Drop-down list |
2133 | Chemotherapy | CheBoneAgentOther | Bone agent used, other | NA | Text |
2134 | Chemotherapy | CheAgent | Agent used | 1 = Abiraterone 2 = Enzalutamide 3 = Darolutamide 4 = Other | Drop-down list |
2135 | Chemotherapy | CheAgentNotes | Agent notes | NA | Text |
2136 | Chemotherapy | CheClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2137 | Chemotherapy | CheTrialNumber | Trial Number | NA | Text |
2138 | Chemotherapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values |
2139 | Chemotherapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2140 | Chemotherapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2141 | Chemotherapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2142 | Chemotherapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2143 | Chemotherapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2144 | Chemotherapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2145 | Chemotherapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2146 | Chemotherapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2147 | Chemotherapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2148 | Chemotherapy | OtherChk | Other domain, specify | NA | Boolean |
2149 | Chemotherapy | Other | Other domain, specify (Text) | NA | Text |
2150 | Chemotherapy | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2151 | Chemotherapy | ComplicationsTable | Please specify complications domains and grade | NA | Table of items |
2152 | Demographic | consent | Verbal consent | NA | Boolean |
2153 | Demographic | doNotContact | Do not contact | NA | Boolean |
2154 | Demographic | contactedBy | Contacted by | Drop-down list | |
2155 | Demographic | contactedAt | Contacted at | NA | Date Time |
2156 | Demographic | Nm | Given name | NA | Text |
2157 | Demographic | MddleNm | Middle name | NA | Text |
2158 | Demographic | LstNm | Family name | NA | Text |
2159 | Demographic | DOB | Date of Birth | NA | Date |
2160 | Demographic | appointmentDate | Appointment date | NA | Date |
2161 | Demographic | appointmentTime | Appointment time | NA | Time |
2162 | Demographic | Address1 | Address 1 | NA | Text |
2163 | Demographic | Address2 | Address 2 | NA | Text |
2164 | Demographic | County | County | 1 = Antrim 2 = Armagh 3 = Carlow 4 = Cavan 5 = Clare 6 = Cork 7 = Derry 8 = Donegal 9 = Down 10 = Dublin 11 = Fermanagh 12 = Galway 13 = Kerry 14 = Kildare 15 = Kilkenny 16 = Laois 17 = Leitrim 18 = Limerick 19 = Longford 20 = Louth 21 = Mayo 22 = Meath 23 = Monaghan 24 = Offaly 25 = Roscommon 26 = Sligo 27 = Tipperary 28 = Tyrone 29 = Waterford 30 = Westmeath 31 = Wexford 32 = Wicklow | Drop-down list |
2165 | Demographic | Eircode | Eircode | NA | Text |
2166 | Demographic | AddNK | Address not known | NA | Boolean |
2167 | Demographic | NOFXAdd | No fixed address | NA | Boolean |
2168 | Demographic | PtEmail | Email address | NA | Text |
2169 | Demographic | noEmail | No known email address | NA | Boolean |
2170 | Demographic | countryCode | Country code | NA | Text |
2171 | Demographic | primaryPhone | Primary phone number | NA | Text |
2172 | Demographic | secondaryPhone | Secondary phone number | NA | Text |
2173 | Demographic | preferredMethodPROMs | Preferred method for receiving PROMs | 1 = Email 2 = Post 3 = N/A | Drop-down list |
2174 | Demographic | preferredMethodContact | Preferred method to be contacted | 1 = Email 2 = Post 3 = Phone 4 = SMS 5 = N/A | Drop-down list |
2175 | Demographic | GMS | GMS number | NA | Text |
2176 | Demographic | primaryConsultant | Primary consultant (urologist) | NA | Search list |
2177 | Demographic | RefDate | Referral date | NA | Date |
2178 | Demographic | currentGP | Current GP | NA | Text |
2179 | Demographic | practiceGP | GP Practice Name | NA | Text |
2180 | Demographic | emailGP | GP email address | NA | Text |
2181 | Demographic | vitalStatus | Vital status | 0 = Alive 1 = Dead 5 = Dead (not confirmed) 9 = Not known | Drop-down list |
2182 | Demographic | dod | Date of death | NA | Date |
2183 | Demographic | cod | Cause of death | NA | Text |
2184 | Demographic | ptSmoking | Smoking status | C = Current smoker N = Never smoked X = Ex smoker Z = Participant declines to answer | Drop-down list |
2185 | Demographic | Ethnicity | Ethnicity | 1 = Irish 2 = Irish Traveller 3 = Roma 4 = Any other White background 5 = African 6 = Any other Black background 7 = Chinese 8 = Indian/Pakistani/Bangladeshi 9 = Any other Asian background 10 = Arabic 11 = Mixed, write in description 12 = Other, write in description | Drop-down list |
2186 | Demographic | EthnicityOtherText | Ethnicity, other | NA | Text |
2187 | Demographic | PrefLan | Preferred language | NA | Drop-down list |
2188 | Demographic | familyDegree | First degree family member diagnosed with cancer | 1 = Parent 2 = Sibling 3 = Child 4 = No 99 = Unknown -1 = Participant declines to answer | Drop-down list |
2189 | Demographic | familyAge | Age when first degree family member diagnosed with cancer | 1 = < 65 years 2 = >= 65 years 99 = Unknown -1 = Participant declines to answer | Drop-down list |
2190 | Diagnosis | DiagInst | Diagnosing institute | NA | Drop-down list |
2191 | Diagnosis | DiagClin | Diagnosing Clinician | NA | Search list |
2192 | Diagnosis | DiagPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2193 | Diagnosis | DiagPSALevel | PSA Level | NA | Drop-down list |
2194 | Diagnosis | DiagDt | Date of diagnosis | NA | Date |
2195 | Diagnosis | AgeDiag | Age at Diagnosis | NA | Real |
2196 | Diagnosis | YrsPrCa | Years living with Prostate Cancer | NA | Real |
2197 | Diagnosis | YrsPrCaDth | Years living with Prostate Cancer at time of death | NA | Real |
2198 | Diagnosis | DiagMeth | Method of diagnosis | 1 = TRUS 2 = TURP 3 = TURBT 4 = Transperineal biopsy 5 = Clinical Investigation (eg Bone scan, CT, MRI) 6 = Histology of metastatic site (bone biopsy Lymph node biopsy) 7 = Prostatectomy (simple,diagnostic) 8 = Other 9 = Unknown 10 = Cystoprostatectomy | Drop-down list |
2199 | Diagnosis | DiagMethOth | If Other, Specify | NA | Text |
2200 | Diagnosis | ClinInType1 | Bone scan | NA | Boolean |
2201 | Diagnosis | ClinInType2 | MRI | NA | Boolean |
2202 | Diagnosis | ClinInType3 | CT | NA | Boolean |
2203 | Diagnosis | ClinInType4 | Other | NA | Boolean |
2204 | Diagnosis | ClinInOth | If Other, specify | NA | Text |
2205 | Diagnosis | ClinInType5 | PET | NA | Boolean |
2206 | Diagnosis | ClinInType6 | US | NA | Boolean |
2207 | Diagnosis | ClinInType7 | Not Known | NA | Boolean |
2208 | Diagnosis | MetHisType | Metastatic Histology Procedure | 1 = Lymph node biopsy 2 = Bone Biopsy 3 = Lung Biopsy 4 = Brain biopsy 5 = Liver biopsy 6 = Other | Drop-down list |
2209 | Diagnosis | MetHisOth | If Other, specify | NA | Text |
2210 | Diagnosis | DiagMorph1 | Histology Type 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2211 | Diagnosis | DiagMorphOther1 | Histology Type 1 (Other) | NA | Text |
2212 | Diagnosis | DiagMorph2 | Histology Type 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2213 | Diagnosis | DiagMorphOther2 | Histology Type 2 (Other) | NA | Text |
2214 | Diagnosis | DiagMorph3 | Histology Type 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2215 | Diagnosis | DiagMorphOther3 | Histology Type 3 (Other) | NA | Text |
2216 | Diagnosis | DiagGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2217 | Diagnosis | DiagGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2218 | Diagnosis | DiagGleSum | = | NA | Integer |
2219 | Diagnosis | CribriformPatternPresent | Cribriform Morphology Pattern Present | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2220 | Diagnosis | PatternPercent | Percentage of Pattern 4 | 1 = < 5% 2 = 10% 3 = 20% 4 = 30% 5 = 50% 6 = > 50% 7 = 100% 8 = Other | Drop-down list |
2221 | Diagnosis | PatternPercentOther | Percentage of Pattern 4, other | NA | Integer |
2222 | Diagnosis | DiagCoresPos | Number of positive cores | NA | Integer |
2223 | Diagnosis | DiagCoresTot | Total Number of cores | NA | Integer |
2224 | Diagnosis | DiagCoresPerPos | % positive cores | NA | Integer |
2225 | Diagnosis | DiagCoresInvol | Greatest % cancer involvement in any one biopsy core at time of diagnosis | NA | Integer |
2226 | Diagnosis | PeriNeuYN | Perineural Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list |
2227 | Diagnosis | LymvasYN | Lymphovascular Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list |
2228 | Diagnosis | ExtProsYN | Extraprostatic Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list |
2229 | Diagnosis | SVInvYN | Seminal Vesicle Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list |
2230 | Diagnosis | DiagMRIStatus | MRI status | 0 = No 1 = Yes 9 = Not known | Drop-down list |
2231 | Diagnosis | DiagMRIDetails | MRI Details | NA | Drop-down list |
2232 | Diagnosis | PSAVolume | Prostate volume | NA | Real |
2233 | Diagnosis | PSADensity | PSA density | NA | Real |
2234 | Diagnosis | ClinTYN | Clinical T stage status | 0 = DRE not taken 1 = DRE taken 2 = DRE refused by patient | Drop-down list |
2235 | Diagnosis | ClinTOutcome | Clinical T stage outcome | 1 = Unremarkable 2 = Abnormal findings (enlarged, nodules, hardness etc) 3 = Other | Drop-down list |
2236 | Diagnosis | ClinTOutcomeOther | Clinical T stage outcome, other | NA | Text |
2237 | Diagnosis | DiagcT | Pathological T stage | 1 = TX (cannot be assessed) 2 = T0 3 = T1 4 = T1a 5 = T1b 6 = T1c 7 = T2 8 = T2a 9 = T2b 10 = T2c 11 = T3 12 = T3a 13 = T3b 14 = T4 15 = T4a 16 = T4b | Drop-down list |
2238 | Diagnosis | DiagcN | Pathological N stage | 1 = NX 2 = N0 3 = N1 | Drop-down list |
2239 | Diagnosis | DiagcM | Pathological M stage | 1 = MX 2 = M0 3 = M1a 4 = M1b 5 = M1c 7 = M1 | Drop-down list |
2240 | Diagnosis | DiagRdBone | Bone scan | NA | Boolean |
2241 | Diagnosis | DiagRdBoneScanDt | Date of Bone scan | NA | Date |
2242 | Diagnosis | DiagRdBoneScanFindings | Bone scan findings | 1 = Normal 2 = Abnormal | Drop-down list |
2243 | Diagnosis | DiagRdBoneScanNotes | Bone scan findings, notes | NA | Text memo |
2244 | Diagnosis | DiagRdPet | PET | NA | Boolean |
2245 | Diagnosis | DiagRdPetDt | Date of PET scan | NA | Date |
2246 | Diagnosis | DiagRdPetFindings | PET scan findings | 1 = Normal 2 = Abnormal | Drop-down list |
2247 | Diagnosis | DiagRdPetNotes | PET scan findings, notes | NA | Text memo |
2248 | Diagnosis | DiagRdCT | CT | NA | Boolean |
2249 | Diagnosis | DiagRdCTDt | Date of CT | NA | Date |
2250 | Diagnosis | DiagRdCTFindings | CT findings | 1 = Normal 2 = Abnormal | Drop-down list |
2251 | Diagnosis | DiagRdCTNotes | CT findings, notes | NA | Text memo |
2252 | Diagnosis | DiagRdPSMA | PSMA PET | NA | Boolean |
2253 | Diagnosis | DiagRdPSMADt | Date of PSMA PET | NA | Date |
2254 | Diagnosis | DiagRdPSMAFindings | PSMA PET findings | 1 = Normal 2 = Abnormal | Drop-down list |
2255 | Diagnosis | DiagRdPSMANotes | PSMA PET findings, notes | NA | Text memo |
2256 | Diagnosis | DiagRdNo | No radiology test done. N & M staging were assigned based on clinical assessment | NA | Boolean |
2257 | Diagnosis | DiagRdOther | Other, specify | NA | Boolean |
2258 | Diagnosis | DiagcMMethOth | If Other, Specify | NA | Text |
2259 | Diagnosis | DiagRdOtherDt | Date of other | NA | Date |
2260 | Diagnosis | DiagRdOtherFindings | Other findings | 1 = Normal 2 = Abnormal | Drop-down list |
2261 | Diagnosis | DiagRdOtherNotes | Other findings, notes | NA | Text memo |
2262 | Diagnosis | DiagRdUnknown | Unknown | NA | Boolean |
2263 | Diagnosis | TNMoverall | TNM overall grouping | 1 = Stage I 2 = Stage IIA 3 = Stage IIB 4 = Stage III 5 = Stage IV 6 = Not stated | Drop-down list |
2264 | Diagnosis | Stagschadd | AJCC Staging Scheme Edition | 1 = 6th edition 2 = 7th edition 3 = 8th edition 9 = Unknown | Drop-down list |
2265 | Diagnosis | CAPRA | CAPRA Score | NA | Integer |
2266 | Diagnosis | NCCN | NCCN score | NA | Integer |
2267 | Diagnosis | NCCN_Latest | NCCN (Latest) | NA | Integer |
2268 | Diagnosis | PRIAS | PRIAS | NA | Integer |
2269 | Diagnosis | DiagISUP | Diagnosis ISUP grade | NA | Integer |
2270 | 12 month EPIC 26 | EPIC26Qu1 | 1) Over the past 4weeks, how often have you leaked urine? | 1 = More than once a day 2 = About once a day 3 = More than once a week 4 = About once a week 5 = Rarely or never -1 = Participant declines to answer | List of values |
2271 | 12 month EPIC 26 | EPIC26Qu2 | 2) Which of the following best describes your urinary control during the last 4 weeks? | 1 = No urinary control whatsoever 2 = Frequent dribbling 3 = Occasional dribbling 4 = Total control -1 = Participant declines to answer | List of values |
2272 | 12 month EPIC 26 | EPIC26Qu3 | 3) How many pads or adult diapers per day did you usually use to control leakage during the last 4 weeks? | 1 = None 2 = 1 pad per day 3 = 2 pads per day 4 = 3 or more pads per day -1 = Participant declines to answer | List of values |
2273 | 12 month EPIC 26 | EPIC26Qu4A | A. Dripping or leaking urine | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2274 | 12 month EPIC 26 | EPIC26Qu4B | B. Pain or burning on urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2275 | 12 month EPIC 26 | EPIC26Qu4C | C. Bleeding with urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2276 | 12 month EPIC 26 | EPIC26Qu4D | D. Weak urine stream or incomplete emptying | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2277 | 12 month EPIC 26 | EPIC26Qu4E | E. Need to urinate frequently during the day | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2278 | 12 month EPIC 26 | EPIC26Qu4 | 4) How big a problem, if any, has each of the following been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists |
2279 | 12 month EPIC 26 | EPIC26Qu5 | 5) Overall, how big a problem has your urinary function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2280 | 12 month EPIC 26 | EPIC26Qu6A | A. Urgency to have a bowel movement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2281 | 12 month EPIC 26 | EPIC26Qu6B | B. Increased frequency of bowel movements | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2282 | 12 month EPIC 26 | EPIC26Qu6C | C. Losing control of your stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2283 | 12 month EPIC 26 | EPIC26Qu6D | D. Bloody stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2284 | 12 month EPIC 26 | EPIC26Qu6E | E. Abdominal/ Pelvic/Rectal pain | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2285 | 12 month EPIC 26 | v9EPIC26Qu6 | 6) How big a problem, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists |
2286 | 12 month EPIC 26 | EPIC26Qu7 | 7) Overall, how big a problem have your bowel habits been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2287 | 12 month EPIC 26 | EPIC26Qu8A | A. Your ability to have an erection? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values |
2288 | 12 month EPIC 26 | EPIC26Qu8B | B. Your ability to reach orgasm (climax)? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values |
2289 | 12 month EPIC 26 | EPIC26Qu8 | 8) How would you rate each of the following during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | Group of Lists |
2290 | 12 month EPIC 26 | EPIC26Qu9 | 9) How would you describe the usual QUALITY of your erections during the last 4 weeks? | 1 = None at all 2 = Not firm enough for any sexual activity 3 = Firm enough for masturbation and foreplay only 4 = Firm enough for intercourse -1 = Participant declines to answer | List of values |
2291 | 12 month EPIC 26 | EPIC26Qu10 | 10) How would you describe the FREQUENCY of your erections during the last 4 weeks? | 1 = I NEVER had an erection when I wanted one 2 = I had an erection LESS THAN HALF the time I wanted one 3 = I had an erection ABOUT HALF the time I wanted one 4 = I had an erection MORE THAN HALF the time I wanted one 5 = I had an erection WHENEVER I wanted one -1 = Participant declines to answer | List of values |
2292 | 12 month EPIC 26 | EPIC26Qu11 | 11) Overall, how would you rate your ability to function sexually during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values |
2293 | 12 month EPIC 26 | EPIC26Qu12 | 12) Overall, how big a problem has your sexual function or lack of sexual function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2294 | 12 month EPIC 26 | EPIC26Qu13A | A. Hot flashes | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2295 | 12 month EPIC 26 | EPIC26Qu13B | B. Breast tenderness/enlargement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2296 | 12 month EPIC 26 | EPIC26Qu13C | C. Feeling depressed | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2297 | 12 month EPIC 26 | EPIC26Qu13D | D. Lack of energy | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2298 | 12 month EPIC 26 | EPIC26Qu13E | E. Change in body weight | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2299 | 12 month EPIC 26 | EPIC26Qu13 | 13) How big a problem during the last 4 weeks, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists |
2300 | 12 month EPIC 26 | LIBIDOQu1 | 1) During the last 4 weeks, to what extent were you interested in sex? | 0 = Not at all 1 = A little 2 = Quite a bit 3 = Very much -1 = Participant declines to answer | List of values |
2301 | 12 month EPIC 26 | LIBIDOQu2 | 2) Have you used any medications or devices to aid or improve erections? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2302 | 12 month EPIC 26 | LIBIDOQu3A | A. Viagra or another pill to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2303 | 12 month EPIC 26 | LIBIDOQu3B | B. Muse (intraâ€urethral alprostadil suppository) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2304 | 12 month EPIC 26 | LIBIDOQu3C | C. Penile injection therapy (such as caverject) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2305 | 12 month EPIC 26 | LIBIDOQu3D | D. Vacuum erection device (such as erect-aid) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2306 | 12 month EPIC 26 | LIBIDOQu3E | E. Medication/device other than those explicitly listed to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2307 | 12 month EPIC 26 | LIBIDOQu3 | 3) Please indicate whether or not you have tried or currently use: | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | Group of Lists |
2308 | 12 month EPIC 26 | ConYN | Are you happy to be contacted again in 12 months? | 1 = Yes 2 = No -1 = Unknown | Drop-down list |
2309 | 12 month EPIC 26 | EPICSurveyMode | Survey Mode | 1 = Phone 2 = Email 3 = Mail 4 = Site | List of values |
2310 | 12 month EPIC 26 | ReceivedOn | Mail received on | NA | Date |
2311 | 12 month EPIC 26 | DtEPICComplete | EPIC-26 completion date | NA | Date |
2312 | Focal-gland ablation therapy | FoGlYN | Focal-gland ablation therapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2313 | Focal-gland ablation therapy | FoGlPrimSal | Primary or salvage | 1 = Primary 2 = Salvage | Drop-down list |
2314 | Focal-gland ablation therapy | FoGlDt | Date of focal-gland ablation therapy | NA | Date |
2315 | Focal-gland ablation therapy | FoGlPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2316 | Focal-gland ablation therapy | FoGlPSA | PSA level | NA | Drop-down list |
2317 | Focal-gland ablation therapy | FoGlClin | Clinician | NA | Search list |
2318 | Focal-gland ablation therapy | FoGlInst | Treatment Institute | NA | Drop-down list |
2319 | Focal-gland ablation therapy | FoGlClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2320 | Focal-gland ablation therapy | FoGlTrialNumber | Trial Number | NA | Text |
2321 | Focal-gland ablation therapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values |
2322 | Focal-gland ablation therapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2323 | Focal-gland ablation therapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2324 | Focal-gland ablation therapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2325 | Focal-gland ablation therapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2326 | Focal-gland ablation therapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2327 | Focal-gland ablation therapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2328 | Focal-gland ablation therapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2329 | Focal-gland ablation therapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2330 | Focal-gland ablation therapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2331 | Focal-gland ablation therapy | OtherChk | Other domain, specify | NA | Boolean |
2332 | Focal-gland ablation therapy | Other | Other domain, specify (Text) | NA | Text |
2333 | Focal-gland ablation therapy | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2334 | Focal-gland ablation therapy | ComplicationsTable | Please specify complications domains and grade | NA | Table of items |
2335 | Additional focal therapy | FoGlAddStartDt | Date | NA | Date |
2336 | Additional focal therapy | FoGlAddStartDtAcc | Date Accuracy | 1 = AAA 2 = AAE 3 = AAU 4 = AEE 5 = AEU 6 = AUU 7 = AUA 8 = AUE 9 = AEA 10 = EAA 11 = EAE 12 = EAU 13 = EEA 14 = EEE 15 = EEU 16 = EUA 17 = EUE 18 = EUU 19 = UAA 20 = UAE 21 = UAU 22 = UEA 23 = UEE 24 = UEU 25 = UUA 26 = UUE 27 = UUU | Drop-down list |
2337 | Additional focal therapy | FoGlAddPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2338 | Additional focal therapy | FoGlAddPSA | PSA Level | NA | Drop-down list |
2339 | Additional focal therapy | FoGlAddClin | Clinician | NA | Search list |
2340 | Additional focal therapy | FoGlAddInst | Treatment Institute | NA | Drop-down list |
2341 | Follow-up | LtfuYN | Lost to Follow Up | 0 = No 1 = Yes | Drop-down list |
2342 | Follow-up | LtfuReas | Reason for Lost to Follow Up | 1 = Patient deceased 2 = Patient unwell 3 = Non-english speaking 4 = Unable to contact 5 = Patient not interested in participating (remove data completely from the registry) 6 = Patient diagnosed earlier than denoted in this notification 7 = Late notification 8 = Patient diagnosed in another hospital at an earlier time 9 = Waiver for TURP 10 = Waiver for death 11 = Patient not interested in participating (Consent for data collection only) 12 = Dr not recruited at time of follow up 13 = Hearing impairment 14 = Late notification of TURP awareness 15 = Wrong/disconnected number 16 = Other (please state) 17 = Delayed data collection 18 = PROMS not returned 19 = Being followed up by another jurisdiction 20 = Delayed data collection due to covid-19 | Drop-down list |
2343 | Follow-up | LtfuOth | Other Reason | NA | Text |
2344 | Follow-up | DtFollowupComplete | Date of Follow Up | NA | Date |
2410 | MRI Sub-form | MRIDt | MRI Date | NA | Date |
2411 | MRI Sub-form | PIRADS | PI-RADS | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not Stated | Drop-down list |
2412 | MRI Sub-form | length | Length (cm) | NA | Real |
2413 | MRI Sub-form | width | Width (cm) | NA | Real |
2414 | MRI Sub-form | height | Height (cm) | NA | Real |
2415 | MRI Sub-form | volume | Volume (ml) | NA | Real |
2450 | Other Systemic Therapies | OthSyThYN | Other systemic therapies | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2451 | Other Systemic Therapies | OthSyThStartDt | Start date of Other Systemic Therapies | NA | Date |
2452 | Other Systemic Therapies | OthSyThEndDt | End date of Other Systemic Therapies | NA | Date |
2453 | Other Systemic Therapies | OthSysStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list |
2454 | Other Systemic Therapies | OthSysStopNotes | Reason for stopping treatment notes | NA | Text |
2455 | Other Systemic Therapies | Notes | Notes | NA | Text memo |
2456 | Other Systemic Therapies | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values |
2457 | Other Systemic Therapies | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2458 | Other Systemic Therapies | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2459 | Other Systemic Therapies | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2460 | Other Systemic Therapies | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2461 | Other Systemic Therapies | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2462 | Other Systemic Therapies | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2463 | Other Systemic Therapies | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2464 | Other Systemic Therapies | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2465 | Other Systemic Therapies | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2466 | Other Systemic Therapies | OtherChk | Other domain, specify | NA | Boolean |
2467 | Other Systemic Therapies | Other | Other domain, specify (Text) | NA | Text |
2468 | Other Systemic Therapies | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2469 | Other Systemic Therapies | ComplicationsTable | Please specify complications domains and grade | NA | Table of items |
2470 | Other/Unknown/Referred Treatment | OthPrimSal | Type | 1 = Primary 2 = Salvage | Drop-down list |
2471 | Other/Unknown/Referred Treatment | OthYN | Other treatment | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2472 | Other/Unknown/Referred Treatment | OthDt | Start Date | NA | Date |
2473 | Other/Unknown/Referred Treatment | OthStopDt | Stop Date | NA | Date |
2474 | Other/Unknown/Referred Treatment | OthStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list |
2475 | Other/Unknown/Referred Treatment | OthStopNotes | Reason for stopping treatment notes | NA | Text |
2476 | Other/Unknown/Referred Treatment | OthPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2477 | Other/Unknown/Referred Treatment | OthPsa | NA | NA | Drop-down list |
2478 | Other/Unknown/Referred Treatment | OthType | Other treatment type | NA | Text |
2479 | Other/Unknown/Referred Treatment | OthClin | Clinician | NA | Search list |
2480 | Other/Unknown/Referred Treatment | OthInst | Treatment Institute | NA | Drop-down list |
2481 | Other/Unknown/Referred Treatment | UnkYN | Unknown Treatment | 0 = No 1 = Yes | List of values |
2482 | Other/Unknown/Referred Treatment | UnkNote | Treatment note | NA | Text memo |
2483 | Other/Unknown/Referred Treatment | UnkRefYN | Referred treatment | 0 = No 1 = Yes | List of values |
2484 | Other/Unknown/Referred Treatment | UnkRefClin | Referred Clinician | NA | Search list |
2485 | Other/Unknown/Referred Treatment | UnkRefInst | Treatment Institute | NA | Drop-down list |
2486 | PSA Sub-form | PSAdat | PSA Date | NA | Date |
2487 | PSA Sub-form | PSALev | PSA Level | NA | Real |
2488 | Radiotherapy | RtYN | Radiotherapy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2489 | Radiotherapy | RtPrimSalPal | Treatment intent | 1 = Primary 2 = Salvage 3 = Palliative | Drop-down list |
2490 | Radiotherapy | RtType | Type of Radiation | 1 = EBRT 2 = Brachytherapy | Drop-down list |
2491 | Radiotherapy | RtNodesTargeted | Were elective nodes targeted in EBRT? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2492 | Radiotherapy | LdrYN | LDR Brachytherapy | 0 = No 1 = Yes | Drop-down list |
2493 | Radiotherapy | HdrYN | HDR Brachytherapy | 0 = No 1 = Yes | Drop-down list |
2494 | Radiotherapy | RtDt | Start date of Radiotherapy | NA | Date |
2495 | Radiotherapy | RtStopDt | Stop date of Radiotherapy | NA | Date |
2496 | Radiotherapy | RtStopReason | Reason for stopping treatment | 1 = Planned (completion) 2 = Unplanned (toxicity) 3 = Unplanned (progression) 4 = Other | Drop-down list |
2497 | Radiotherapy | RtStopReasonNotes | Reason for stopping treatment notes | NA | Text |
2498 | Radiotherapy | RtDose | Total dose (Gy) | NA | Real |
2499 | Radiotherapy | RtDoseKnown | Unknown | NA | Boolean |
2500 | Radiotherapy | RtFrac | Number of Fractions | NA | Integer |
2501 | Radiotherapy | RtFracKnown | Unknown | NA | Boolean |
2502 | Radiotherapy | RtPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2503 | Radiotherapy | RtPSA | PSA level | NA | Drop-down list |
2504 | Radiotherapy | RtClin | Radiation Oncologist | NA | Search list |
2505 | Radiotherapy | RtInst | Treatment Institute | NA | Drop-down list |
2506 | Radiotherapy | RtClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2507 | Radiotherapy | RtTrialNumber | Trial Number | NA | Text |
2508 | Radiotherapy | ComplicationYN | Patient experienced a CTCAE grade 3 or 4 complication during treatment | 0 = No 1 = Yes | List of values |
2509 | Radiotherapy | Fatigue | Fatigue | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2510 | Radiotherapy | Dermatitis | Dermatitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2511 | Radiotherapy | Diarrhoea | Diarrhoea | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2512 | Radiotherapy | AbdominalPain | Abdominal Pain | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2513 | Radiotherapy | RectalMucositis | Rectal Mucositis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2514 | Radiotherapy | Proctitis | Proctitis | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2515 | Radiotherapy | HotFlashes | Hot Flashes | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2516 | Radiotherapy | CystitisNonInfective | Cystitis Non-Infective | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2517 | Radiotherapy | UrinaryRetention | Urinary Retention | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2518 | Radiotherapy | OtherChk | Other domain, specify | NA | Boolean |
2519 | Radiotherapy | Other | Other domain, specify (Text) | NA | Text |
2520 | Radiotherapy | OtherGrade | Other domain, specify (Grade) | 0 = No 1 = Grade 3 2 = Grade 4 | Drop-down list |
2521 | Radiotherapy | ComplicationsTable | Please specify complications domains and grade | NA | Table of items |
2522 | Surgery | SurYN | Prostatectomy | 0 = No 1 = Yes 2 = Pending 9 = Not known | Drop-down list |
2523 | Surgery | SurPrimSal | Type | 1 = Primary 2 = Salvage | Drop-down list |
2524 | Surgery | SurDt | Date of surgery | NA | Date |
2525 | Surgery | SurPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2526 | Surgery | SurPSA | PSA level | NA | Drop-down list |
2527 | Surgery | SurType | Surgical Approach | 6065 = Open prostatectomy 6069 = Laproscopic prostatectomy 3 = Robot assisted laparoscopic prostatectomy 4 = Open (converted from laproscopic) 5 = Open (converted from robotic) 7 = Other prostatectomy | Drop-down list |
2528 | Surgery | SurOth | Surgery (Other) | NA | Text |
2529 | Surgery | SurNerveSpare | Nerve Sparing Status | 1 = Non-nerve-sparing 2 = Nerve-sparing -1 = Unknown | Drop-down list |
2530 | Surgery | SurClin | Surgeon | NA | Search list |
2531 | Surgery | SurInst | Treatment Institute | NA | Drop-down list |
2532 | Surgery | SurHistType | Histology Type 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2533 | Surgery | OtherHistoTypeCode | Histology Type Other | NA | Text |
2534 | Surgery | SurHistType2 | Histology Type 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2535 | Surgery | OtherHistoTypeCode2 | Histology Type 2 Other | NA | Text |
2536 | Surgery | SurHistType3 | Histology Type 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2537 | Surgery | OtherHistoTypeCode3 | Histology Type 3 Other | NA | Text |
2538 | Surgery | SurTumourPresYN | Presence of Tumour? | 0 = No 1 = Yes 9 = Not Known | Drop-down list |
2539 | Surgery | SurT | T stage | 1 = TX (not assessed) 2 = T0 7 = T2 8 = T2a 9 = T2b 10 = T2c 11 = T3 12 = T3a 13 = T3b 14 = T4 15 = T4a 16 = T4b | Drop-down list |
2540 | Surgery | SurN | N stage | 0 = N0 1 = N1 2 = NX (nodes not biopsied) | Drop-down list |
2541 | Surgery | SurGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2542 | Surgery | SurGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2543 | Surgery | SurGleSum | = | NA | Integer |
2544 | Surgery | CribriformPatternPresent | Cribriform Morphology Pattern Present | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2545 | Surgery | PatternPercent | Percentage of Pattern 4 | 1 = < 5% 2 = 10% 3 = 20% 4 = 30% 5 = 50% 6 = > 50% 7 = 100% 8 = Other | Drop-down list |
2546 | Surgery | PatternPercentOther | Percentage of Pattern 4, other | NA | Integer |
2547 | Surgery | SurTer | Tertiary score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2548 | Surgery | SurMar | Pathological Margins | 1 = Present (positive) 2 = Absent (negative) -1 = Not stated | Drop-down list |
2549 | Surgery | SurFocal | Margin status focality | 1 = Focal 2 = Multi-focal -1 = Unknown | Drop-down list |
2550 | Surgery | SurFocExt | Focal/Extensive Margins | 1 = <= 1mm (focal) 2 = > 1mm (extensive) -1 = Not stated/unknown -2 = No pathology report | Drop-down list |
2551 | Surgery | SurPInv | Perineural Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list |
2552 | Surgery | SurLInv | Lymphovascular Invasion | 2 = Artery 3 = Vein 4 = Lymph 5 = Multiple vessel types 1 = Vessel not known 0 = No -2 = No pathology report -1 = Not stated | Drop-down list |
2553 | Surgery | SurEPInv | Extraprostatic Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list |
2554 | Surgery | SurSVInv | Seminal Vesicle Invasion | 0 = No 1 = Yes -1 = Not stated -2 = No pathology report | Drop-down list |
2555 | Surgery | TNMgroup | TNM grouping | 1 = Stage I 2 = Stage IIA 3 = Stage IIB 4 = Stage III 5 = Stage IV 6 = Not stated | Drop-down list |
2556 | Surgery | StagschemeEd | AJCC Staging scheme Edition | 1 = 6th edition 2 = 7th edition 3 = 8th edition 9 = Unknown | Drop-down list |
2557 | Surgery | PelvicLymphDone | Pelvic lymph node dissection done | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2558 | Surgery | PelvicLymphRem | Number of nodes removed | NA | Integer |
2559 | Surgery | PelvicLymphPos | Number of nodes positive for cancer | NA | Integer |
2560 | Surgery | SurClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2561 | Surgery | SurTrialNumber | Trial number | NA | Text |
2562 | Surgery | Clavien | Patient experienced a Clavien grade III-V complication (maximum grade) | 0 = No 1 = Grade 3 2 = Grade 4 3 = Grade 5 | Drop-down list |
2563 | Surgery | table-ectomyYN | NA | NA | Table of items |
2564 | Baseline survey | eortc31 | 31. Have you had to urinate frequently during the day? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2565 | Baseline survey | eortc32 | 32. Have you had to urinate frequently at night? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2566 | Baseline survey | eortc33 | 33. When you felt the urge to pass urine, did you have to hurry to get to the toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2567 | Baseline survey | eortc34 | 34. Was it difficult for you to get enough sleep, because you needed to get up frequently at night to urinate? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2568 | Baseline survey | eortc35 | 35. Have you had difficulty going out of the house because you needed to be close to a toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2569 | Baseline survey | eortc_pr25_group1 | During the past week: (Please select one on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists |
2570 | Baseline survey | eortc36 | 36. Have you had any unintentional release (leakage) of urine? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2571 | Baseline survey | eortc37 | 37. Did you have pain when you urinated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2572 | Baseline survey | eortc38 | 38. Answer this question only if you wear an incontinence aid: Has wearing an incontinence aid been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2573 | Baseline survey | eortc39 | 39. Have your daily activities been limited by your urinary problems? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2574 | Baseline survey | eortc40 | 40. Have your daily activities been limited by your bowel problems? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2575 | Baseline survey | eortc41 | 41. Have you had any unintentional release (leakage) of stools? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2576 | Baseline survey | eortc42 | 42. Have you had blood in your stools? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2577 | Baseline survey | eortc43 | 43. Did you have a bloated feeling in your abdomen? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2578 | Baseline survey | eortc44 | 44. Did you have hot flushes? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2579 | Baseline survey | eortc45 | 45. Have you had sore or enlarged nipples or breasts? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2580 | Baseline survey | eortc46 | 46. Have you had swelling in your legs or ankles? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2581 | Baseline survey | eortc1 | 1. Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or suitcase? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2582 | Baseline survey | eortc47 | 47. Has weight loss been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2583 | Baseline survey | eortc48 | 48. Has weight gain been a problem for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2584 | Baseline survey | eortc2 | 2. Do you have any trouble taking a long walk? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2585 | Baseline survey | eortc3 | 3. Do you have any trouble taking a short walk outside of the house? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2586 | Baseline survey | eortc49 | 49. Have you felt less masculine as a result of your illness or treatment? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2587 | Baseline survey | eortc50 | 50. To what extent were you interested in sex? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2588 | Baseline survey | eortc4 | 4. Do you need to stay in bed or a chair during the day? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2589 | Baseline survey | eortc5 | 5. Do you need help with eating, dressing, washing yourself or using the toilet? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2590 | Baseline survey | eortc51 | 51. To what extent were you sexually active (with or without intercourse)? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2591 | Baseline survey | eortc_pr25_group2 | During the past 4 weeks: (Please select one on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists |
2592 | Baseline survey | eortc_c30_group1 | Please tell us more about your quality of life in general | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists |
2593 | Baseline survey | eortc52 | 52. To what extent was sex enjoyable for you? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2594 | Baseline survey | eortc6 | 6. Were you limited in doing either your work or other daily activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2595 | Baseline survey | eortc7 | 7. Were you limited in pursuing your hobbies or other leisure time activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2596 | Baseline survey | eortc53 | 53. Did you have difficulty getting or maintaining an erection? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2597 | Baseline survey | eortc54 | 54. Did you have ejaculation problems (eg dry ejaculation)? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2598 | Baseline survey | eortc8 | 8. Were you short of breath? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2599 | Baseline survey | eortc9 | 9. Have you had pain? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2600 | Baseline survey | eortc55 | 55. Have you felt uncomfortable about being sexually intimate? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2601 | Baseline survey | eortc10 | 10. Did you need to rest? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2602 | Baseline survey | eortc11 | 11. Have you had trouble sleeping? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2603 | Baseline survey | eortc12 | 12. Have you felt weak? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2604 | Baseline survey | eortc_c30_group2 | During the past week: | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists |
2605 | Baseline survey | eortc_pr25_group3 | Please answer the next four questions only if you have been sexually active over the last 4 weeks: (Please tick one box on each line) | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | Group of Lists |
2606 | Baseline survey | eortc13 | 13. Have you lacked appetite? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2607 | Baseline survey | eortc14 | 14. Have you felt nauseated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2608 | Baseline survey | eortc15 | 15. Have you vomited? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2609 | Baseline survey | eortc16 | 16. Have you been constipated? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2610 | Baseline survey | eortc17 | 17. Have you had diarrhoea? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2611 | Baseline survey | eortc18 | 18. Were you tired? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2612 | Baseline survey | eortc19 | 19. Did pain interfere with your daily activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2613 | Baseline survey | eortc20 | 20. Have you had difficulty in concentrating on things like reading a newspaper or watching television? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2614 | Baseline survey | eortc21 | 21. Did you feel tense? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2615 | Baseline survey | eortc22 | 22. Did you worry? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2616 | Baseline survey | eortc23 | 23. Did you feel irritable? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2617 | Baseline survey | eortc24 | 24. Did you feel depressed? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2618 | Baseline survey | eortc25 | 25. Have you had difficulty remembering things? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2619 | Baseline survey | eortc26 | 26. Has your physical condition or medical treatment interfered with your family life? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2620 | Baseline survey | eortc27 | 27. Has your physical condition or medical treatment interfered with your social activities? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2621 | Baseline survey | eortc28 | 28. Has your physical condition or medical treatment caused your financial difficulties? | 1 = Not at all 2 = A little 3 = Quite a bit 4 = Very much -1 = Participant declines to answer | List of values |
2622 | Baseline survey | eortc29 | 29. How would you rate your overall health during the past week? | 1 = 1 (Very poor) 2 = 2 3 = 3 4 = 4 5 = 5 6 = 6 7 = 7 (Excellent) -1 = Participant declines to answer | List of values |
2623 | Baseline survey | eortc30 | 30. How would you rate your overall quality of life during the past week? | 1 = 1 (Very poor) 2 = 2 3 = 3 4 = 4 5 = 5 6 = 6 7 = 7 (Excellent) -1 = Participant declines to answer | List of values |
2624 | Baseline survey | EPIC26Qu1 | 1. Over the past 4 weeks, how often have you leaked urine? | 1 = More than once a day 2 = About once a day 3 = More than once a week 4 = About once a week 5 = Rarely or never -1 = Participant declines to answer | List of values |
2625 | Baseline survey | EPIC26Qu2 | 2. Which of the following best describes your urinary control during the last 4 weeks? | 1 = No urinary control whatsoever 2 = Frequent dribbling 3 = Occasional dribbling 4 = Total control -1 = Participant declines to answer | List of values |
2626 | Baseline survey | EPIC26Qu3 | 3. How many pads or adult diapers per day did you usually use to control leakage during the last 4 weeks? | 1 = None 2 = 1 pad per day 3 = 2 pads per day 4 = 3 or more pads per day -1 = Participant declines to answer | List of values |
2627 | Baseline survey | EPIC26Qu4A | A. Dripping or leaking urine | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2628 | Baseline survey | EPIC26Qu4B | B. Pain or burning on urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2629 | Baseline survey | EPIC26Qu4C | C. Bleeding with urination | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2630 | Baseline survey | EPIC26Qu4D | D. Weak urine stream or incomplete emptying | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2631 | Baseline survey | EPIC26Qu4E | E. Need to urinate frequently during the day | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2632 | Baseline survey | EPIC26Qu4 | 4. How big a problem, if any, has each of the following been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists |
2633 | Baseline survey | EPIC26Qu5 | 5. Overall, how big a problem has your urinary function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2634 | Baseline survey | EPIC26Qu6A | A. Urgency to have a bowel movement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2635 | Baseline survey | EPIC26Qu6B | B. Increased frequency of bowel movements | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2636 | Baseline survey | EPIC26Qu6C | C. Losing control of your stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2637 | Baseline survey | EPIC26Qu6D | D. Bloody stools | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2638 | Baseline survey | EPIC26Qu6E | E. Abdominal/ Pelvic/Rectal pain | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2639 | Baseline survey | v9EPIC26Qu6 | 6. How big a problem, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists |
2640 | Baseline survey | EPIC26Qu7 | 7. Overall, how big a problem have your bowel habits been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2641 | Baseline survey | EPIC26Qu8A | A. Your ability to have an erection? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values |
2642 | Baseline survey | EPIC26Qu8B | B. Your ability to reach orgasm (climax)? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values |
2643 | Baseline survey | EPIC26Qu8 | 8. How would you rate each of the following during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | Group of Lists |
2644 | Baseline survey | EPIC26Qu9 | 9. How would you describe the usual QUALITY of your erections during the last 4 weeks? | 1 = None at all 2 = Not firm enough for any sexual activity 3 = Firm enough for masturbation and foreplay only 4 = Firm enough for intercourse -1 = Participant declines to answer | List of values |
2645 | Baseline survey | EPIC26Qu10 | 10. How would you describe the FREQUENCY of your erections during the last 4 weeks? | 1 = I NEVER had an erection when I wanted one 2 = I had an erection LESS THAN HALF the time I wanted one 3 = I had an erection ABOUT HALF the time I wanted one 4 = I had an erection MORE THAN HALF the time I wanted one 5 = I had an erection WHENEVER I wanted one -1 = Participant declines to answer | List of values |
2646 | Baseline survey | EPIC26Qu11 | 11. Overall, how would you rate your ability to function sexually during the last 4 weeks? | 1 = Very poor to none 2 = Poor 3 = Fair 4 = Good 5 = Very good -1 = Participant declines to answer | List of values |
2647 | Baseline survey | EPIC26Qu12 | 12. Overall, how big a problem has your sexual function or lack of sexual function been for you during the last 4 weeks? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2648 | Baseline survey | EPIC26Qu13A | A. Hot flashes | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2649 | Baseline survey | EPIC26Qu13B | B. Breast tenderness/enlargement | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2650 | Baseline survey | EPIC26Qu13C | C. Feeling depressed | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2651 | Baseline survey | EPIC26Qu13D | D. Lack of energy | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2652 | Baseline survey | EPIC26Qu13E | E. Change in body weight | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | List of values |
2653 | Baseline survey | EPIC26Qu13 | 13. How big a problem during the last 4 weeks, if any, has each of the following been for you? | 1 = No problem 2 = Very small problem 3 = Small problem 4 = Moderate problem 5 = Big problem -1 = Participant declines to answer | Group of Lists |
2654 | Baseline survey | LIBIDOQu1 | 1. During the last 4 weeks, to what extent were you interested in sex? | 0 = Not at all 1 = A little 2 = Quite a bit 3 = Very much -1 = Participant declines to answer | List of values |
2655 | Baseline survey | LIBIDOQu2 | 2. Have you used any medications or devices to aid or improve erections? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2656 | Baseline survey | LIBIDOQu3A | A. Viagra or another pill to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2657 | Baseline survey | LIBIDOQu3B | B. Muse (intraâ€urethral alprostadil suppository) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2658 | Baseline survey | LIBIDOQu3C | C. Penile injection therapy (such as caverject) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2659 | Baseline survey | LIBIDOQu3D | D. Vacuum erection device (such as erect-aid) to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2660 | Baseline survey | LIBIDOQu3E | E. Medication/device other than those explicitly listed to improve your erections? | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | List of values |
2661 | Baseline survey | LIBIDOQu3 | 3. Please indicate whether or not you have tried or currently use: | 0 = Have not tried it 1 = Tried it but was not helpful 2 = It helped but I am not using it now 3 = It helped and I use it sometimes 4 = It helped and I use it always -1 = Participant declines to answer | Group of Lists |
2662 | Baseline survey | ComorbQu1 | A. Heart disease (for example angina, heart attack, or heart failure) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2663 | Baseline survey | ComorbQu2 | B. High blood pressure | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2664 | Baseline survey | ComorbQu3 | C. Leg pain when walking due to poor circulation | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2665 | Baseline survey | ComorbQu4 | D. Lung disease (for example asthma, chronic bronchitis, or emphysema) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2666 | Baseline survey | ComorbQu5 | E. Diabetes | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2667 | Baseline survey | ComorbQu6 | F. Kidney disease | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2668 | Baseline survey | ComorbQu7 | G. Liver disease | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2669 | Baseline survey | ComorbQu8 | H. Problems caused by stroke | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2670 | Baseline survey | ComorbQu9 | I. Disease of the nervous system (for example Parkinson’s disease or multiple sclerosis) | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2671 | Baseline survey | ComorbQu10 | J. Malignant primary cancer other than prostate cancer within the last five years | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2672 | Baseline survey | ComorbQu11 | K. Depression | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2673 | Baseline survey | ComorbQu12 | L. Arthritis | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2674 | Baseline survey | ComorbQu0 | M. Do you have any diseases other than those listed above? | 0 = No 1 = Yes -1 = Participant declines to answer | List of values |
2675 | Baseline survey | ComorbQu | 1. Have you been told by a doctor that you have any of the following? | 0 = No 1 = Yes -1 = Participant declines to answer | Group of Lists |
2676 | Baseline survey | EPICSurveyMode | Survey Mode | 1 = Phone 2 = Email 3 = Mail 4 = Site | List of values |
2677 | Baseline survey | DtBaselineComplete | Date Completed | NA | Date |
2678 | Baseline survey | nationality | 1. What is your country of birth? | 1 = Ireland 2 = Other -1 = Participant declines to answer | List of values |
2679 | Baseline survey | nationother | Other nationality: | NA | Text |
2680 | Baseline survey | ethnicity | 2. What is your ethnicity? | 1 = Irish 2 = Irish Traveller 3 = Roma 4 = Any other White background 5 = African 6 = Any other Black background 7 = Chinese 8 = Indian/Pakistani/Bangladeshi 9 = Any other Asian background 10 = Arabic 11 = Mixed, write in description 12 = Other, write in description | Drop-down list |
2681 | Baseline survey | maritalstatus | ​3. What is your marital status? | 1 = Single 2 = Married (including cohabiting, civil partnership) 3 = Separated 4 = Divorced 5 = Widowed -1 = Participant declines to answer | List of values |
2682 | Baseline survey | children | 4. Do you have children? | 1 = Yes 0 = No | List of values |
2683 | Baseline survey | nchildren | 5. Number of children | NA | Integer |
2684 | Baseline survey | nchildren18 | ​6. Number of children under 18 | NA | Integer |
2685 | Baseline survey | currlivingarrange | 7. What is your current living arrangement? | 1 = Alone 2 = With spouse or partner (with/without children) 3 = With other family 4 = Assisted living 5 = Nursing home 6 = Other -1 = Participant declines to answer | List of values |
2686 | Baseline survey | livingother | Other living arrangement: | NA | Text |
2687 | Baseline survey | counton | 8. How many people are so close to you that you can count on them if you have serious personal problems? | 1 = None 2 = 1 or 2 3 = 3 to 5 4 = More than 5 -1 = Participant declines to answer | List of values |
2688 | Baseline survey | friendlyinterest | 9. How much friendly interest do people take in what you are doing? | 1 = None 2 = Little 3 = Some 4 = A lot 5 = Uncertain -1 = Participant declines to answer | List of values |
2689 | Baseline survey | currlivingplace | 10. Would you describe the place where you currently live as being? | 1 = In Dublin city or county 2 = In a city (other than Dublin) 3 = In a town (1500+ people) 4 = In a village 5 = In open country -1 = Participant declines to answer | List of values |
2690 | Baseline survey | educationcomp | 11. What is the highest level of education you have completed? | 1 = No formal education 2 = Primary school 3 = Secondary school 4 = Third level -1 = Participant declines to answer | List of values |
2691 | Baseline survey | occupation | 12. What is your occupational status? | 1 = Employed, full-time 2 = Employed, part-time 3 = Self-employed 4 = Unemployed 5 = Retired 6 = Other -1 = Participant declines to answer | List of values |
2692 | Baseline survey | income | 13. What is your annual household income range? | 1 = <15,000 euro 2 = 15,000-35,000 euro 3 = 35,000-55,000 euro 4 = >55,000 euro -1 = Participant declines to answer | List of values |
2693 | Baseline survey | medicalcard | 14. At the time of your diagnosis, did you have a medical card? | 1 = Yes 0 = No | List of values |
2694 | Baseline survey | privhealthins | 15. At the time of your diagnosis, did you have private health insurance? | 1 = Yes 0 = No | List of values |
2714 | TURP | TurpYN | TURP | 0 = No 1 = Yes | Drop-down list |
2715 | TURP | TurpDt | Date of TURP | NA | Date |
2716 | TURP | TurpPSAStatus | PSA Status | 1 = Taken 2 = Not taken | Drop-down list |
2717 | TURP | TurpPSA | PSA level | NA | Drop-down list |
2718 | TURP | TurpClin | Surgeon | NA | Search list |
2719 | TURP | TurpInst | Treatment Institute | NA | Drop-down list |
2720 | TURP | TurpClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2721 | TURP | TurpTrialNumber | Trial Number | NA | Text |
2722 | TURP | TurpTumourPresYN | Presence of Tumour | 0 = No 1 = Yes 9 = Not Known | Drop-down list |
2723 | TURP | TurpHistType | Histology 1 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2724 | TURP | OtherHistoTypeCode | Histology Type Other | NA | Text |
2725 | TURP | TurpHistType2 | Histology 2 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2726 | TURP | OtherHistoTypeCode2 | Histology 2 Type Other | NA | Text |
2727 | TURP | TurpHistType3 | Histology 3 | 1 = 8140/3 = Adenocarcinoma 2 = 8480/3 = Mucinous (colloid) 3 = 8490/3 = Signet ring-like cell 6 = 8500/3 = Ductal adenocarcinoma 7 = 8120/3 = Urothelial carcinoma 8 = 8560/3 = Adenosquamous carcinoma 9 = 8070/3 = Squamous cell carcinoma 11 = 8147/3 = Basal cell carcinoma 12 = 8574/3 = Adenocarcinoma with neuroendocrine differentiation 13 = 8240/3 = Well differentiated neuroendocrine tumour 14 = 8041/3 = Small-cell neuroendocrine carcinoma 20 = 8572/3 = Sarcomatoid 21 = 8500/2 = Intraductal carcinoma 99 = Other 100 = Unknown | Drop-down list |
2728 | TURP | OtherHistoTypeCode3 | Histology 3 Type Other | NA | Text |
2729 | TURP | TurpGle1 | Gleason Score | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2730 | TURP | TurpGle2 | + | 1 = 1 2 = 2 3 = 3 4 = 4 5 = 5 -1 = Not stated -2 = No pathology report -3 = Insufficient sample | Drop-down list |
2731 | TURP | TurpGleSum | = | NA | Integer |
2739 | WWAS | WwAsYN | Watchful waiting/active surveillance | 0 = No 1 = Yes 9 = Not known | Drop-down list |
2740 | WWAS | WwAsDt | Date of Watchful waiting/active surveillance | NA | Date |
2741 | WWAS | WWASType | Surveillance type | 1 = Active surveillance 2 = Watchful waiting | Drop-down list |
2742 | WWAS | AsClinType | Clinician Monitoring Patient | 1 = Specialist 2 = GP 3 = Both (Specialist + GP) | Drop-down list |
2743 | WWAS | AsClin | Clinician | NA | Search list |
2744 | WWAS | AsInst | Treatment Institute | NA | Drop-down list |
2745 | WWAS | AsClinicalTrial | Is participant enrolled in a Clinical Trial? | 1 = Yes 0 = No -1 = Not stated | Drop-down list |
2746 | WWAS | AsTrialNumber | Trial Number | NA | Text |
2747 | WWAS | TransWW | Transitioned to Watchful Waiting? | NA | Boolean |
About IPCOR
Aims
The IPCOR clinical quality registry project aims to create a novel comprehensive prostate cancer outcomes dataset and biorepository enabling quality improvement at sites along with high-quality clinical and translation research.
Research and Publications
Research
IPCOR has published a number of reports and scientific articles as well as several abstracts, posters and presentations regarding prostate cancer care and outcomes.
Media
Media articles, radio shows and podcasts
IPCOR is featured in a number of media articles, radio shows and podcasts.